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Search: Posts Made By: TJ1
Forum: General 05-02-2013, 09:17 PM
Replies: 39
Views: 15,362
Posted By TJ1
Oral DMDs

Hi there -- i was all hung up on the "Gilenya will lower my heartrate and i won't be able to exercise in the way i do now" thing. I was wrong (as a few people on this board said i would be.) Been on...
Forum: General 01-26-2013, 07:44 PM
Replies: 39
Views: 15,362
Posted By TJ1
Checking back in

Hi there - i haven't visited the site in quite a while. I was the person asking about DMDs and hemming and hawing as to whether I wanted to go on one. Long story short, I ended up going on Gilenya...
Forum: General 02-27-2012, 11:50 AM
Replies: 7
Views: 2,917
Posted By TJ1
Hi Niko -- I'll never know for sure, but I...

Hi Niko -- I'll never know for sure, but I believe I may have had my first attack when I was 21, although I wasn't diagnosed for more than 20 years. I would've freaked out back then, I'm glad I...
Forum: General 01-24-2012, 06:28 PM
Replies: 27
Views: 10,963
Posted By TJ1
p.s.

... to add to that, I didn't want to get on a DMD halfheartedly and (like the woman flushing her shots), as a result, not be 'all in.'

Anyway...
Forum: General 01-24-2012, 06:10 PM
Replies: 27
Views: 10,963
Posted By TJ1
Am in the care of an absolutely outstanding...

Am in the care of an absolutely outstanding doctor specializing in MS who, from day one, has made very plain what I should be doing (i.e., taking a DMD) and I don't deny the folly/risk in delaying,...
Forum: General 01-24-2012, 02:47 PM
Replies: 27
Views: 10,963
Posted By TJ1
Hi Steve -- My lassitude in embarking on a DMD is...

Hi Steve -- My lassitude in embarking on a DMD is made possible by the fact that I'm a couple of years post Dx and nothing has happened (i.e., no disability or flare-ups), albeit the MRIs do show new...
Forum: General 01-24-2012, 01:03 PM
Replies: 27
Views: 10,963
Posted By TJ1
I mistakenly put this post (below) in the other...

I mistakenly put this post (below) in the other thread (although it applies there, too.) Meant to put it in this one, so here it is:

Thanks for the responses on Gilenya everyone.

It sounds like a...
Forum: General 01-24-2012, 10:58 AM
Replies: 39
Views: 15,362
Posted By TJ1
Thanks for the responses on Gilenya everyone. It...

Thanks for the responses on Gilenya everyone.

It sounds like a number of Gilenya users have retained their ability to run/bike/whatever it is they do.

My big concern is starting on Gilenya and then...
Forum: Dave's SCT Journey 01-11-2012, 09:53 PM
Replies: 10
Views: 7,346
Posted By TJ1
Absolutely -- rock on Chad!! We're pulling for...

Absolutely -- rock on Chad!! We're pulling for you.
Forum: General 01-05-2012, 01:06 PM
Replies: 27
Views: 10,963
Posted By TJ1
Gilenya/Heartrate

Thanks... and a question:

When you say you can't get your heartrate as high as it should be, do you mean that you are not able to exert yourself as much as you could in the past? i.e., For example,...
Forum: General 12-23-2011, 04:53 PM
Replies: 39
Views: 15,362
Posted By TJ1
Are you on a DMD? What's It Like?

I really want to thank everyone who's commented so far.

The insights you've shared are really helpful as I try to figure my path out -- and I feel certain other visitors to the site are getting...
Forum: General 12-19-2011, 04:17 PM
Replies: 39
Views: 15,362
Posted By TJ1
"If you take GILENYA -- would be grateful if...

"If you take GILENYA -- would be grateful if you'd share your views on side effects..."

... by "you," I don't mean Chad, as that's not the DMD he's on, I don't think.

So... the question is directed...
Forum: General 12-19-2011, 09:39 AM
Replies: 39
Views: 15,362
Posted By TJ1
Do you take GILENYA?

No worries Chad! Thanks for asking.

OK, over to you GILENYA users... What's it like? What's the story on side effects (in your experience?)

I'm interested in trying this drug -- and, so, am...
Forum: General 12-18-2011, 11:00 PM
Replies: 39
Views: 15,362
Posted By TJ1
Thanks -- just to be clear, my neurologist...

Thanks -- just to be clear, my neurologist strongly recommends I get on a DMD. That option has been offered and re-offered. Absent any loss of function (to date, anyway), I have chosen not to go...
Forum: General 12-18-2011, 06:08 PM
Replies: 39
Views: 15,362
Posted By TJ1
hi Chad -- I don't deny I probably *should* be...

hi Chad --
I don't deny I probably *should* be on a DMD, I just haven't gone there...
Forum: General 12-17-2011, 01:51 PM
Replies: 39
Views: 15,362
Posted By TJ1
GILENYA side effects?

thank you Celia, AMF, PawPaw/Pell and Dave. I appreciate your insights.

PawPaw/Pell -- would you be kind enough to share what some of the side effects you've experienced from Gilenya are?

More...
Forum: General 12-15-2011, 11:02 AM
Replies: 27
Views: 10,963
Posted By TJ1
Q on Gilenya use

RIP to the deceased.

Does anyone here take Gilenya?

If I were to go on any DMD, that's the one I'm most "open" to -- but am wary of the effects that some say it has on your ability to exercise,...
Forum: General 12-14-2011, 05:10 PM
Replies: 39
Views: 15,362
Posted By TJ1
p.s. -- if *don't* take an MS drug, pls chime in

OK... it's me again. I just read Dave's cogent, compelling blog posting on why he takes an MS DMD drug -- and more to the point -- why he believes anyone who doesn't is crazy...

His points are hard...
Forum: General 12-14-2011, 04:42 PM
Replies: 39
Views: 15,362
Posted By TJ1
Q: To medicate (or not?) - new here

Hi folks -- I'm new to the board -- good to meet you. Mostly I am hoping to get a feel for your take on medications - pls see below for the question...

I've had a couple of MRI since being Dx'd 18...
Forum: General 12-14-2011, 04:39 PM
Replies: 273
Views: 142,722
Posted By TJ1
Hi -- am new

Hi folks -- I'm new to the board -- good to meet you.

Here's my deal: am male, married w/kids, mid 40s, diagnosed w/ MS in Spring 2010 (i.e., about 18 mos. ago.) Left eye went blurry, which...
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