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Forum: Dave's SCT Journey 03-06-2018, 07:41 PM
Replies: 7
Views: 306
Posted By MSLazarus
Wouldn’t it be wonderful?

Rituxan has been good for me and I hope Ocrevus will be good for you. Having hope is a precious state of being.
Forum: General 03-04-2018, 01:41 PM
Replies: 1
Views: 1,144
Posted By MSLazarus
I had Botox last week

My Botox injections last week seems to have worked miracles. I am not sure about side effects. Will get back to anyone interested.
Forum: Gear 03-04-2018, 01:36 PM
Replies: 14
Views: 4,820
Posted By MSLazarus
I got my embr wave yesterday..

Anyone else have one? I am using the warming cycle because here, in the Northeast, it is a cold day. I will keep you posted.
Forum: General 02-16-2018, 07:07 AM
Replies: 4
Views: 767
Posted By MSLazarus
I did Botox last week

I had my first Botox session. It was 200 mg. .?.. For me it was incredibly painful. The setting was the urologists’s facility. I wanted to be able to go there by myself and drive home. They numb the...
Forum: Dave's SCT Journey 01-17-2018, 07:33 PM
Replies: 14
Views: 1,189
Posted By MSLazarus
Amount and frequency of rituxan infusions

This is a response I got from someone on Braintalk. I asked for specifics about how her neuro was setting up the dosing of rituxan because I had raised just this question with my own neuro. I am...
Forum: Dave's SCT Journey 01-16-2018, 10:16 PM
Replies: 14
Views: 1,189
Posted By MSLazarus
Good luck Dave

Waiting with Hope is better than waiting with Fear.
That Fear is a nasty little person. Likes to sneak up on you to startle and then runs off to hide. His cousin is Cowardice and she’s another...
Forum: General 12-10-2017, 06:11 PM
Replies: 4
Views: 321
Posted By MSLazarus
That's right

I read a lot of Sachs......I remember him talking about such things.
I have always had a lot of what I call visual oddities with my course of MS. Here on my farm it always could be an animal flying...
Forum: General 12-04-2017, 09:37 PM
Replies: 4
Views: 321
Posted By MSLazarus
Visual hallucinations anyone? Also called release hallucinations

Author:Victoria S Pelak, MDSection Editor:Paul W Brazis, MDDeputy Editor:Janet L Wilterdink, MD
INTRODUCTION

The Charles Bonnet syndrome refers to symptoms of visual hallucinations that occur in...
Forum: Dave's SCT Journey 11-08-2017, 10:35 PM
Replies: 14
Views: 1,189
Posted By MSLazarus
Hey, I'm 70 and still expect great improvement!

Actually I am experiencing more than keeping things stable. Things have gotten better. That is, the big things that interfered with my farming life. Working 10 hours a day with no periods of great...
Forum: Dave's SCT Journey 11-08-2017, 08:02 PM
Replies: 14
Views: 1,189
Posted By MSLazarus
Thanks for your detailed answer.

I understand the differences as you explained. I wonder at the significance but, my neurologist recommends that I take Ocrevus if the rituxan stops working. He said there were small differences...
Forum: Dave's SCT Journey 11-08-2017, 11:47 AM
Replies: 14
Views: 1,189
Posted By MSLazarus
Rituxan vs Ocrevus

Hi Dave,
I have been on rituxan for about 5 years. When Ocrevus came on the market I read and read to determine the difference. (I know, animal vs. human origin). I could not understand a...
Forum: Gear 11-06-2017, 07:58 PM
Replies: 8
Views: 708
Posted By MSLazarus
I have had the walkaide for years.

I found it helpful. Since I am a farmer and often crawling around on my knees I do not use it as much as I expected.

I chose the walkaide instead of the bioness because it is/was one piece. When I...
Forum: General 09-03-2017, 08:41 PM
Replies: 10
Views: 891
Posted By MSLazarus
This is not good news but,

Hello
Thanks for this information. I have had yearly MRIs with gad. For way too many years. I am very glad this information is here to read. Click..click..click went my mind as I am having some...
Forum: General 09-03-2017, 08:27 PM
Replies: 36
Views: 6,241
Posted By MSLazarus
Good news...

I have been on rituxan for about 5 years...
My neurologist and I used to stretch the time between infusions to about 8 months. Maybe a couple of years ago I pushed to go on the general protocol used...
Forum: General 04-25-2017, 07:08 AM
Replies: 16
Views: 1,813
Posted By MSLazarus
Thanks!

We finished planting potatoes yesterday. My marathon was cutting them and my husband made the rows with one antique tractor, dropped potato pieces one by one from a handheld bucket and used a...
Forum: General 04-24-2017, 01:12 PM
Replies: 16
Views: 1,813
Posted By MSLazarus
I forgot to mention that the goats are great.

I have been in favor of having goats to eat the brush. They eat everything. Would be great for the damn poison ivy which is our best crop.

Now we are old and just managing so we passed the window in...
Forum: General 04-23-2017, 04:48 PM
Replies: 16
Views: 1,813
Posted By MSLazarus
Too many acres planted to hand pull weeds everywhere....

We do all the weeding by hand...I crawl and pull....
But we have a couple of acres of fingerlings and that's where the problem is.

Our 1/2 acre of peas are poking up through the ground. Soon we will...
Forum: General 04-20-2017, 07:30 AM
Replies: 16
Views: 1,813
Posted By MSLazarus
Dodder...

We have the weed, dodder. We have the yellow one that is airborne. (No roots to pull it out.)

Dodder can sense a nearby plant and travels in the air, wraps itself around a plant, and strangles the...
Forum: General 04-12-2017, 07:00 AM
Replies: 16
Views: 1,813
Posted By MSLazarus
The farm keeps us alive!

Hello,
We too are retired...engineer and teacher. Since we retired the farm has grown...and grown! I have been doing rituxan (ocrelizumab) for 4 years. When I get the infusions I can work well...
Forum: General 04-02-2017, 07:47 PM
Replies: 36
Views: 6,241
Posted By MSLazarus
Go to wheelchair kamakazee? site...

He has a very good analysis of the difference between rituximab and ocrelizumab.

If you can not find it I will find the link for you.
Forum: General 03-31-2017, 07:23 AM
Replies: 36
Views: 6,241
Posted By MSLazarus
Rituximab vs. ocrelizumab

Rituximab is Ocrelizumab
This is an article I copied. I am not the person writing it but it echoes what my doc said to me 2 years ago. My insurances pay for rituxan infusions but the cost at the...
Forum: General 03-24-2017, 06:58 AM
Replies: 36
Views: 6,241
Posted By MSLazarus
Hmmmm.....

My neuro would say "hmmmm" so that is what I said.. I know it is tempting to see cause and effect all around us. But, in the many years I have been dealing with MS I have learned....

Anyway, the...
Forum: Gear 03-18-2017, 10:31 AM
Replies: 9
Views: 1,432
Posted By MSLazarus
Great

I am a farmer....Saturday's I am at the farmers' market for hours and have had trouble with heat after many hours there. Previous vests I have tried proved useless.
Forum: Gear 02-27-2017, 07:40 PM
Replies: 9
Views: 1,432
Posted By MSLazarus
This is interesting...

I have tried many cooling vests and all of them are in a heap on the floor of my closet.
So I hope your testing comes up with a winner.
Forum: General 02-24-2017, 08:29 AM
Replies: 16
Views: 1,813
Posted By MSLazarus
Link to Lamar Freed (Dr. Who has MS) article on fatigue: great article

http://tf.n.tripod.com/ms/id53.htm

I like this article. I often send it to relatives to help them understand.
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