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14Fan 07-02-2012 07:10 PM

Hello Active MSers
My name is Susan and I was diagnosed with MS at the age of 49, in November of 2010. I have been on Betaseron since March of 2011. I have foot drop in the left leg, that has steadily gotten worse over the course of the last year and a half.

I am so glad I found this site! Even though friends and family care, they really don't understand what a struggle everyday life can be for someone with MS.

I look forward to being part of this forum!

blndebmbr 07-23-2012 03:15 PM

I am the new kid...
Hi Everyone!
My name is Tammy. I am 39 years old. I do everything with my 15 year old daughter. We race motocross, we CrossFit, we eat healthy. We are training for her to make a bid for the National Amatuer Championship at Loretta Lynn's Dude Ranch in 2015. We really started this work in April of this year. I am proud to say I am in the best shape of my life, eating amazing healthy foods and losing all my midlife fat. I lost 5 inches in my waist....I feel amazing.

July 12, 2012 I was diagnosed with MS.
Well isn't that a humdinger?

I grew up riding horses, running track and was a pom pon girl. Lots of exercise and sunshine. Heck we had a hobby dairy goat farm so I had the best milk a girl could drink!!

So here I am being incredibly active and refusing to stop. I was so relieved to find something active in relation to MS. Curling up in a ball and giving up is not in my DNA, no matter what MS says.

My optic neuritis is still messing with my vision, but I was able to race this weekend and it was awsome. I feel like me today....the first time in almost two weeks and I am so happy to be here...for now. I am waiting for my insurance to preauthorize my meds. Once I have that, I will begin Copaxone.

I was thrilled to see others refusing to give in. Thank goodness I am not the only rebel out there!!!!

nancyms 08-01-2012 02:05 AM

Nancy from Texas
I had a probable ms diagnosis in 1973 that was confirmed in 1980. I have gone through several relapses and remissions but as I have aged the remissions take longer to happen and leave me with more inconveniences each tme. CurrentlyI use a walker routinely and a manual wheelchair for distances. I have participated in wheelchair athletics (basketball, tennis and field events) over the years and try to stay as active as possible.

Sparky10 08-15-2012 12:36 AM

As someone else said, I'm not an athlete but have always been active. Certain times of the year have me hunting for deer antler sheds, Morel mushrooms, or picking mulberries. I try to walk or jog at least 4/10s of a mile a day (to the end of my lane and back). I've managed to jog a full mile but that's really too much!

Along with some flowers, I grow asparagus, wild garlic, and rhubarb. Strange combination, you say? The asparagus and rhubarb were here when I bought this place 3 years ago, and I brought the garlic from Mississippi (and some of the flowers). Now I live in east central Iowa with my BF, 2 cats and a Lab-mix humane society refugee.

Birdwatching and messing with my houseplants are my favorite hobbies! Plus I handle the outdoor plants and pushmowing while my BF rides the big mower.

Great website you've got here, Dave! I've recommended it to many people over the years but never took the time to join.

dandylion 08-19-2012 06:53 PM

Hi all,

I'm 32, new to activemsers, MS and Copaxone... I received my RRMS diagnosis close to 2 months ago and am on week 3 of the meds.

While I'm not on the sporty side of being active, I am very big on travel and will be setting off on a 4 month trip across Asia in October (counting the days!). I also went skiing for the first time as an adult earlier this year, and look forward to keep going back for more in the coming years.

I'm so glad to have come across this forum - I haven't been able to bring myself to join any of the others - the ethos behind active msers gives us a chance to come together from such a positive angle - THANK YOU!

tkotko 08-31-2012 06:35 PM

Keep Moving to Keep Moving...
That's what one of my PTs told me a couple of months ago. Just diagnosed at the end of March. Doing Rebif. Not sure how I know that it's working other than I haven't gotten worse, perhaps a bit better since I started it. I can say that I fall A LOT less often since I started the injections, so I guess it is making some difference. But wow, just the dx is still such a shock sometimes. I was always active, hiking, biking, travel...and I really really need to keep doing it to stay alive, I think. So far, mostly weird numbness and spacticity in legs (usually just knees down). Some days are worse than others, of course. It never completely goes away, but sometimes it just feels like I'm walking in a creek or something. Still getting my frame of reference. Have a cervical disc bulge, and that was the suspected reason for my issues for over a year. All so weird. I keep a good attitude most of the time, but I have my days... Anyway, it's nice to find this site! Thank you so much for being there, Dave! And PS, New Mexico is my favorite place to be in the US (though I live and work in the midwest--for now, anyway). Loved the stem cell/hope video.
Peace! Tam

lusciousleaves 10-22-2012 12:09 AM

Hi all. I'm new here, still not diagnosed, but having similar issues to MSers. Came in to ask a question of the active crowd, if you don't mind. I'll post it in the exercise forum.

MeredithRX 12-11-2012 01:51 AM

What a fantastic board! I stumbled upon this quite by accident tonight and I'm so glad I did!

My name is Meredith. I'm 35, married, and mom to 3 boys. I was diagnosed with MS in 2009 after having "mystery ailments" for years. I was so relieved I actually laughed when they finally diagnosed me. I couldn't believe I could finally prove I wasn't crazy! I've been on Copaxone since then.

I was never extremely active before my diagnosis. I decided after a brief period of trying to figure out what to do next, that I wanted to do a half marathon. Why? I'm not quite sure, but I would be darned if anyone would say I couldn't. *laugh* I trained for a year and finished that half marathon. I did my 11th one this past weekend and have several more scheduled.

I've gotten slower over the past few years (instead of faster, like all my non-MS friends seem to be doing *laugh* ). I can't jog much anymore and have become purely a walking participant. My foot drop makes things interesting and my right leg likes to start playing tricks on me as soon as I cross the 4-mile marker. But, I've decided that I'm going to keep signing up for these things and keep showing up until they tell me I have to get off the course.

My other friends sympathize, but don't quite understand. This forum could be fabulous for me! Thank you!

AZgal 12-21-2012 05:04 PM

My name is Lisa and here's a short run down of my story.

For my 46th birthday (in October 2012), I received the lovely gift of MS. It seems though that MS had a bit of memory fog and actually showed up anonymously a few weeks early for my party and then again a few weeks late, this time introducing itself.

I have to say it presented me with several very unique gifts though -- one being an amazingly unpredictable tingling sensation which has taken up residence in mostly the right side of my body. I say unpredictable because, well, you never know exactly where it is going to announce itself or if it's going to decide to stay in that one location for the entire day. Some days it's in my calf and foot; some days my back and shoulder (though that's not too bad, cuz then I can't feel the chronic shoulder pain I usually live with); and some days my right ass cheek is asleep and tingly all day (that's always interesting).

I've trained in martial arts on and off for the last 20 years. Though I had to take a couple months off when I first got sick, I am back in the studio. It was difficult at first to have to basically start over again, but I am back in the studio nonetheless and am determined to continue my training (with the help of my long-time training partners) for as long as I can.

Love your blog and this forum! Thank you.

ActiveMSers 12-24-2012 02:07 PM

Lisa, and others, I (and others) usually shy away from posting in this thread because if folks welcomed every new member it would become way too long, but at the same time, I know I want to say howdy. So in the New Year look for a new method to introduce yourselves that will be better suited to welcoming new members. With that said, welcome Lisa and Meredith (and everyone else)! Sure glad you found us!

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