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Search: Posts Made By: Suebee
Forum: General 02-13-2020, 11:11 PM
Replies: 3
Views: 129
Posted By Suebee
Brain shrink is real

Youíre definitely right that inactive passivity can lead to brain atrophy similar to that seen in aging. But brain atrophy measures have been recognized for awhile now to directly to correlate to...
Forum: General 02-12-2020, 10:10 PM
Replies: 80
Views: 23,264
Posted By Suebee
Animal live vaccine and possible risk to immune...

Animal live vaccine and possible risk to immune compromised human

Https://academic.oup.com/cid/article/37/3/407/437242#6522761
Forum: General 02-12-2020, 10:04 PM
Replies: 80
Views: 23,264
Posted By Suebee
MSLazeros, I've been thinking about your...

MSLazeros, I've been thinking about your situation since your last post. Sometimes I've noticed that simple solutions can get overlooked by medical specialists. UTI Culture can find uti s missed by...
Forum: General 02-06-2020, 11:06 AM
Replies: 80
Views: 23,264
Posted By Suebee
Link to tumeric article

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4190737/
Forum: General 02-06-2020, 11:03 AM
Replies: 80
Views: 23,264
Posted By Suebee
Thanks MSLazeros. I'm glad all tests showed...

Thanks MSLazeros. I'm glad all tests showed clear. Both rixtaub and ocrevous can cause respiratory infections. You might want to try tumeric either a capsule or tea. I drink tumeric tea sometimes....
Forum: General 02-04-2020, 04:07 PM
Replies: 3
Views: 259
Posted By Suebee
Link to article on benefits of Himalayan pink...

Link to article on benefits of Himalayan pink salt

https://www.healthline.com/nutrition/sole-water
Forum: General 02-04-2020, 03:59 PM
Replies: 3
Views: 259
Posted By Suebee
Once again, proper nutrition is an enigma....

Once again, proper nutrition is an enigma. Margerine anyone? I noticed There is a Himalayan pink salt store in my area. I was surprised it would have enough patrons to be it's only product. I do...
Forum: General 02-04-2020, 03:49 PM
Replies: 0
Views: 85
Posted By Suebee
Free 21 day Better Health Meditation !

Hi if you'd like to try 20 min meditation in the morning with a specific focus on better health, you're in luck! Oprah and Deepak chopera have a free meditaion program from 2/3 for 21 days. 🙂 Enjoy...
Forum: General 02-04-2020, 03:42 PM
Replies: 3
Views: 129
Posted By Suebee
Dave thanks for posting this. I'd be interested...

Dave thanks for posting this. I'd be interested to know what proportion, if any of these patients, qualified for SSdi or LTD under employer plans, and if age or gender had any correlation to patients...
Forum: General 02-04-2020, 03:25 PM
Replies: 80
Views: 23,264
Posted By Suebee
Red face Infusion update

Hi all, I wanted to give infusion update. I had ocrevous first dose, split in half and given 2 wks apart.
In general: I feel pretty good, in fact after 1st infusion I felt fantastic. I had more...
Forum: General 01-05-2020, 05:58 PM
Replies: 4
Views: 416
Posted By Suebee
Sounds like an awesome trip! From my personal...

Sounds like an awesome trip! From my personal experience, I like to plan ahead to prevent excessive worry. Disney changes its disability rules often, but when I was there a few years ago, upon...
Forum: General 01-05-2020, 05:36 PM
Replies: 3
Views: 348
Posted By Suebee
Amen! You live fully Dave, thatís a good thing....

Amen! You live fully Dave, thatís a good thing. No worries here. Happy new year all!
Forum: MS Fitness 01-05-2020, 05:32 PM
Replies: 11
Views: 731
Posted By Suebee
MSers in Training 2020

Happy New Years all! I get inspiration and motivation to keep going from all your updates! Larry, TM, Veronica, and the rest I love love love your details of living fully with MS. It really is a...
Forum: Gear 12-11-2019, 10:55 PM
Replies: 4
Views: 1,313
Posted By Suebee
The Advenchair does look really cool being built...

The Advenchair does look really cool being built out of mountain bike parts, but a $10k price tag? And while my friends love me , Iím not sure I could get them to pull me up a mountain. It would be...
Forum: General 12-10-2019, 04:32 PM
Replies: 80
Views: 23,264
Posted By Suebee
Yes, rituximab and orcevous are nearly identical....

Yes, rituximab and orcevous are nearly identical. My understanding is that I canít get rituximab prescribed or covered by my health insurer here because it is still classified as ďexperimentalĒ for...
Forum: General 12-07-2019, 05:05 PM
Replies: 80
Views: 23,264
Posted By Suebee
Path to orcevous update

I was on phone total combined of several hours with PPO and Pharmaceutical manager for PPO about whether my private health insurance covered this drug AND the infusion service. The reason PPO...
Forum: MS Fitness 12-04-2019, 01:13 AM
Replies: 7
Views: 891
Posted By Suebee
Clm3e. Great find! The guide gives freedom to...

Clm3e. Great find! The guide gives freedom to choose activity but outlines what is important and frequency. I plan to use these guidelines to help me get max out of my work outs. Thanks for sharing!
Forum: MS Fitness 11-30-2019, 06:08 PM
Replies: 7
Views: 891
Posted By Suebee
Drillerdou, working full time like you do with...

Drillerdou, working full time like you do with MS, that is awesome. I have been working full time on / off. I found the biggest challenge was to figure out/know/ respect my physical limits in the...
Forum: MS Fitness 11-29-2019, 11:32 PM
Replies: 7
Views: 891
Posted By Suebee
These guidelines are desperately needed. Water...

These guidelines are desperately needed. Water exercises need to be in cool temperature pools. HITT
Works well, especially for msers with low endurance. TRX is great for strengthinging and those...
Forum: MS Fitness 11-29-2019, 11:23 PM
Replies: 4
Views: 1,488
Posted By Suebee
Tammy. Your story is so encouraging. I am told...

Tammy. Your story is so encouraging. I am told over and over again by drs that my weakness is due to de-conditioning. This is frustrating because it suggests I can can easily recondition my body. ...
Forum: MS Fitness 11-21-2019, 01:21 PM
Replies: 52
Views: 24,428
Posted By Suebee
Larry and all update on my quest to do FES. Why...

Larry and all update on my quest to do FES. Why I drag my heels (ms pun??) I have enough info on FES to know one needs to use it frequently and ongoing to get benefit as MSer. My problem is I can...
Forum: General 11-21-2019, 12:56 PM
Replies: 80
Views: 23,264
Posted By Suebee
Update on my journey to orcevous__ As AM...

Update on my journey to orcevous__
As AM suggested, really important to update vaccines prior to beginning treatment. I took Am's suggestion and I had Tdap vaccine and pneumonia vaccine after...
Forum: Gear 11-21-2019, 12:37 PM
Replies: 1
Views: 556
Posted By Suebee
Great article! I think very often the focus of...

Great article! I think very often the focus of achieving activities of daily living "adls" is on getting goal accomplished rather than nuances such as minimizing dependency and fostering...
Forum: General 11-18-2019, 05:20 PM
Replies: 2
Views: 696
Posted By Suebee
This is not a surprising finding. MS is so...

This is not a surprising finding. MS is so variable in severity, frequency of flares, and disability level progression or even regression of disability during remissions. Broad predictors might be...
Forum: MS Fitness 11-04-2019, 11:38 AM
Replies: 52
Views: 24,428
Posted By Suebee
My hope is up/ Iím doing FES!

Hi again, I know Iím a bit chatty here, I hope you all donít mind too much. I wanted to add my recently concocted plan to FINALLY try FES with professional guidance, hopefully get lasting benefit...
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