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ActiveMSers 07-08-2008 05:29 PM

Active MSer? Introduce Yourself Here!
Glad you found us at ActiveMSers. I invite you to introduce yourself here in this thread. Be as brief or as detailed as you want. I'll start....

My name is Dave of Albuquerque, NM. I started ActiveMSers in March of 2006, a week before I was officially diagnosed with MS at age 37. Began a DMD (disease modifying drug) shortly thereafter. Married to a fantastic wife (no kids), I like to snowboard, travel, bike, cook, hike, and hit the gym. Hi everyone!

(If you are bored, you can read my full story here:

mina 07-09-2008 02:49 PM

hi! i adore this site & am sooo grateful to Dave for providing it. Thanks Dave!

I live in NYC, got diagnosed with RRMS about 1.5 years ago. had only one relapse since. & just found out I'm pregnant! (yes, married too.)

I thought I'd post that b/c I found it so hard to find info about pregnacy & disease modifying drugs. so if anyone has any questions...

I was very active before my diagnosis & then for about a year was paralyzed with fear. Used to run, bike, do yoga, play tennis, etc. Slowly getting back into those things I love. What helped me enormously was physical therapy. Helped me differentiate what was MS-related & what was just being out of shape.

Starting activities again improved my mood & I am back to (almost) my old, happy, optimistic self again :)

Bridget 07-09-2008 03:38 PM

Hi - My name is Bridget and I'm from NYC and am single. I was diagnosed 1.5 years ago (same time and city as Mina!) and went on Avonex right away. I've had 3 relapses since I've been diagnosed but except for those times I feel basically fine and have continued by workouts as before.

I go to the gym just about every day and really like the elliptical and spinning. I'm like a spinning addict! I also like hiking; but it's hard to get out to hiking spots from the city. I also like going out with my friends and drinking wine - is that an active pursuit?

I used to run alot (~4 miles several times a week); but gave that up when I fell last summer (it was the beginning of a flare). I want to get back to running; but have a big mental block there. Help encourage me to start running again!

So glad to have found this site for like-minded, positive people!

kinnv 07-09-2008 04:46 PM

Greetings from Nevada!
Hi Everyone!

My name is Kathy - I was born and raised in Albuquerque but have resided in Las Vegas, NV for over thirty years. I was diagnosed with MS almost two years ago - a real shocker as I am 59 years young!!

I am currently on Rebif. So far - so good. I have refused to let this disease get me down. I am an avid traveler and have a passion for the outdoors. I did run - ran my first marathon 4 years ago but now my little legs just won't go that far!! I do yoga daily which really helps with my leg stiffness.

Thank you Dave for providing this great forum!

Wishing you all a good, good day,


AbqMSer 07-09-2008 04:49 PM

Hi all; I have been diagnosed with MS since 1999. Trying to network and find other people to connect with that have MS as well.

Hope to see you all at the "Quiz the Neurologist" on July 16th.

Dave: Thanks so much for putting the effort into starting this...

Angel@ 07-09-2008 05:02 PM

hi all,
I'm a 30 year old ;) woman from the Netherlands. I was diagnosed with RR MS in sept '05. started om Avonex in okt '06

I found "activems" as I was doing research om traveling with MS and avonex, as I was planning a trip to the USA in okt 2007.

must admit that I'm not as active as I should be ;) but keeping my daily life up and running can sometimes takes up too much energie and time. :o

like it that this now also has a forum.
grats on the pregnancy, Mina and hope to visit the forum often
greets, Angela

mina 07-10-2008 10:47 AM

hi Bridget - wow I am so impressed that you are spinning - can only hope to get back to that level of exertion! I'd think if you're already doing that, running would be a cinch! do you ever run in Central Park?

what hosp/MS center do you go to?
I'm at Mt Sinai, Dr. Aaron Miller. He is great, very no-nonsense.

Bridget 07-10-2008 03:36 PM

hi - I'm with Dr. Apatoff - he's at Cornell Weill Med Center - but leaving there in a few weeks for some other location in midtown. Am waiting to hear about which hospital he lands at to see whether my insurance has them in-network. Awful that insurance is the driving factor for a choice of doctor; but that's our reality! I've heard of Dr. Miller - glad you like him. May be asking you questions about Mt Sinai depending on my dr.'s new hospital. I really like Apatoff though!

I used to run the West Side Highway - I'm an out-and-back runner (instead of a loop runner). I've runthe park in those NYRR races. I like the park - but can't get used to the loop - it keeps making me think about how far I have to go to the end of the loop! I do love the Central Park celebrity sightings though - Howard Stern, Kelly Rippa...makes it interesting. I just have to get myself back out there!

BethAcorn 07-11-2008 12:29 PM

Hi All
My name is Beth and I'm in Ohio. I just found the activeMSers site and am looking to get active, for the first time in my life. :eek:

I was dx'ed in 1997 and have tried and given up on 3 of the dmd's. Currently I'm on Imuran.

I sprained my ankle on Feb 1st of this year and am still in PT for it. I also started PT yesterday for back pain related to wearing a walking cast (being lopsided) for over 2 months.

I looking forward to this experience.


AmyK 07-15-2008 03:49 PM

I just stumbled upon this site happily. Was just diagnosed in May. Have been on Avonex for 6 weeks. Not convinced this is what I should be taking. Has anyone heard of Low Dose Naltrexone? If so, what have you heard?

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