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Search: Posts Made By: Suebee
Forum: General 05-21-2020, 06:57 PM
Replies: 1
Views: 105
Posted By Suebee
Wink Interesting article Dave. I wasnt surprised by...

Interesting article Dave. I wasnt surprised by finding that sleep disorders are associated with fatigue. I didnt see if sleep disorders common to People with MS have been defined in order to...
Forum: General 05-21-2020, 11:07 AM
Replies: 0
Views: 37
Posted By Suebee
Misc. COVID19 Tips

I posted "at risk" front door sign to discourage people from ringing door and expecting me to answer.. A sign of economic downturn here, i've had a significant increase door to door salespeople these...
Forum: General 05-04-2020, 09:40 PM
Replies: 22
Views: 1,855
Posted By Suebee
Talking Consider buying pulse oximeter!

Have you all noticed that some doctors have suggested that people consider buying a pulse oximeter as a personal home monitor in case you or your family contracts covid19? This is because covid19 can...
Forum: General 04-30-2020, 09:50 PM
Replies: 7
Views: 665
Posted By Suebee
Express 2 hr delivery / Walmart!

Walmart announced Express 2 hour delivery for about 2000 stores across the country for many types of items for a $10 delivery cost. Website says online site will tell you if item is available for...
Forum: General 04-24-2020, 07:19 PM
Replies: 3
Views: 669
Posted By Suebee
MS crowd sourced song!

A friend sent me this great video by musician Marie performing her MS Breakup/ love triumph song. She crowd sourced the lyrics to best describe MS as a life partner. ...
Forum: General 04-23-2020, 11:07 PM
Replies: 22
Views: 1,855
Posted By Suebee
Latest neuro view

In Mult Scler Relat Disord. 2020. doi: 10.1016/j.msard.2020.102073, The COVID-19 pandemic and the use of MS disease-modifying therapies, Gavin Giovannoni et al. Dr. G and multiple other neurologists...
Forum: General 04-23-2020, 12:58 AM
Replies: 92
Views: 29,231
Posted By Suebee
On scheduling calendar but..

I'm on scheduling calendar at hospital for an MRI and infusion in July. I plan to discuss with my neuro the options when its gets closer. I'm in Houston area, we haven't hit peak yet. Im skittish...
Forum: General 04-07-2020, 12:48 PM
Replies: 7
Views: 665
Posted By Suebee
Uggh, Why & How to Wipe down Groceries

Reluctantly, I recently began wiping down my groceries after a significant cluster and deaths from Covid19 occurred in my immediate area including grocery. Before all thIs, poor endurance and vertigo...
Forum: General 04-07-2020, 12:29 PM
Replies: 22
Views: 1,855
Posted By Suebee
Cautiously Optimistic Data Ms DMTs/ Covid19

Hi All, I hope you are well and safe at home. This past week, Iíve been watching anxiously for more data on Covid19 outcomes from Europe and UK that use similar DMTs for MS as is used in the States. ...
Forum: General 04-02-2020, 09:47 PM
Replies: 7
Views: 665
Posted By Suebee
Vit c studies on covid

Yes, my apologies for misspellings, Celia, my brain fog has been heightened by stress from all this. A cluster is around my home and grocery and my husband is an essential employee, but got a...
Forum: General 04-02-2020, 02:52 PM
Replies: 7
Views: 665
Posted By Suebee
Shopping List/ Expert Recommended

I'm struggling a bit to determine what I need in my pantry and to balance it with my budget. I also have been concerned about conflicting advice on pain killers and safe levels of vitamin c and...
Forum: General 03-29-2020, 02:21 PM
Replies: 22
Views: 1,855
Posted By Suebee
MS Prof G explains safe level lymphocytes

If you are on DMT and consulting with your neurologist about continuing or postponing, Dr. G from U.K. explains in todayís post:

ďI know that a lot of you are confused because some neurologists are...
Forum: General 03-28-2020, 06:35 PM
Replies: 7
Views: 665
Posted By Suebee
CVS home delivery for pharmacy & groceries

CVS offering "Insta-cart" to deliver pharmacy and groceries to your home from your local store.
Here is link to get Insta-cart https://delivery.cvs.com/

I tried it. It worked. It just needs name...
Forum: General 03-28-2020, 12:59 AM
Replies: 22
Views: 1,855
Posted By Suebee
Promising News: No reports of mortality in immunosuppressed

A few days ago An Italian doctor, Dr Lorenzo D’Antiga, published a peer reviewed article which states covid-19 to date has not shown severe disease in immune suppressed individuals and that this is...
Forum: General 03-26-2020, 10:13 PM
Replies: 7
Views: 665
Posted By Suebee
SAMs store posts Senior & At Risk hours + Concerige

I sometimes shop at Sams and saw this notice from Sams posted: ďStarting ...March 26, Samís Club locations nationwide will offer early shopping hours every Tuesday and Thursday from 7 a.m. to 9 a.m....
Forum: MS Fitness 03-22-2020, 04:15 PM
Replies: 32
Views: 4,190
Posted By Suebee
Hi all, it is good to see your posts, and hear...

Hi all, it is good to see your posts, and hear about all about your accomplishments before pandemic, and now how you all are adjusting, staying active and safe during this crazy surreal time. TM I...
Forum: General 03-20-2020, 05:02 PM
Replies: 7
Views: 665
Posted By Suebee
Lightbulb Complete List of Grocery Stores with hrs for AT Risk

As of March 20th, Here is the best up to date list I could find of grocery stores across the country that are offering special hours for over 60, at risk, or pregnant. Some have delivery and pick up...
Forum: General 03-20-2020, 01:37 AM
Replies: 22
Views: 1,855
Posted By Suebee
Australia MS Neurologists issue DMT/ COVID19 Guidelines

March 19th Austraila MS org Published advice from a large group of independent neurologists on DMTs during the pandemic. Like all other guidance on this topic, it is rapidly evolving. It appears...
Forum: General 03-19-2020, 12:52 AM
Replies: 22
Views: 1,855
Posted By Suebee
ABN issues updated guidelines on MS DMDs

Tonight, hot off the presses, The Assoc. Of British Neurologists (ABN) issued updated guidelines from last week on MS DMTs during this pandemic.

Bart’s Blog posted it tont and reminds us that these...
Forum: Virtual 03-17-2020, 03:38 PM
Replies: 4
Views: 252
Posted By Suebee
Cool, thanks for posting this Dave. No excuse...

Cool, thanks for posting this Dave. No excuse now, thanks again ;)
Forum: General 03-17-2020, 11:54 AM
Replies: 22
Views: 1,855
Posted By Suebee
American Dental Assoc recommends no elective procedures

This morning My dental hygienist called me, and my 3 month cleaning (I started as a stay well measure on Ocrecous) is indefinitely postponed because of Recommendations issued by American Dental Assoc...
Forum: General 03-16-2020, 10:47 PM
Replies: 22
Views: 1,855
Posted By Suebee
UK Public Health Dept issues MS guidelines

March 16th, the UK Public Health Dept. Issued strong urging to MSers and other at risk groups to follow stringent social distancing rules, as follows:
"What is social distancing?
Social distancing...
Forum: Dave's SCT Journey 03-16-2020, 10:36 PM
Replies: 3
Views: 596
Posted By Suebee
Glad your practicing social distancing Dave. I'm...

Glad your practicing social distancing Dave. I'm hunkered down too, but not able to completely block out. My hubby still goes to work for now and is near others and my teenagers want to see a...
Forum: General 03-15-2020, 04:24 PM
Replies: 22
Views: 1,855
Posted By Suebee
Ms self-care short video

Here is a short self-care video for people with MS during the pandemic my MS advocate Vicki Hadge. I found it nice to be reminded about daily things I can do for self care. It is honest and not...
Forum: General 03-13-2020, 05:45 PM
Replies: 22
Views: 1,855
Posted By Suebee
Video from U.K. Bartís dr expert on MS

I found This video reassuring so Iím posting it. If you want to hear more up to date info from a top neurologist on MS/covid-19, I recommend. It is 10 min long, explains what we know about MS and...
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