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Search: Posts Made By: Cvfactor
Forum: General 09-12-2016, 07:37 AM
Replies: 3
Views: 2,046
Posted By Cvfactor
Goodbye

Hi Everyone,

I found out last week that my problems are due to autoimmune encephalitis and not MS. But I think this is a wonderful forum and hope the best for you all.

Take care,

Mark Thrasher ...
Forum: General 06-02-2016, 12:05 PM
Replies: 9
Views: 5,304
Posted By Cvfactor
Hi Subee, Still taking the Albuterol and haven't...

Hi Subee,

Still taking the Albuterol and haven't had any issues with it though I dId have a relapse a few months after starting.

I hope all is good with you.

Take care
Forum: General 05-20-2016, 08:09 PM
Replies: 9
Views: 5,304
Posted By Cvfactor
Hi Suebee, I'm really not qualified to make an...

Hi Suebee,

I'm really not qualified to make an evaluation as I only have a mechanical engineering degree.

But if MS is purely an autoimmune disease driven by T cells (or B-cells) then you would...
Forum: General 01-29-2016, 03:49 PM
Replies: 5
Views: 2,274
Posted By Cvfactor
Dave actually was in a HSCT trial for his active...

Dave actually was in a HSCT trial for his active disease. I think if I had really aggressive disease I would like to have this as an option.

I can't really say if it is any better than some of the...
Forum: General 01-18-2016, 07:04 PM
Replies: 70
Views: 22,044
Posted By Cvfactor
Good luck. Even though it's not approved this...

Good luck. Even though it's not approved this would be my choice if I had to escalate to a more potent therapy.

Here is an article about...
Forum: General 12-17-2015, 07:45 AM
Replies: 17
Views: 6,141
Posted By Cvfactor
Why has this trail generated angst?

Why has this trail generated angst?
Forum: General 10-21-2015, 06:06 PM
Replies: 8
Views: 3,204
Posted By Cvfactor
Yes, there is a lot of difficulties trying to...

Yes, there is a lot of difficulties trying to measure brain atrophy. Even comparing scans taken from different machines can cause errors in the results. I don't think it is a perfected science at...
Forum: General 10-15-2015, 01:15 PM
Replies: 8
Views: 3,204
Posted By Cvfactor
Suebee, I think the problem is there is no...

Suebee,

I think the problem is there is no consensus on how brain volume is measured (there is no standards for software, etc.).

Until there is a standard set and it is widely accepted that this is...
Forum: General 10-12-2015, 04:44 PM
Replies: 8
Views: 3,204
Posted By Cvfactor
I'm happy with the radiologist that looks at my...

I'm happy with the radiologist that looks at my scans. He noted that my brain atrophy rate has stabilized since I started on Copaxone.

I don't think it is usual protocol for atrophy to be looked at...
Forum: General 10-07-2015, 11:14 AM
Replies: 1
Views: 2,334
Posted By Cvfactor
Hi Swintz, Sorry I don't know if either Tysabri...

Hi Swintz,

Sorry I don't know if either Tysabri or pulsed steroids has any effect on SPMS.

But just to let you know there was a recent finding that another drug in development has an effect on...
Forum: General 09-28-2015, 06:52 AM
Replies: 14
Views: 5,047
Posted By Cvfactor
Rituximab

Hi Subee,

There is some news on a drug in development called Ocrelizumab. The initial communication from the company doing trials is that this drug has an impact on progressive MS as well as...
Forum: General 09-25-2015, 02:15 PM
Replies: 14
Views: 5,047
Posted By Cvfactor
Suebee, Sorry to hear you think you are entering...

Suebee,

Sorry to hear you think you are entering SPMS. Hopefully you and your doc can find a medication that will help.

Take care
Forum: General 09-25-2015, 01:40 PM
Replies: 14
Views: 5,047
Posted By Cvfactor
One other thing I should mention is the concept...

One other thing I should mention is the concept of "protective autoimmunity" which is the notion that autoreactive immune cells can also provide a benefit. This theory makes sense to me since all...
Forum: General 09-24-2015, 04:51 PM
Replies: 14
Views: 5,047
Posted By Cvfactor
Suebee, Here is a new article that discusses the...

Suebee,

Here is a new article that discusses the issue of when to switch therapies:

http://www.sciencedirect.com/science/article/pii/S2211034815001066
Forum: General 09-24-2015, 04:30 PM
Replies: 14
Views: 5,047
Posted By Cvfactor
I think looking for PML is not up to your doctor...

I think looking for PML is not up to your doctor when you start Tysabri, it is an FDA mandate. Any doctor prescribing Tysabri has to have approval through the TOUCH program.

The purpose of the...
Forum: General 09-09-2015, 05:52 AM
Replies: 60
Views: 18,335
Posted By Cvfactor
Thanks Suebee.

Thanks Suebee.
Forum: General 09-08-2015, 08:16 PM
Replies: 60
Views: 18,335
Posted By Cvfactor
So my double vision is subsiding before I was...

So my double vision is subsiding before I was able to get in to see my neurologist. It may be that this therapy doesn't prevent relapses but when they happens it shuts down inflammation.

This is the...
Forum: General 09-07-2015, 05:44 PM
Replies: 60
Views: 18,335
Posted By Cvfactor
Double Vision

Beginning yesterday I started having double vision which is a common symptom for a relapse for me. I was hoping this therapy would put an end to this but it looks like it didn't. I'll talk it over...
Forum: General 08-16-2015, 09:27 AM
Replies: 8
Views: 5,228
Posted By Cvfactor
For me I decided to go with Copaxone after...

For me I decided to go with Copaxone after reading the longterm extension study of the original trial.

This shows that of those on Copaxone continuously for 15 years, 57% had stable or improved...
Forum: General 08-09-2015, 03:14 PM
Replies: 60
Views: 18,335
Posted By Cvfactor
I just wanted to give an update that I have not...

I just wanted to give an update that I have not had any Ill effects with this add on therapy. If it prevents relapses next winter I'll be happy.

One thing I wanted to explain is that the researchers...
Forum: General 07-24-2015, 09:59 AM
Replies: 15
Views: 8,685
Posted By Cvfactor
I guess it would be true that if haven't switched...

I guess it would be true that if haven't switched yet to the 40mg, your insurance may give you a hard time with not switching to the generic. You sound like you have a good doc.

For me I'm staying...
Forum: General 07-23-2015, 05:45 PM
Replies: 15
Views: 8,685
Posted By Cvfactor
Suebee, Are you saying that Teva will no longer...

Suebee,

Are you saying that Teva will no longer provide the 20mg formulation? I was under the impression that Teva was going to continue to sell this version. I think I recall hearing that if your...
Forum: General 07-10-2015, 10:58 AM
Replies: 1
Views: 2,107
Posted By Cvfactor
Lake Superior Circle Tour

I'm leaving on another motorcycle trip this Sunday around Lake Superior:

http://www.mapquest.com/?version=1.0&hk=2-DxoaC7iA

I'll update the post with pictures probably when I get back. It should be...
Forum: General 07-07-2015, 06:14 AM
Replies: 16
Views: 6,941
Posted By Cvfactor
Thanks for the video and presentation. I think...

Thanks for the video and presentation. I think researchers are starting to understand why progression happens and hopefully this will lead to treatments.

Here is an excellent video that gives a...
Forum: General 07-05-2015, 11:24 AM
Replies: 16
Views: 6,941
Posted By Cvfactor
Yes, this combination is already available over...

Yes, this combination is already available over the counter. I take two of these a...
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