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Search: Posts Made By: Suebee
Forum: General 11-03-2017, 08:34 AM
Replies: 6
Views: 148
Posted By Suebee
What makes me so upset about this trial and the...

What makes me so upset about this trial and the the potential data of stopping DMD is how it will be interpreted?!?

What Biomarkers are going to measured?
If a person with RRMS natural course of...
Forum: General 10-31-2017, 10:33 PM
Replies: 6
Views: 148
Posted By Suebee
HUMMMM...A quick google search about the trial...

HUMMMM...A quick google search about the trial suggests this about Medicare coverage.
The trial is being run by:
J.R. Corboy Neurology, University of Colorado School of Medicine, Aurora, CO, United...
Forum: General 10-31-2017, 10:08 PM
Replies: 6
Views: 148
Posted By Suebee
I'm disappointed in the apparent hypothesis for...

I'm disappointed in the apparent hypothesis for this study. Clearly, no one wants to be involved in a treatment plan that is of no benefit. But the study doesn't appear to be focusing on other ways...
Forum: Gear 10-24-2017, 09:48 PM
Replies: 8
Views: 221
Posted By Suebee
Thanks Dave for posting the link to all the...

Thanks Dave for posting the link to all the reviews! I hadn't seen it.
I was attracted to the Bioness plus because it is supposed to be helpful to people with weak hipflexors and trouble with gait...
Forum: Gear 10-23-2017, 12:34 AM
Replies: 8
Views: 221
Posted By Suebee
Hi I just inquired about bioness with my neuro. I...

Hi I just inquired about bioness with my neuro. I wanted to know if it would help me. Yes, I was told it might help, however, the units start at $10k and insurance is usually a no go... regardless,...
Forum: General 10-20-2017, 11:23 AM
Replies: 8
Views: 3,642
Posted By Suebee
Dave, thank you so much for assembling all these...

Dave, thank you so much for assembling all these studies on biotin.
The best way to describe my response is with :confused::confused::confused:
I'm sorry you have not had the result you wanted. I...
Forum: Gear 10-19-2017, 02:24 PM
Replies: 1
Views: 130
Posted By Suebee
Dave these look cool! I'm curious how one crutch...

Dave these look cool! I'm curious how one crutch works. I didn't see a video of it in action... because it's not used as a cane when using 2, but I wonder if one adjusts the height correctly, if one...
Forum: MS Fitness 10-17-2017, 01:39 PM
Replies: 103
Views: 7,195
Posted By Suebee
TM, I'm so happy and proud of you to have made...

TM,
I'm so happy and proud of you to have made such improvement! Even if we sometimes feel our bodies have betrayed us, our bodies are able to make amazing recoveries.
I will never forgot laying in...
Forum: MS Fitness 10-14-2017, 06:42 PM
Replies: 103
Views: 7,195
Posted By Suebee
Larry, this is a late reply, but I love your...

Larry, this is a late reply, but I love your description of "chaos" and the joy it is bring you!
I also like reading about everyone else's adventures.

My hipflexors / core are very weak and I...
Forum: General 10-11-2017, 09:26 AM
Replies: 1
Views: 144
Posted By Suebee
Sparky, I love your post because you point out...

Sparky, I love your post because you point out that different parts of the body can be affected differently and that you were able to problem solve ways to improve your right arm tone. That's...
Forum: General 10-04-2017, 05:30 PM
Replies: 2
Views: 136
Posted By Suebee
Thanks Larry. I appreciate your thoughts.

Thanks Larry. I appreciate your thoughts.
Forum: General 09-30-2017, 11:27 AM
Replies: 2
Views: 136
Posted By Suebee
Losing a loved one & impact on MS symptoms

I was wondering if anyone has thoughts or comments about how to deal with grief over the loss of a loved one and its consequence on your MS symptoms?

I recently lost a dear person to me and I have...
Forum: General 09-25-2017, 10:14 AM
Replies: 3
Views: 1,312
Posted By Suebee
This is amazing stuff! Thanks for posting...

This is amazing stuff! Thanks for posting this.

I'm impressed that it reversed some of the disease process.

And, like you I'm excited even though it is just in discovery mouse stage. It makes me...
Forum: General 09-24-2017, 03:35 PM
Replies: 4
Views: 285
Posted By Suebee
Shandor, Question 2 I have personal experience. ...

Shandor,
Question 2 I have personal experience. Proproiception is your brain's ability to know where you are in space. This allows you to touch your nose with eyes closed or have a toe manually...
Forum: West South Central Region 09-07-2017, 03:33 PM
Replies: 0
Views: 109
Posted By Suebee
Hurricane/Disaster Relief for MSers

Hello, The MS Society is actively reaching out to Texans who are in need after Hurricane Harvey.

Our thoughts continue to be with everyone affected by the floods. The National MS Society MS...
Forum: General 09-07-2017, 03:29 PM
Replies: 1
Views: 144
Posted By Suebee
Hurricane/Disaster Relief for MSers

Hello, The MS Society is actively reaching out to Texans who are in need after Hurricane Harvey.

Our thoughts continue to be with everyone affected by the floods. The National MS Society MS...
Forum: MS Fitness 09-05-2017, 01:58 PM
Replies: 2
Views: 147
Posted By Suebee
Hey, good news! I think the answer will not...

Hey, good news! I think the answer will not relate to your level of disability but how comfortable are self-modifying exercises and identifying yourself to instructor (and class members) as someone...
Forum: MS Fitness 09-04-2017, 11:55 PM
Replies: 1
Views: 368
Posted By Suebee
ahh, another study measuring the tone of a...

ahh, another study measuring the tone of a mouse's tail.....
:p
Forum: General 09-01-2017, 05:33 PM
Replies: 1
Views: 171
Posted By Suebee
Gut Bacteria already patented!

NIH & Mayo Clinic patented the gut bacteria that might help MSers and people with Rheumatoid arthritis. Don't know if that's a good turn of events for us looking for advanced in science research or...
Forum: General 08-31-2017, 11:04 PM
Replies: 1
Views: 171
Posted By Suebee
Gut bacteria helps or hurts MS

Just published article on good gut bacteria that can help Fight MS
" human gut bacterium, Prevotella histicola, suppresses multiple sclerosis symptoms in a mouse model of this immune-related disease....
Forum: Gear 08-28-2017, 08:28 PM
Replies: 5
Views: 909
Posted By Suebee
panosonic trial FES device

I found 2016 article describibg how Panasonic developed a FES device with four pads and contects to quad and heel strike helps make the circuit, I think. Diagram shows stride. It was developed to...
Forum: Gear 08-28-2017, 01:39 PM
Replies: 5
Views: 909
Posted By Suebee
Yes Livwell, WHY IS there a real lack of...

Yes Livwell, WHY IS there a real lack of understanding by the medical community about the particular muscle weakness MSers have?
I was so impressed by the video of how much this device helped him...
Forum: General 08-27-2017, 10:42 PM
Replies: 2
Views: 171
Posted By Suebee
yes, i noticed dents right away on arms and...

yes, i noticed dents right away on arms and stopped injecting there but dents never resolved. I try to move around the injection spots to prevent it. i posted somewhere else on here about my consult...
Forum: Gear 08-24-2017, 12:32 PM
Replies: 5
Views: 909
Posted By Suebee
Dave & Mike, This is great! Thanks for sharing...

Dave & Mike,
This is great! Thanks for sharing this with us. I too have trouble with hip flexors and often use my hands to help lift a leg. Would this help if both hipflexors are weak along with...
Forum: General 08-20-2017, 08:51 AM
Replies: 3
Views: 289
Posted By Suebee
Gadium toxcity with frequent MRIs

As an MRI frequent flyer, this medical journal article surveying gadium toxitcy with frequent MRIs caught my eye.

I pass it on, although a bit depressing, because I know a key to MSer health is to...
Showing results 1 to 25 of 377

 
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