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Search: Posts Made By: MSLazarus
Forum: General Yesterday, 09:47 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
You are correct

The deal is that rituxan was running out of its patent time so the company tweaked it and came out with Ocrevus......essentially the same item with a much higher price tag.

My insurance company has...
Forum: General 12-08-2019, 09:48 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
2 long infusions given two weeks apart is the protocol for rituxan infusions also.

Rituxan and ocrevus are almost identical. Rituxan costs less.
Forum: General 11-23-2019, 01:59 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
Thanks for the update

Wishing you all the best.....sounds like you have good information.
Forum: MS Fitness 11-19-2019, 06:47 PM
Replies: 81
Views: 27,118
Posted By MSLazarus
Yup...motivating ourselves can sometimes take a holiday

My farming season stopped as I got the first cold I have had in 30 years and I was coughing so much I missed the last farmersí market. So, ok. The timed intense work ended but there is so much to do...
Forum: General 10-29-2019, 10:04 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
It is called the MS Hug,

Even when you know you get it you are worrying it might be a heart attack.

I am lucky because they hang around for a few weeks, take a break and then return in another period of several weeks. I use...
Forum: General 10-27-2019, 07:17 AM
Replies: 69
Views: 20,093
Posted By MSLazarus
knowjust to be clearer...

I have done my major meds for many years before they wear off. Betaseron when it came on the market...IVIg for another 8 years. (170g every other week)....novantrone for the allowed limit...have been...
Forum: General 10-25-2019, 07:21 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
Great...I hope you go

I saw Vollmer sometime around 2001. I saw him several times as he and my own neurologist were trying to figure out my next step. He is great.

Several years later I saw him at a conference and asked...
Forum: General 10-24-2019, 05:48 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
Thanks for your story SueBee...

I am happy with rituxan. I am 72 now but am getting new symptoms which is irritating. I am a farmer and don't like it when the schedule is interrupted! (That means somebody has to do my work).

Right...
Forum: General 10-23-2019, 05:01 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
All very interesting

Timothy Volmer used Ocrevus/Rituxan just like that. He said they were the same. The deal was that the company was losing its patent on rituxan so it tweaked something, called it Ocrevus, and kept...
Forum: Gear 10-08-2019, 01:30 PM
Replies: 27
Views: 14,817
Posted By MSLazarus
I have a career in finding good homes for all the equipment I bought but never used..

I am pretty strong and do a lot of farm work so I am lucky. It is just that I have to crawl which is ok for the crops I am harvesting. I either have my scooter by my side or a strong barrel to use to...
Forum: MS Fitness 10-06-2019, 10:40 AM
Replies: 81
Views: 27,118
Posted By MSLazarus
Thank you for bumping this up. I have been reading through a lot!

I use a three wheeled walker. Have used it for 25 years. I use it when I am away from my farm.
Here is the problem..
These walkers had a simple system to raise and lower the height of the handlebars....
Forum: General 09-15-2019, 08:16 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
So, it is about 2 months later than my previous post on this thread.

I functioned extremely well. There has been a lot of stress this summer as my husband had a tough summer and I was responsible for the farm. A lot of the crops did not make it but a lot did! I dug...
Forum: General 07-24-2019, 05:35 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
Glad things are going well. I had an infusion at...

Glad things are going well. I had an infusion at the beginning of June and did not expect much. My previous infusion last December seemed to not have helped at all but, now I think the December...
Forum: General 12-07-2018, 09:00 AM
Replies: 69
Views: 20,093
Posted By MSLazarus
Thanks AMFADVENTURES

Ocrevus is the med that my neuro has waiting in the wings..if rituxan stops working he believes we should give it a try. Since they are virtually identical I am not sure why but I am an adventurous...
Forum: General 12-06-2018, 03:41 PM
Replies: 69
Views: 20,093
Posted By MSLazarus
Good report

I tried pushing infusion to 8 months and suffered a flair as you did. That was a couple of years ago. Now I have been asking if infusions could come every 3 months instead of every 6. I was not...
Forum: General 11-14-2018, 06:14 PM
Replies: 11
Views: 2,566
Posted By MSLazarus
Yup...yup...makes sense.

You have created something incredibly special. Thank you for that. Very much.
Forum: General 11-08-2018, 07:21 PM
Replies: 6
Views: 1,752
Posted By MSLazarus
Thanks Suebee

My doc switched me from Valsartan to the recommended substitute. I am also on the generic ampyra.
Both have me concerned.😕
Forum: General 11-01-2018, 07:05 PM
Replies: 1
Views: 942
Posted By MSLazarus
Nicely done video

Can I borrow your wife?😊
Forum: General 10-31-2018, 05:01 PM
Replies: 6
Views: 1,752
Posted By MSLazarus
Yes. Mylan is producing it.

I have been taking it for 3 weeks. I am probably in a flare up of my MS. But my legs are weak and I have jumped to the only idea that popped into my mind. It is just that, for example, I found...
Forum: General 10-27-2018, 08:33 PM
Replies: 6
Views: 1,752
Posted By MSLazarus
Generic ampyra...any thoughts?

CVS specialty pharmacy called to say my copayfor Ampyra was going from $30 to $65 a month. Accorda already kicks in some which has kept it at $35. Took hours to find out that my insurance company...
Forum: MS Fitness 10-15-2018, 07:11 PM
Replies: 3
Views: 1,987
Posted By MSLazarus
Interesting

My own experience supports this study. I am a farmer and the season is coming to an end. So I felt justified in slowing down my efforts. However, I find that I have not been as exhausted as I am in...
Forum: MS Fitness 10-15-2018, 06:58 PM
Replies: 6
Views: 1,446
Posted By MSLazarus
I have been taking ampyra for about 5years

Interesting question. I can tell if I miss a dose because I immediately have trouble walking. When I started ampyra I thought it was not helping as I expected to see improvement right away. ( I...
Forum: Gear 08-16-2018, 08:01 PM
Replies: 19
Views: 11,964
Posted By MSLazarus
Itís all about the money

Their response is bull... I am convinced that, like me, the eternal optimists with MS convinced themselves initially that the device was having a possible impact. Like all of us early adopters of...
Forum: Gear 08-04-2018, 07:58 PM
Replies: 19
Views: 11,964
Posted By MSLazarus
I have had the EMBRWave for several months

I have found it almost useless in the summer heat. I really only used the cold setting and set it to the extended cooling time. I am a farmer and hoped it would help me stay cool when I am selling at...
Forum: Dave's SCT Journey 05-19-2018, 08:45 PM
Replies: 12
Views: 4,298
Posted By MSLazarus
The timed walk

I never asked what time was desireable.. I do it in 8 seconds and my neurologist always seemed quite satisfied. I do it because I take ampyra and the test is required. When I started the ampyra my...
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