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Forum: Dave's SCT Journey 07-02-2020, 05:31 PM
Replies: 4
Views: 333
Posted By ActiveMSers
Looks like I’ll be participating in The Hunker...

Looks like I’ll be participating in The Hunker Games for likely, oh, THE NEXT YEAR. Although the science isn’t settled and there may be future recommendations, it appears my DMT of Ocrevus (as well...
Forum: General 07-02-2020, 02:05 PM
Replies: 2
Views: 30
Posted By ActiveMSers
Here is the entire issue in digital format so you...

Here is the entire issue in digital format so you can enjoy even more pics of me and my travels! Actually, the graphics are pretty...
Forum: General 07-02-2020, 12:41 PM
Replies: 1
Views: 53
Posted By ActiveMSers
ActiveMSers website REDESIGN - feedback requested

Change can be challenging. Like when grocery stores change where they keep the fiber supplements--they were on isle four LAST WEEK. So frustrating, especially when you just want a little help...
Forum: Virtual 07-02-2020, 12:26 PM
Replies: 1
Views: 34
Posted By ActiveMSers
There is still time to register for this program....

There is still time to register for this program. The folks at CAN DO MS know what they are doing....
Forum: Dave's SCT Journey 07-02-2020, 12:19 PM
Replies: 1
Views: 55
Posted By ActiveMSers
It is also available as a downloadable pdf,...

It is also available as a downloadable pdf, convenient to e-mail your neurologist. :)

https://journals.sagepub.com/doi/pdf/10.1177/1756286420929467
Forum: MS Fitness 07-02-2020, 12:03 PM
Replies: 0
Views: 22
Posted By ActiveMSers
MSers' motivation to engage in and promote exercise driven by availability, education

Motivation to engage in and promote exercise is driven by availability and education; Perspectives of the multiple sclerosis community

Learmonth, Y.C., Chan, Z., Scholes-Robertson, E., Correia, H.,...
Forum: Gear 07-02-2020, 11:58 AM
Replies: 2
Views: 81
Posted By ActiveMSers
INPUT NEEDED: MIT students want to build a better cooling vest

The other day I had a Zoom call with a team of student researchers at MIT who are brainstorming ideas for a better cooling vest for MSers. They are currently deep in the design phase (no prototypes...
Forum: General 07-02-2020, 11:46 AM
Replies: 0
Views: 67
Posted By ActiveMSers
COVID MS STUDY: DMT presence "associated with a lower risk of hospitalization”

A just-released study in JAMA Neurology concluded “there was no association found between DMTs exposure and COVID-19 severity” and “the presence of DMT was associated with a lower risk of...
Forum: General 07-02-2020, 11:43 AM
Replies: 2
Views: 30
Posted By ActiveMSers
TRIGGER WARNING: Momentum magazine features Dave

If you check out the article about exploring national parks in the Summer 2020 issue of Momentum magazine from the National MS Society, there is an alarming dose of Dave inspiration. Especially the...
Forum: General 07-01-2020, 04:27 PM
Replies: 8
Views: 1,292
Posted By ActiveMSers
Issue #8: a handshake that changed two lives...

Issue #8: a handshake that changed two lives

http://campaign.r20.constantcontact.com/render?m=1106679984560&ca=a02cf77b-3152-42c9-bd4b-84c4ced67c38
Forum: MS Fitness 06-30-2020, 05:51 PM
Replies: 44
Views: 6,269
Posted By ActiveMSers
Just got word that my future bike is still in the...

Just got word that my future bike is still in the future. I was hopeful it was going to arrive soon, but Covid has disrupted manufacturing. July is a big maybe.

That said, I've been cranking every...
Forum: General 06-30-2020, 05:39 PM
Replies: 1
Views: 64
Posted By ActiveMSers
Ah, that problem. Not fun. This podcast just came...

Ah, that problem. Not fun. This podcast just came out from Barry Singer MD, Director of The MS Center for Innovations in Care. He interviewed a couple experts in this department. Give it a listen! -D
Forum: Gear 06-29-2020, 07:20 PM
Replies: 0
Views: 50
Posted By ActiveMSers
The benefits of the simple gait belt

So I've used one on and off, particularly with physical therapy. But recently with my transfers getting more challenging after a hot bike ride, this around my waist makes it waaay easier to get off...
Forum: Dave's SCT Journey 06-29-2020, 07:10 PM
Replies: 1
Views: 55
Posted By ActiveMSers
Intensive immunosuppression followed by AHSCT for the treatment of MS

Therapeutic Advances in Neurological Disorders

Intensive immunosuppression followed by autologous hematopoietic stem cell transplantation for the treatment of multiple sclerosis

Jan Lycke, Stig...
Forum: Virtual 06-29-2020, 07:02 PM
Replies: 1
Views: 34
Posted By ActiveMSers
Virtual CAN DO MS Jumpstart Program (Jul 11)

CAN DO MS is thrilled to be able to offer this program in a safe and healthy environment, continuing to provide you with educational presentations, breakout sessions, and live Q&A with healthcare...
Forum: MS Fitness 06-25-2020, 11:27 AM
Replies: 0
Views: 104
Posted By ActiveMSers
Researchers: Swimming caused the same level of improvement as interferon-β treatment*

*In rats. Why do rats get all the luck?! But if this translates into real, actual humans, that would be pretty cool. I'd still do both: exercise and treat. -D

Swimming Exercise Ameliorates Symptoms...
Forum: World Region 06-25-2020, 11:16 AM
Replies: 0
Views: 44
Posted By ActiveMSers
Lifestyle, exercise and activity package for people living with progressive MS

This trial is not yet recruiting, but when it is finished, it should provide some interesting data for this new proposed program: LEAP-MS. If you live in the UK anywhere close to Cardiff University,...
Forum: General 06-24-2020, 07:37 PM
Replies: 1
Views: 97
Posted By ActiveMSers
Check that. Might take 24 hours. But the wait...

Check that. Might take 24 hours. But the wait will be worth it!
Forum: General 06-24-2020, 03:50 PM
Replies: 1
Views: 97
Posted By ActiveMSers
Main website temporarily down for a full reboot

Just an FYI. Should be good to go within the day!
Forum: Gear 06-24-2020, 10:52 AM
Replies: 3
Views: 1,365
Posted By ActiveMSers
So after testing this vest more, there are some...

So after testing this vest more, there are some significant plusses but also some significant drawbacks that give me pause.

Fit and Comfort: it's okay, but even the size of medium feels too big. The...
Forum: Dave's SCT Journey 06-24-2020, 10:37 AM
Replies: 0
Views: 91
Posted By ActiveMSers
HSCT: Standard of Care for Relapsing–Remitting Multiple Sclerosis Patients

Published: 16 June 2020

Autologous Hematopoietic Stem Cell Transplantation (AHSCT): Standard of Care for Relapsing–Remitting Multiple Sclerosis Patients

Antonio Bertolotto, Serena Martire, Luca...
Forum: Virtual 06-24-2020, 10:35 AM
Replies: 0
Views: 31
Posted By ActiveMSers
DMT use in the Covid-19 pandemic (Jun 24)

7:00 PM (ET) - WEDNESDAY, June 24th

Webinar Link: https://event.webcasts.com/starthere.jsp?ei=1334483&tp_key=73cdfe53ec
Participant Dial-in: 877-407-9221 or 201-689-8597 (NORTH AMERICA ONLY)

One...
Forum: MS Fitness 06-20-2020, 12:23 PM
Replies: 44
Views: 6,269
Posted By ActiveMSers
Larry, that ride sounds great! I love that area...

Larry, that ride sounds great! I love that area and have explored it a lot (not on a bike, though).

Getting out for rides every other day or so. I've been on major deadline with several projects...
Forum: Dave's SCT Journey 06-20-2020, 12:12 PM
Replies: 4
Views: 333
Posted By ActiveMSers
Ha, they just posted on that topic again today. I...

Ha, they just posted on that topic again today. I guess their opinions are making...
Forum: Virtual 06-20-2020, 12:08 PM
Replies: 0
Views: 56
Posted By ActiveMSers
Fighting MS Fatigue (Jun 23)

MS Focus has another teleconference coming up.

Topic: Fighting MS Fatigue

Description: A presentation by Annette Okai, MD.

Time: Jun 23, 2020 08:00 PM in Eastern Time (US and Canada)
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