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Forum: General 02-18-2020, 12:36 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Hey Linda, I actually refuse to get any more...

Hey Linda,

I actually refuse to get any more MRI's unless my neurologist promises to give me his opinion of brain volume. Apparently my neuro passed this along to the radiologist because on my last...
Forum: General 02-17-2020, 04:09 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Arrow LMH, just a couple of thoughts. My impression of...

LMH, just a couple of thoughts.

My impression of the MS burnout with age theory is that it is based primarily on anecdotal evidence and secondarily on a lack of active lesion activity on MRI's...
Forum: MS Fitness 02-17-2020, 03:17 PM
Replies: 12
Views: 910
Posted By AMFADVENTURES
Snow Weary or Enough of This Snowmagedan Already

Hey Karen, glad you're enjoying yoga. I find that during periods when for one reason or another, I'm not exercising much, yoga is always my way back. And if I don't do it for even a couple of weeks...
Forum: MS Fitness 02-06-2020, 06:31 PM
Replies: 2
Views: 257
Posted By AMFADVENTURES
Ha, "The ActiveMSer, The Suffering Celebrity of...

Ha, "The ActiveMSer, The Suffering Celebrity of the Paseo del Bosque!"

It has a nice ring to it don't you think?

I really need to get down there and "suffer" that with you one of these days.

Larry
Forum: General 02-06-2020, 06:22 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Thanks for the update Suebee, sounds like it was...

Thanks for the update Suebee, sounds like it was pretty easy for you. They don't give me bennedryl any more because it puts me to sleep and apparently I am a horrible snorer in an upright possition....
Forum: MS Fitness 02-06-2020, 06:04 PM
Replies: 12
Views: 910
Posted By AMFADVENTURES
TM, great news on getting those sidestix going...

TM, great news on getting those sidestix going again! All my best vibes on continued recovery! And Marina, didn't know you were going through those problems with your hips. Hope you're getting on...
Forum: MS Fitness 01-23-2020, 06:59 PM
Replies: 12
Views: 910
Posted By AMFADVENTURES
Back in the Saddle

I love this time of year!

Got out for the first ride of the year this week. Went around my favorite piece of urban country side, the reservoir a couple of miles from my house. The sun was out and...
Forum: MS Fitness 01-08-2020, 04:24 PM
Replies: 12
Views: 910
Posted By AMFADVENTURES
Happy New Year

Happy New Year all and a happy new decade!

Thanks for the Yoga video Suebee. I can genuinely appreciate the mindfulness approach to many things we do, from social interaction to exercise to...
Forum: Pacific Region 12-21-2019, 05:24 PM
Replies: 4
Views: 932
Posted By AMFADVENTURES
This is a great topic, I'm sure there are a lot...

This is a great topic, I'm sure there are a lot of folks in a similar situation so I've listed some places I've managed to make friends and meet exercise buddies.

I met two of my best friends and...
Forum: MS Fitness 12-17-2019, 06:11 PM
Replies: 59
Views: 15,892
Posted By AMFADVENTURES
End Of The Year Notes

Just thought I'd put down a short summary of where things are at as I near the end of the year.

First off, I did not get even 3000 miles in on the bike, somewhat of a low for me as I normally get 3...
Forum: General 12-12-2019, 01:13 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Hey Suebee, Medicare pays for my Rituxan through...

Hey Suebee, Medicare pays for my Rituxan through my HMO. It is on the Medicare approved drug list for MS. I might also say that although the Rituxan hasn't entirely stopped my MS progression, it...
Forum: MS Fitness 11-26-2019, 03:14 PM
Replies: 59
Views: 15,892
Posted By AMFADVENTURES
TM, welcome back, great to hear from you again. ...

TM, welcome back, great to hear from you again. I think about you often. I see you're still getting into plenty of trouble. Wishing you all the best on your journey back to the pool, looking...
Forum: MS Fitness 11-09-2019, 06:10 PM
Replies: 59
Views: 15,892
Posted By AMFADVENTURES
Congratulations on the MS ride Alain! That...

Congratulations on the MS ride Alain! That certainly was rude of your battery to give out on you but as usual, I'm duly impressed by your ability to pull through! Can't help but think that the...
Forum: MS Fitness 11-09-2019, 05:39 PM
Replies: 52
Views: 24,677
Posted By AMFADVENTURES
Suebee, I'll be very interested in your opinion...

Suebee, I'll be very interested in your opinion of how well this works for you.

Larry
Forum: General 11-09-2019, 05:36 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
A couple of key take aways from the recent Rocky...

A couple of key take aways from the recent Rocky Mountain Multiple Sclerosis Center education summit on MS.

1) Truxima, the new Rituxan biosimilar is essentially Rituxan.

2) Except in rare cases,...
Forum: MS Fitness 11-01-2019, 09:56 AM
Replies: 3
Views: 845
Posted By AMFADVENTURES
Free Beer

Free beer, can't believe free beer wasn't part of the study! Who thinks these studies up anyway?

Very well organized and conducted primarily by fantastic volunteers.

Most are as chalenging as a...
Forum: General 10-30-2019, 11:55 AM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Hey Suebee, my neurologist and PCP recommended...

Hey Suebee, my neurologist and PCP recommended flu, pneumonia, tetanus, hep A, hep B, shingles, typhoid and yellow fever vaccines prior to my first rituxan infusion. The typhoid and yellow fever...
Forum: General 10-29-2019, 06:47 PM
Replies: 4
Views: 849
Posted By AMFADVENTURES
Bad HDL?

Suebee, thought you might enjoy this. Just had a physical with usual blood tests, PCP was on me to get on a satin and when blood tests came back with alarmingly high total cholesterol I said OK...
Forum: MS Fitness 10-25-2019, 03:41 PM
Replies: 28
Views: 8,797
Posted By AMFADVENTURES
Gotta say Hondo, I do believe you have the...

Gotta say Hondo, I do believe you have the formula for doing this stuff exactly right. Nice job.

Larry
Forum: General 10-25-2019, 03:33 PM
Replies: 4
Views: 849
Posted By AMFADVENTURES
I don't see the biomarker connection either. ...

I don't see the biomarker connection either. Seems like a stretch to me. However, fortuitous timing on bringing the article up as I just got the results of my lipid panel back yesterday and while...
Forum: General 10-25-2019, 02:49 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Hey Linda, sorry to hear the MS is acting up,...

Hey Linda, sorry to hear the MS is acting up, falling that much is not a good thing! Are the chest spasms like a cramp? If they are, here's something you might try, I'd give it a slim chance of...
Forum: Mountain Region 10-25-2019, 01:42 PM
Replies: 0
Views: 334
Posted By AMFADVENTURES
RMMSC Education Summit, November 9

RMMSC Fall Education Summit Coming November 9
Join in person or online!

Join us for a series of presentations and discussions with leading minds in the care and treatment of multiple sclerosis at...
Forum: General 10-23-2019, 02:39 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
So I got a response back from MSAA about 20...

So I got a response back from MSAA about 20 minutes after I sent an inquiry. IMO, Those people really are the go to source for PWMS.

Anyway, this article, referred by MSAA, seems to specifically...
Forum: General 10-23-2019, 01:26 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Turns out that is really an interesting question...

Turns out that is really an interesting question Suebee. Truxima is considered a "biosimilar" to Rituxan. The pathway through FDA approval for a biosimilar is significantly reduced from that of a...
Forum: General 10-22-2019, 10:33 PM
Replies: 84
Views: 23,706
Posted By AMFADVENTURES
Hey Suebee, my understanding is that they are...

Hey Suebee, my understanding is that they are essentially the same except Rituximab is derived from animal cells and Ocrevus is derived from human cells.

Because Ocrevus is derived from humans,...
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