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-   -   Gotta new drug: Baclofen (http://forums.activemsers.org/showthread.php?t=2764)

Rosie 07-30-2018 02:21 PM

Baclofen
 
Hi Dave - I've used Baclofen for the last couple of years, and have had no problem with it. I use a very small dose 5-10mg at night as needed for craps and spasms in my goofy leg, and stiffness in my back. I have used as high as 20mg when really flared up (I've had 2 episodes) following episodes of severe cold /flu. My nuero. said I could go as high as 90mg in a day if it were severe.....lets hope it never gets that bad! I hope you adjust to it!

ActiveMSers 08-01-2018 05:56 PM

Wow, this input is incredible. And timely. Thanks Rosie, Linda, Laney, Wifey, GG, Doug and Alain. I really appreciate it. The fatigue and fog haven't been too bad, but since I usually have almost zero, it's definitely been noticeable. Fortunately it helps.

Spasticity is rather sucky! And it's definitely sucky if I don't stretch and take my Baclofen.

ActiveMSers 02-04-2019 01:46 PM

Wanted to post an update on my Baclofen experience. I'm now taking 20mg every 8 hours or so (it effectively lasts about 6 hours). Definitely helps. I could add another pill if necessary, but as previously mentioned, 80mg is generally considered the max per day without going to a pump.

Fortunately the fatigue and loopiness caused by the drug have mostly gone away and crop up only rarely. I'll stick with this plan for the time being, especially as it has tamped down significantly the dreaded leg lock.

girl1dir 02-04-2019 07:17 PM

Quote:

Originally Posted by ActiveMSers (Post 10689)
Wanted to post an update on my Baclofen experience. I'm now taking 20mg every 8 hours or so (it effectively lasts about 6 hours).

Interestingly I found that 30mg 3 times a day is my sweet spot, but I upped it too quickly and had some icky side effects (numb tongue!!??!!). I'm back down to 10mg 3x daily until I can figure out this tongue -- oddball side effect or an oddball relapse? No one knows.


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