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Forum: General 09-23-2018, 10:49 PM
Replies: 1
Views: 807
Posted By SAW
Young Plasma Clinical Trial

Our son was offered an opportunity to participate in the Young Plasma Clinical Trial for MS. Has anyone heard anything about it or been involved with it? We would appreciate your...
Forum: Gear 09-23-2018, 09:37 PM
Replies: 3
Views: 2,085
Posted By SAW
Electra 7 HD Light-Weight Foldable Power Wheelchair

Thanks for your responses.

We narrowed down our search to the Air Hawk, the Eagle HD, and the Electra 7 HD light-weight foldable power wheelchairs. These three chairs are built by the same...
Forum: Gear 09-06-2018, 04:43 PM
Replies: 3
Views: 2,085
Posted By SAW
Air Hawk Power Wheelchair for Travel

Does anyone have any experience with the Air Hawk Power Wheelchair? We are looking for a light-weight, folding power chair that is easy to transport and allowed on air planes. Any recommendations...
Forum: General 01-24-2018, 10:49 PM
Replies: 1
Views: 1,060
Posted By SAW
Alternate Therapy – Phosphatidyl Choline Used Intravenously

Has anyone had any experience using phosphatidyl choline intravenously to help rebuild and repair cell membranes, including those of the myelin sheath (hence specifically helpful for nerve...
Forum: Gear 12-24-2017, 06:19 PM
Replies: 16
Views: 6,727
Posted By SAW
Jjmagpin and others, I'd like to probe further...

Jjmagpin and others, I'd like to probe further into your thought processes of transitioning into a wheelchair. Obviously, feelings of missing out are a huge motivator, but something that is holding...
Forum: Gear 12-24-2017, 05:00 PM
Replies: 2
Views: 2,019
Posted By SAW
SueBee, you mention that you plan your excursions...

SueBee, you mention that you plan your excursions and ways of reducing your core temperture carefully everyday during high heat periods in TX. Can you share with us the ways you successfully reduce...
Forum: General 07-12-2017, 01:52 PM
Replies: 5
Views: 2,682
Posted By SAW
Suebee, Our son spoke with his Houston...

Suebee, Our son spoke with his Houston neurologist last week and had all his questions answered. Your feedback was helpful to prepare him for this conversation.

Our son has two neurologists due to...
Forum: General 07-02-2017, 01:06 AM
Replies: 5
Views: 2,682
Posted By SAW
Our son started a gluten-free diet a few months...

Our son started a gluten-free diet a few months ago. He wasn't sure it would help, but it was one way to take control of something in his life, and his doctor said it wouldn't hurt. He also misses...
Forum: General 07-01-2017, 03:56 PM
Replies: 5
Views: 2,682
Posted By SAW
Alemtuzumab (Lemtrada) Treatment Experience - Asking for Feedback

Your post was very encouraging, [post removed]. It is wonderful that Lemtrada worked for you.

What life style change did you make in conjunction with the Lemtrada treatment?
Forum: General 06-30-2017, 04:53 PM
Replies: 5
Views: 2,682
Posted By SAW
Lemtrada Treatment Experience - Asking for Feedback

Thanks, Suebee, for the link. Sounds like it will be a very useful resource for us.
SAW
Forum: General 06-30-2017, 01:19 AM
Replies: 5
Views: 2,682
Posted By SAW
Alemtuzumab (Lemtrada) Treatment Experience - Asking for Feedback

We are hoping that someone can share their experience with Lemtrada. Our son’s doctor has recommended he switch from Rituxan to Lemtrada infusions for his active MS. He is deliberating, namely due...
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