ActiveMSers Forums  

Go Back   ActiveMSers Forums > Search Forums

Showing results 1 to 25 of 500
Search took 0.02 seconds.
Search: Posts Made By: ActiveMSers
Forum: Dave's SCT Journey 03-27-2020, 01:10 PM
Replies: 4
Views: 244
Posted By ActiveMSers
Treatment with Ocrevus, due in April, is hitting...

Treatment with Ocrevus, due in April, is hitting the backburner during the pandemic. Hopeful I can start back up in the summer. A few months of a delay is not too concerning....
Forum: Virtual 03-27-2020, 01:08 PM
Replies: 0
Views: 12
Posted By ActiveMSers
WEBINAR: MS, COVID-19 and Uncertainty: Ideas, Support, Resources for Mental Health

MS, COVID-19, and Uncertainty: Ideas, Support, and Resources for Managing Mental Health

Tue, Mar 31, 2020 10:00 AM MDT

Having MS is difficult in and of itself, let alone while we all navigate the...
Forum: General 03-26-2020, 11:57 AM
Replies: 0
Views: 80
Posted By ActiveMSers
Zeposia approved to treat RRMS by FDA today

U.S. Food and Drug Administration Approves Bristol Myers Squibb’s ZEPOSIA® (ozanimod), a New Oral Treatment for Relapsing Forms of Multiple Sclerosis

In clinical trials, ZEPOSIA demonstrated...
Forum: MS Fitness 03-24-2020, 04:50 PM
Replies: 1
Views: 89
Posted By ActiveMSers
Exercise-induced neuroplasticity in secondary progressive MS

J Neurol Phys Ther. 2020 Apr;44(2):132-144. doi: 10.1097/NPT.0000000000000308

Exercise-Induced Brain Excitability Changes in Progressive Multiple Sclerosis: A Pilot Study.

Chaves AR, Devasahayam...
Forum: General 03-23-2020, 06:45 PM
Replies: 0
Views: 40
Posted By ActiveMSers
Virtual Tours

This may help pass a little time. -D

Virtual Tours

San Diego Zoo: https://kids.sandiegozoo.org/

Yellowstone National Park: https://www.nps.gov/yell/learn/photosmultimedia/virtualtours.htm

Mars:...
Forum: Virtual 03-23-2020, 06:44 PM
Replies: 4
Views: 78
Posted By ActiveMSers
Here are some more options sent to me from an...

Here are some more options sent to me from an adaptive group in New Mexico:

Home Exercise; Only do exercises according to your ability level.

Bodyweight exercises: Pushups, sit-ups, squats, jumping...
Forum: Gear 03-23-2020, 12:24 PM
Replies: 0
Views: 37
Posted By ActiveMSers
Favorite "grabber reacher"

A member of ActiveMSers swears by the Sammons Preston Reacher to help her grab things a bit out of reach. Thought I would pass that tip along. Thanks Martha! If anyone has another favorite grabber,...
Forum: General 03-20-2020, 04:57 PM
Replies: 2
Views: 131
Posted By ActiveMSers
COVID-19 NEWSLETTER: The Hunker Games

Welcome to the Hunker Games!

Dave and his wife Laura of ActiveMSers are hunkering down in isolation for the duration of the coronavirus pandemic--these are their stories (cue the L&O dong-dong) ......
Forum: Dave's SCT Journey 03-20-2020, 04:06 PM
Replies: 3
Views: 187
Posted By ActiveMSers
Also note that HSCT should definitely be off the...

Also note that HSCT should definitely be off the table for the foreseeable future for any interested MSer. The risk of COVID will likely be too high until well after the vaccine is released over a...
Forum: Gear 03-20-2020, 03:41 PM
Replies: 14
Views: 5,336
Posted By ActiveMSers
I am really excited about the e-assist...

I am really excited about the e-assist possibility. But even cooler: an attachment that will allow me to attach my wheelchair to the bike. That way I can bike to restaurants and brewpubs and...
Forum: MS Fitness 03-20-2020, 03:37 PM
Replies: 21
Views: 1,988
Posted By ActiveMSers
Checking In! Hope you'all are hanging in there....

Checking In! Hope you'all are hanging in there. I'm managing to exercise daily, getting out for regular rides and working out in my home gym. I'm making some changes, and now it appears I may need to...
Forum: Virtual 03-20-2020, 01:56 PM
Replies: 4
Views: 78
Posted By ActiveMSers
The New York Times has these recommendations as...

The New York Times has these recommendations as well...

https://mail.google.com/mail/u/0/?zx=n0b36r4b5edv#inbox/KtbxLxgdfjzdRdCtNMbGjDhkBwChpkkmBB
Forum: MS Fitness 03-16-2020, 09:52 PM
Replies: 2
Views: 353
Posted By ActiveMSers
The full, illuminating study is available here,...

The full, illuminating study is available here, free:

https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01654-y
Forum: General 03-16-2020, 01:50 PM
Replies: 0
Views: 113
Posted By ActiveMSers
Arrow Making the best of a sticky situation (essential coronavirus advice from Dave)

Alrighty, we MSers are in a bit of a sticky situation. I'm sick with this disease, and since you are here on our forum, likely you or someone you care about also is sick with a chronic illness. With...
Forum: Gear 03-16-2020, 01:46 PM
Replies: 14
Views: 5,336
Posted By ActiveMSers
A couple of questions for fellow trike riders....

A couple of questions for fellow trike riders. Has anyone added an electric assist to this bike? And are there any special transfer tricks for wheelchair users? I'm think of adding an assist so can...
Forum: Dave's SCT Journey 03-16-2020, 01:39 PM
Replies: 3
Views: 187
Posted By ActiveMSers
Hazards of past HSCT during coronavirus

Clearly you'd want to avoid this treatment during a pandemic, but post HSCT there is still cause for concern. Despite having HSCT in 2010, a decade later my lymphocyte count still is below normal....
Forum: Virtual 03-16-2020, 01:33 PM
Replies: 4
Views: 78
Posted By ActiveMSers
Virtual MS Exercise Programs

No excuses! During this coronavirus outbreak and recommended home isolation for people with chronic illnesses, you'll likely need to exercise at your house. YouTube has a number of free exercise...
Forum: MS Fitness 03-16-2020, 01:25 PM
Replies: 2
Views: 353
Posted By ActiveMSers
Arrow CONFIRMED: Physical exercise significantly reduces fatigue in patients with MS

BMC Neurol. 2020 Mar 13;20(1):93. doi: 10.1186/s12883-020-01654-y.

The impact of physical exercise on the fatigue symptoms in patients with multiple sclerosis: a systematic review and...
Forum: Dave's SCT Journey 03-11-2020, 12:41 PM
Replies: 4
Views: 244
Posted By ActiveMSers
Thanks Suebee, LMH. You do whatcha gotta do!

Thanks Suebee, LMH. You do whatcha gotta do!
Forum: Pacific Region 03-11-2020, 12:39 PM
Replies: 0
Views: 76
Posted By ActiveMSers
PALMER, AK: Chair Yoga for MS (ongoing)

Chair Yoga for MS
12:00 PM - 1:00 PM
Recurring Event
Monthly, First Friday

In Person

MTA Sports Center
1507 N Double B St
Palmer, AK 99645
Forum: General 03-11-2020, 12:36 PM
Replies: 0
Views: 213
Posted By ActiveMSers
High-dose vitamin D may be associated with MS worsening

This preliminary study (a poster session) found that in a mouse model, excessive vitamin D actually made the disease worse. “High-dose, long-term vitamin D supplementation lead to much worse disease...
Forum: General 03-10-2020, 06:44 PM
Replies: 0
Views: 150
Posted By ActiveMSers
Thumbs down It's official: high-dose biotin fails to help in progressive MS

MedDay Reports Top-Line Data from Phase III Trial “SPI2” for Treatment of Progressive Forms of Multiple Sclerosis

Paris, France, March 10, 2020 – MedDay Pharmaceuticals announced today that the...
Forum: General 03-09-2020, 05:55 PM
Replies: 0
Views: 297
Posted By ActiveMSers
Changing Your Gut Microbia to Fight MS: Does it Matter?

Evidence from this latest study suggests once the disease has been established, no. -D

"The data presented here show that, in the context of CNS autoimmunity, microbiota manipulation is beneficial...
Forum: MS Fitness 03-09-2020, 05:12 PM
Replies: 1
Views: 234
Posted By ActiveMSers
Changes in Balance and Mobility After Acute Aerobic Exercise in Adults with MS

Int J MS Care. 2020 Jan-Feb; 22(1): 1–6.
doi: 10.7224/1537-2073.2018-073
PMCID: PMC7041613
PMID: 32123522

Using Body-Worn Sensors to Detect Changes in Balance and Mobility After Acute Aerobic...
Forum: Dave's SCT Journey 03-09-2020, 05:00 PM
Replies: 0
Views: 146
Posted By ActiveMSers
Brazilian Nutritional Consensus in Hematopoietic Stem Cell Transplantation: Adults

Brazilian Nutritional Consensus
in Hematopoietic Stem Cell
Transplantation: Adults

Juliana Bernardo Barban, Belinda Pinto Simões, et al
DOI: 10.31744/einstein_journal/2020AE4530

ABSTRACT

The...
Showing results 1 to 25 of 500

 
Forum Jump

All times are GMT -4. The time now is 05:37 AM.


Powered by vBulletin® Version 3.7.0
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
ActiveMSers