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Search: Posts Made By: MSLazarus
Forum: General 12-07-2018, 09:00 AM
Replies: 43
Views: 13,560
Posted By MSLazarus
Thanks AMFADVENTURES

Ocrevus is the med that my neuro has waiting in the wings..if rituxan stops working he believes we should give it a try. Since they are virtually identical I am not sure why but I am an adventurous...
Forum: General 12-06-2018, 03:41 PM
Replies: 43
Views: 13,560
Posted By MSLazarus
Good report

I tried pushing infusion to 8 months and suffered a flair as you did. That was a couple of years ago. Now I have been asking if infusions could come every 3 months instead of every 6. I was not...
Forum: General 11-14-2018, 06:14 PM
Replies: 11
Views: 1,659
Posted By MSLazarus
Yup...yup...makes sense.

You have created something incredibly special. Thank you for that. Very much.
Forum: General 11-08-2018, 07:21 PM
Replies: 6
Views: 1,122
Posted By MSLazarus
Thanks Suebee

My doc switched me from Valsartan to the recommended substitute. I am also on the generic ampyra.
Both have me concerned.😕
Forum: General 11-01-2018, 07:05 PM
Replies: 1
Views: 630
Posted By MSLazarus
Nicely done video

Can I borrow your wife?😊
Forum: General 10-31-2018, 05:01 PM
Replies: 6
Views: 1,122
Posted By MSLazarus
Yes. Mylan is producing it.

I have been taking it for 3 weeks. I am probably in a flare up of my MS. But my legs are weak and I have jumped to the only idea that popped into my mind. It is just that, for example, I found...
Forum: General 10-27-2018, 08:33 PM
Replies: 6
Views: 1,122
Posted By MSLazarus
Generic ampyra...any thoughts?

CVS specialty pharmacy called to say my copayfor Ampyra was going from $30 to $65 a month. Accorda already kicks in some which has kept it at $35. Took hours to find out that my insurance company...
Forum: MS Fitness 10-15-2018, 07:11 PM
Replies: 3
Views: 1,520
Posted By MSLazarus
Interesting

My own experience supports this study. I am a farmer and the season is coming to an end. So I felt justified in slowing down my efforts. However, I find that I have not been as exhausted as I am in...
Forum: MS Fitness 10-15-2018, 06:58 PM
Replies: 6
Views: 1,025
Posted By MSLazarus
I have been taking ampyra for about 5years

Interesting question. I can tell if I miss a dose because I immediately have trouble walking. When I started ampyra I thought it was not helping as I expected to see improvement right away. ( I...
Forum: Gear 08-16-2018, 08:01 PM
Replies: 19
Views: 9,753
Posted By MSLazarus
It’s all about the money

Their response is bull... I am convinced that, like me, the eternal optimists with MS convinced themselves initially that the device was having a possible impact. Like all of us early adopters of...
Forum: Gear 08-04-2018, 07:58 PM
Replies: 19
Views: 9,753
Posted By MSLazarus
I have had the EMBRWave for several months

I have found it almost useless in the summer heat. I really only used the cold setting and set it to the extended cooling time. I am a farmer and hoped it would help me stay cool when I am selling at...
Forum: Dave's SCT Journey 05-19-2018, 08:45 PM
Replies: 12
Views: 3,247
Posted By MSLazarus
The timed walk

I never asked what time was desireable.. I do it in 8 seconds and my neurologist always seemed quite satisfied. I do it because I take ampyra and the test is required. When I started the ampyra my...
Forum: General 05-15-2018, 06:59 AM
Replies: 43
Views: 13,560
Posted By MSLazarus
Good luck...🍀

I did want to mention as you go for blood work that I am JC positive but the number on the scale was low so I made the decision to continue. The benefit has been obvious for me...I wish the same for...
Forum: Dave's SCT Journey 03-06-2018, 07:41 PM
Replies: 12
Views: 3,247
Posted By MSLazarus
Wouldn’t it be wonderful?

Rituxan has been good for me and I hope Ocrevus will be good for you. Having hope is a precious state of being.
Forum: General 03-04-2018, 01:41 PM
Replies: 1
Views: 1,785
Posted By MSLazarus
I had Botox last week

My Botox injections last week seems to have worked miracles. I am not sure about side effects. Will get back to anyone interested.
Forum: Gear 03-04-2018, 01:36 PM
Replies: 19
Views: 9,753
Posted By MSLazarus
I got my embr wave yesterday..

Anyone else have one? I am using the warming cycle because here, in the Northeast, it is a cold day. I will keep you posted.
Forum: General 02-16-2018, 07:07 AM
Replies: 4
Views: 1,931
Posted By MSLazarus
I did Botox last week

I had my first Botox session. It was 200 mg. .?.. For me it was incredibly painful. The setting was the urologists’s facility. I wanted to be able to go there by myself and drive home. They numb the...
Forum: Dave's SCT Journey 01-17-2018, 07:33 PM
Replies: 14
Views: 3,794
Posted By MSLazarus
Amount and frequency of rituxan infusions

This is a response I got from someone on Braintalk. I asked for specifics about how her neuro was setting up the dosing of rituxan because I had raised just this question with my own neuro. I am...
Forum: Dave's SCT Journey 01-16-2018, 10:16 PM
Replies: 14
Views: 3,794
Posted By MSLazarus
Good luck Dave

Waiting with Hope is better than waiting with Fear.
That Fear is a nasty little person. Likes to sneak up on you to startle and then runs off to hide. His cousin is Cowardice and she’s another...
Forum: General 12-10-2017, 06:11 PM
Replies: 4
Views: 1,023
Posted By MSLazarus
That's right

I read a lot of Sachs......I remember him talking about such things.
I have always had a lot of what I call visual oddities with my course of MS. Here on my farm it always could be an animal flying...
Forum: General 12-04-2017, 09:37 PM
Replies: 4
Views: 1,023
Posted By MSLazarus
Visual hallucinations anyone? Also called release hallucinations

Author:Victoria S Pelak, MDSection Editor:Paul W Brazis, MDDeputy Editor:Janet L Wilterdink, MD
INTRODUCTION

The Charles Bonnet syndrome refers to symptoms of visual hallucinations that occur in...
Forum: Dave's SCT Journey 11-08-2017, 10:35 PM
Replies: 14
Views: 3,794
Posted By MSLazarus
Hey, I'm 70 and still expect great improvement!

Actually I am experiencing more than keeping things stable. Things have gotten better. That is, the big things that interfered with my farming life. Working 10 hours a day with no periods of great...
Forum: Dave's SCT Journey 11-08-2017, 08:02 PM
Replies: 14
Views: 3,794
Posted By MSLazarus
Thanks for your detailed answer.

I understand the differences as you explained. I wonder at the significance but, my neurologist recommends that I take Ocrevus if the rituxan stops working. He said there were small differences...
Forum: Dave's SCT Journey 11-08-2017, 11:47 AM
Replies: 14
Views: 3,794
Posted By MSLazarus
Rituxan vs Ocrevus

Hi Dave,
I have been on rituxan for about 5 years. When Ocrevus came on the market I read and read to determine the difference. (I know, animal vs. human origin). I could not understand a...
Forum: Gear 11-06-2017, 07:58 PM
Replies: 8
Views: 1,923
Posted By MSLazarus
I have had the walkaide for years.

I found it helpful. Since I am a farmer and often crawling around on my knees I do not use it as much as I expected.

I chose the walkaide instead of the bioness because it is/was one piece. When I...
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