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Search: Posts Made By: Suebee
Forum: MS Fitness 07-05-2018, 06:23 PM
Replies: 1
Views: 251
Posted By Suebee
Thanks for posting this Dave! I wish research...

Thanks for posting this Dave! I wish research like this described or dug deeper into the term “fatigue”. It can mean so many things. My PT gave me a “fatigue chart” that i was supposed to use as a...
Forum: Dave's SCT Journey 07-03-2018, 08:27 PM
Replies: 3
Views: 78
Posted By Suebee
Dave, so sorry spasticity is in your life. I hate...

Dave, so sorry spasticity is in your life. I hate this symptom! I think it really qualifies as another type of pain sensation. You gotta try everything and see what works, what dose, what timing etc....
Forum: General 07-01-2018, 01:31 AM
Replies: 4
Views: 138
Posted By Suebee
Thumbs up Sounds like a wonderful trip! Thank you for...

Sounds like a wonderful trip! Thank you for posting details about your traveling with rhe scooter. It helps to hear how others manage traveling.
Forum: General 06-21-2018, 10:03 PM
Replies: 1
Views: 166
Posted By Suebee
From the "I'm not drunk - it's MS" file

I became alarmed recently when I read about a woman who was attending an open air concert (in the Texas heat) and experienced a worsening of MS symptoms, stumbled, and was arrested for public...
Forum: General 06-19-2018, 04:17 PM
Replies: 23
Views: 3,046
Posted By Suebee
Girl1, Trust your doctor, but verify it's best...

Girl1,
Trust your doctor, but verify it's best approach for you. Unfortunately, I have found few GYN/ obs are really familiar with how birth control, pregnancy, birth, pregnancy, and menopause are...
Forum: Dave's SCT Journey 06-19-2018, 03:52 PM
Replies: 1
Views: 125
Posted By Suebee
Good news! Even if i'm not sure what "ablating...

Good news! Even if i'm not sure what "ablating the pathologic autoreactive memory and restoring of self-tolerance" means! ;)
Forum: MS Fitness 05-06-2018, 03:47 PM
Replies: 5
Views: 356
Posted By Suebee
i tried asprin too! It helped my endurance ir at...

i tried asprin too! It helped my endurance ir at least gave me placebo effect! Thanks for posting suggestion!!!
Forum: General 05-06-2018, 03:43 PM
Replies: 1
Views: 192
Posted By Suebee
Talking so true, Dave! Like your impersonations too, put...

so true, Dave! Like your impersonations too, put a smile on my face...
Forum: MS Fitness 04-27-2018, 09:53 PM
Replies: 1
Views: 248
Posted By Suebee
cool! thanks for sharing idea!!!

cool! thanks for sharing idea!!!
Forum: Dave's SCT Journey 03-29-2018, 01:05 AM
Replies: 6
Views: 845
Posted By Suebee
I don't get dr's view pt

humm. I've missed you all. I've been working again and haven't been able to check in with you all as much lately. But this commentary about stem cell transplants got my bleary eyes attention.

I've...
Forum: General 02-04-2018, 04:14 PM
Replies: 1
Views: 338
Posted By Suebee
I think they are doing a study using this...

I think they are doing a study using this supplement to see if it puts ulcerative colitis into remission. I don't know if they've had success to date or if the benefit can be made analogous to...
Forum: MS Fitness 02-04-2018, 04:01 PM
Replies: 2
Views: 684
Posted By Suebee
Dave, thanks for posting Herb's article. He knows...

Dave, thanks for posting Herb's article. He knows his stuff. Unfortunately, I have found in my own experience that even when a PT is supposed to be trained on how to help patients with MS (neuro...
Forum: General 01-16-2018, 09:30 PM
Replies: 1
Views: 258
Posted By Suebee
yes! helllllooooo! Big pharm and insurers say...

yes! helllllooooo! Big pharm and insurers say what now????
Forum: General 01-16-2018, 09:27 PM
Replies: 10
Views: 1,249
Posted By Suebee
So glad your neuros listened to your concerns and...

So glad your neuros listened to your concerns and made a treatment decision considering your specific needs. :)
Forum: Dave's SCT Journey 12-03-2017, 06:42 PM
Replies: 2
Views: 6,485
Posted By Suebee
Rip

Dave, thank you for highlighting these MS warriors and the risk they took to try to halt this awful disease. RIP

Fight for a Cure, Cure MS.
Forum: General 11-03-2017, 08:34 AM
Replies: 6
Views: 593
Posted By Suebee
What makes me so upset about this trial and the...

What makes me so upset about this trial and the the potential data of stopping DMD is how it will be interpreted?!?

What Biomarkers are going to measured?
If a person with RRMS natural course of...
Forum: General 10-31-2017, 10:33 PM
Replies: 6
Views: 593
Posted By Suebee
HUMMMM...A quick google search about the trial...

HUMMMM...A quick google search about the trial suggests this about Medicare coverage.
The trial is being run by:
J.R. Corboy Neurology, University of Colorado School of Medicine, Aurora, CO, United...
Forum: General 10-31-2017, 10:08 PM
Replies: 6
Views: 593
Posted By Suebee
I'm disappointed in the apparent hypothesis for...

I'm disappointed in the apparent hypothesis for this study. Clearly, no one wants to be involved in a treatment plan that is of no benefit. But the study doesn't appear to be focusing on other ways...
Forum: Gear 10-24-2017, 09:48 PM
Replies: 8
Views: 940
Posted By Suebee
Thanks Dave for posting the link to all the...

Thanks Dave for posting the link to all the reviews! I hadn't seen it.
I was attracted to the Bioness plus because it is supposed to be helpful to people with weak hipflexors and trouble with gait...
Forum: Gear 10-23-2017, 12:34 AM
Replies: 8
Views: 940
Posted By Suebee
Hi I just inquired about bioness with my neuro. I...

Hi I just inquired about bioness with my neuro. I wanted to know if it would help me. Yes, I was told it might help, however, the units start at $10k and insurance is usually a no go... regardless,...
Forum: General 10-20-2017, 11:23 AM
Replies: 8
Views: 4,579
Posted By Suebee
Dave, thank you so much for assembling all these...

Dave, thank you so much for assembling all these studies on biotin.
The best way to describe my response is with :confused::confused::confused:
I'm sorry you have not had the result you wanted. I...
Forum: Gear 10-19-2017, 02:24 PM
Replies: 3
Views: 856
Posted By Suebee
Dave these look cool! I'm curious how one crutch...

Dave these look cool! I'm curious how one crutch works. I didn't see a video of it in action... because it's not used as a cane when using 2, but I wonder if one adjusts the height correctly, if one...
Forum: MS Fitness 10-17-2017, 01:39 PM
Replies: 120
Views: 14,739
Posted By Suebee
TM, I'm so happy and proud of you to have made...

TM,
I'm so happy and proud of you to have made such improvement! Even if we sometimes feel our bodies have betrayed us, our bodies are able to make amazing recoveries.
I will never forgot laying in...
Forum: MS Fitness 10-14-2017, 06:42 PM
Replies: 120
Views: 14,739
Posted By Suebee
Larry, this is a late reply, but I love your...

Larry, this is a late reply, but I love your description of "chaos" and the joy it is bring you!
I also like reading about everyone else's adventures.

My hipflexors / core are very weak and I...
Forum: General 10-11-2017, 09:26 AM
Replies: 1
Views: 453
Posted By Suebee
Sparky, I love your post because you point out...

Sparky, I love your post because you point out that different parts of the body can be affected differently and that you were able to problem solve ways to improve your right arm tone. That's...
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