ActiveMSers Forums  

Go Back   ActiveMSers Forums > Search Forums

Showing results 1 to 25 of 81
Search took 0.00 seconds.
Search: Posts Made By: MSLazarus
Forum: General 06-25-2020, 05:46 AM
Replies: 96
Views: 31,662
Posted By MSLazarus
I had the first of 2 infusions last week and will have the second next week.

I am so much stronger that really it is like day and night. I was a lot MSy and really concerned I had run out of luck. But I have been farming strongly and am full of energy.

Have to run now but I...
Forum: General 04-21-2020, 01:31 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Just what I was thinking....although

...I was thinking of cancelling mine for the first and third week of June. My legs are weak in a new way but everything else is stable so I thought of pushing it to August. Maybe a home infusion?...
Forum: General 03-27-2020, 02:07 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Ocrevus is essentially the same as rituxan...

You can read lots of user responses if you read about rituxan. Both drugs made by same company.
Good luck.
Forum: MS Fitness 03-20-2020, 05:46 PM
Replies: 2
Views: 1,003
Posted By MSLazarus
Great...I knew there was a reason I walked a mile today

I really appreciate this. It is always tough to explain to my family that working on my farm is good for me! I will print this out and make multiple copies. Then I will hand it out to anyone entering...
Forum: General 02-18-2020, 09:42 AM
Replies: 96
Views: 31,662
Posted By MSLazarus
Ditto....much more coherent explanation than mine

I too have no indication of active lesions......not in years. ( Although I have read about newer MRI machinery that can expose more MS activity).

My neurologist understood years ago that it was not...
Forum: General 02-15-2020, 03:36 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
That is a big question.....

Many years ago I was about to switch meds and wanted a second opinion. I don’t know why. My neurologist was the best you could imagine and he had always sent me for second opinions when it seemed...
Forum: General 02-06-2020, 08:22 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Here’s wishing us all well

This is the first time in 30 years that we are stumped and I am having trouble thinking, reading, moving and maintaining the farm.

And no one knows what is wrong....causing the heart palpitations,...
Forum: General 02-05-2020, 08:47 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Thanks for the update

Wishing you all the best and really appreciate the details you provided. I have been ill for a few months and it could be rituxan side effects. Or not. Ruling things out one by one. So I might switch...
Forum: Gear 12-27-2019, 07:12 PM
Replies: 1
Views: 957
Posted By MSLazarus
Very interesting..

Thanks for the post
Forum: General 12-10-2019, 09:47 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
You are correct

The deal is that rituxan was running out of its patent time so the company tweaked it and came out with Ocrevus......essentially the same item with a much higher price tag.

My insurance company has...
Forum: General 12-08-2019, 09:48 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
2 long infusions given two weeks apart is the protocol for rituxan infusions also.

Rituxan and ocrevus are almost identical. Rituxan costs less.
Forum: General 11-23-2019, 01:59 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Thanks for the update

Wishing you all the best.....sounds like you have good information.
Forum: MS Fitness 11-19-2019, 06:47 PM
Replies: 81
Views: 33,293
Posted By MSLazarus
Yup...motivating ourselves can sometimes take a holiday

My farming season stopped as I got the first cold I have had in 30 years and I was coughing so much I missed the last farmers’ market. So, ok. The timed intense work ended but there is so much to do...
Forum: General 10-29-2019, 10:04 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
It is called the MS Hug,

Even when you know you get it you are worrying it might be a heart attack.

I am lucky because they hang around for a few weeks, take a break and then return in another period of several weeks. I use...
Forum: General 10-27-2019, 07:17 AM
Replies: 96
Views: 31,662
Posted By MSLazarus
knowjust to be clearer...

I have done my major meds for many years before they wear off. Betaseron when it came on the market...IVIg for another 8 years. (170g every other week)....novantrone for the allowed limit...have been...
Forum: General 10-25-2019, 07:21 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Great...I hope you go

I saw Vollmer sometime around 2001. I saw him several times as he and my own neurologist were trying to figure out my next step. He is great.

Several years later I saw him at a conference and asked...
Forum: General 10-24-2019, 05:48 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Thanks for your story SueBee...

I am happy with rituxan. I am 72 now but am getting new symptoms which is irritating. I am a farmer and don't like it when the schedule is interrupted! (That means somebody has to do my work).

Right...
Forum: General 10-23-2019, 05:01 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
All very interesting

Timothy Volmer used Ocrevus/Rituxan just like that. He said they were the same. The deal was that the company was losing its patent on rituxan so it tweaked something, called it Ocrevus, and kept...
Forum: Gear 10-08-2019, 01:30 PM
Replies: 29
Views: 18,334
Posted By MSLazarus
I have a career in finding good homes for all the equipment I bought but never used..

I am pretty strong and do a lot of farm work so I am lucky. It is just that I have to crawl which is ok for the crops I am harvesting. I either have my scooter by my side or a strong barrel to use to...
Forum: MS Fitness 10-06-2019, 10:40 AM
Replies: 81
Views: 33,293
Posted By MSLazarus
Thank you for bumping this up. I have been reading through a lot!

I use a three wheeled walker. Have used it for 25 years. I use it when I am away from my farm.
Here is the problem..
These walkers had a simple system to raise and lower the height of the handlebars....
Forum: General 09-15-2019, 08:16 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
So, it is about 2 months later than my previous post on this thread.

I functioned extremely well. There has been a lot of stress this summer as my husband had a tough summer and I was responsible for the farm. A lot of the crops did not make it but a lot did! I dug...
Forum: General 07-24-2019, 05:35 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Glad things are going well. I had an infusion at...

Glad things are going well. I had an infusion at the beginning of June and did not expect much. My previous infusion last December seemed to not have helped at all but, now I think the December...
Forum: General 12-07-2018, 09:00 AM
Replies: 96
Views: 31,662
Posted By MSLazarus
Thanks AMFADVENTURES

Ocrevus is the med that my neuro has waiting in the wings..if rituxan stops working he believes we should give it a try. Since they are virtually identical I am not sure why but I am an adventurous...
Forum: General 12-06-2018, 03:41 PM
Replies: 96
Views: 31,662
Posted By MSLazarus
Good report

I tried pushing infusion to 8 months and suffered a flair as you did. That was a couple of years ago. Now I have been asking if infusions could come every 3 months instead of every 6. I was not...
Forum: General 11-14-2018, 06:14 PM
Replies: 11
Views: 3,702
Posted By MSLazarus
Yup...yup...makes sense.

You have created something incredibly special. Thank you for that. Very much.
Showing results 1 to 25 of 81

 
Forum Jump

All times are GMT -4. The time now is 02:01 AM.


Powered by vBulletin® Version 3.7.0
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
ActiveMSers