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Forum: Dave's SCT Journey Yesterday, 01:40 PM
Replies: 0
Views: 16
Posted By ActiveMSers
MSC stem cell therapy clinical trial launching for progressive MS

BrainStorm Announces First Contracted U.S. Clinical Site for Phase 2 Progressive MS Study
Phase 2 Open-Label Trial of Autologous MSC-NTF Cell Therapy (NurOwn®) in Progressive MS Patients will Begin...
Forum: West South Central Region 02-21-2019, 05:47 PM
Replies: 1
Views: 168
Posted By ActiveMSers
Exclamation HOUSTON: Me, live!!! (Mar 11)

The Multiple Sclerosis Foundation is sponsoring me for MS Awareness Month to speak in Houston, my first MS talk outside of New Mexico (I accept very few speaking invitations). I requested the...
Forum: Gear 02-21-2019, 02:16 PM
Replies: 0
Views: 23
Posted By ActiveMSers
New backpack keeps water icy cold

Hydro Flask is releasing their Journey Series backpack in April and it might be a boon for those of us (re: MSers) who want cold water on the go....
Forum: MS Fitness 02-21-2019, 01:10 PM
Replies: 14
Views: 805
Posted By ActiveMSers
Loved spending time with Larry. Good to be able...

Loved spending time with Larry. Good to be able to call him a friend. The best part might have been the first morning when we were sitting down to enjoy coffee when Larry said he enjoyed any type of...
Forum: General 02-21-2019, 01:01 PM
Replies: 0
Views: 42
Posted By ActiveMSers
New study confirms MS prevalence in US nearly 1 million, doubling earlier estimates

New Study Confirms Multiple Sclerosis Prevalence in the US is Nearly 1 Million People; More Than Twice As Many As Previous Number

National MS Society: We must do more because twice as many people...
Forum: MS Fitness 02-13-2019, 06:27 PM
Replies: 0
Views: 99
Posted By ActiveMSers
Exercise Training Effects on MS Biomarkers of Central Nervous System & Disease Status

Exercise Training Effects on Multiple Sclerosis Biomarkers of Central Nervous System and Disease Status: A Systematic Review of Intervention Studies

Raoof Negaresh, Robert W Motl, Philipp Zimmer, ...
Forum: Dave's SCT Journey 02-12-2019, 01:18 PM
Replies: 0
Views: 114
Posted By ActiveMSers
STUDY: Inefficacy of Rituximab post aHSCT to prevent relapses in MS

Inefficacy of Rituximab Post-Autologous Hematopoietic Stem Cell Transplant to Prevent Relapses in Persons with Multiple Sclerosis

Guillermo Jose Ruiz-Argüelles, MD, et....
Forum: East North Central Region 02-12-2019, 01:12 PM
Replies: 1
Views: 54
Posted By ActiveMSers
FYI, there is more and more evidence that step...

FYI, there is more and more evidence that step therapy may not be the smartest approach in MS, as research is showing that stronger meds at the outset leads to better control of the disease (and...
Forum: MS Fitness 02-12-2019, 12:45 PM
Replies: 0
Views: 263
Posted By ActiveMSers
STUDY: Poor cardio fitness connected to MS fatigue

Prolonged cortical silent period is related to poor fitness and fatigue, but not tumor necrosis factor, in Multiple Sclerosis

Arthur R. Chaves, Liam P. Kelly, et al.

Highlights

•MS patients have...
Forum: MS Fitness 02-12-2019, 12:34 PM
Replies: 1
Views: 50
Posted By ActiveMSers
Note this isn't HIIT. This was 30 minutes of...

Note this isn't HIIT. This was 30 minutes of steady exercise at 70% effort. Hard, but not HIIT.
Forum: MS Fitness 02-12-2019, 12:31 PM
Replies: 1
Views: 50
Posted By ActiveMSers
STUDY: Effect of High-Intensity Exercise on Multiple Sclerosis Function

Medicine & Science in Sports & Exercise. Publish Ahead of Print():, JAN 2019

DOI: 10.1249/MSS.0000000000001914 ,
PMID: 30707115

Issn Print: 0195-9131

Publication Date: 2019/01/30
Forum: East North Central Region 02-11-2019, 04:40 PM
Replies: 1
Views: 54
Posted By ActiveMSers
WISCONSIN: Step Therapy Advocacy Day (Mar 6)

Wisconsin Step Therapy Advocacy Day

Date:
Wednesday, March 6, 2019
Time:
9:00 AM - 3:00 PM
Location:
Wisconsin State Capitol
2 East Main Street
Hearing Room 300 NE
Forum: General 02-11-2019, 04:34 PM
Replies: 0
Views: 66
Posted By ActiveMSers
MS (Mis)Adventures

Throwing Caution to the Wind

You would have been so proud of me. As I was about to thread my off-road wheelchair over an imposing tree root between a gorge OF DEATH and a ravine OF DEATH, I had an...
Forum: Gear 02-08-2019, 03:14 PM
Replies: 0
Views: 139
Posted By ActiveMSers
Another AFO alternative: Phat Brace

A member of ActiveMSers turned me on to this find (not tested by me).



Here is their website....

http://www.phatbraces.com/

http://www.fredslegs.com/bstatafo.jpg
Forum: MS Fitness 02-06-2019, 01:37 PM
Replies: 3
Views: 162
Posted By ActiveMSers
There are two exercise video programs...

There are two exercise video programs specifically for MSers: MS Gym and MS Workouts. Both are $30 or more a month. I haven't reviewed either in any detail, but they both have avid fans.

Might want...
Forum: Pacific Region 02-06-2019, 01:14 PM
Replies: 2
Views: 135
Posted By ActiveMSers
For those concerned, Michele is not a stalker....

For those concerned, Michele is not a stalker. I've had the pleasure of enjoying a pint (uh, or two) with her and she is a cool cat. When I get back to Cali let's hook up! But I'm not much of an...
Forum: West South Central Region 02-06-2019, 01:09 PM
Replies: 0
Views: 54
Posted By ActiveMSers
LUBBOCK, TX: A Better Understanding of MS within the Hispanic Community (Feb 27)

2/27/19 Lubbock, TX

Date:
Wednesday, February 27, 2019
Time:
6:00 PM - 8:00 PM

Location:
Courtyard Marriott Lubbock Downtown/University Area
308 Avenue V
Forum: General 02-06-2019, 12:37 PM
Replies: 1
Views: 169
Posted By ActiveMSers
VIDEO: Get Outside with MS 😲

When you go outside, the opportunities for adventure increase tenfold. Don't let multiple sclerosis or any disability hold you back. The outdoors beckon. Let's crash that party!

NEW VIDEO:...
Forum: Gear 02-05-2019, 01:39 PM
Replies: 0
Views: 70
Posted By ActiveMSers
Cooling fabric recommendations for runners... and one crazy tip

Ah, trick question. There isn't a "cooling" fabric I recommend, as they don't hold down temps for any reasonable length of time as water quickly evaporates and/or warms. And synthetic shirts, while...
Forum: Dave's SCT Journey 02-04-2019, 01:46 PM
Replies: 13
Views: 2,203
Posted By ActiveMSers
Wanted to post an update on my Baclofen...

Wanted to post an update on my Baclofen experience. I'm now taking 20mg every 8 hours or so (it effectively lasts about 6 hours). Definitely helps. I could add another pill if necessary, but as...
Forum: General 02-04-2019, 01:30 PM
Replies: 11
Views: 1,052
Posted By ActiveMSers
Thanks all. I just posted a new blog, a new video...

Thanks all. I just posted a new blog, a new video should be launching soon, and a new newsletter is written and ready to be released. Marina, if you don't get our newsletter, maybe you should sign...
Forum: Gear 02-04-2019, 01:24 PM
Replies: 2
Views: 152
Posted By ActiveMSers
Maybe? Although I haven't tested the product, I...

Maybe? Although I haven't tested the product, I have arranged a 15% discount with the founder so members of ActiveMSers can give it a try. The coupon code is in our Members Only...
Forum: MS Fitness 02-04-2019, 01:04 PM
Replies: 0
Views: 276
Posted By ActiveMSers
HIIT may delay the incidence and severity of clinical symptoms (in mice)

With all these HIIT studies in mice, researchers must be beset with buff rodents. - D

The effect of regular interval training on histochemical symptoms and cytokine and neurotrophic levels of brain...
Forum: General 02-01-2019, 02:35 PM
Replies: 0
Views: 190
Posted By ActiveMSers
High efficacy MS treatments lowers risk of converting to SPMS

Original Investigation
January 15, 2019

Association of Initial Disease-Modifying Therapy With Later Conversion to Secondary Progressive Multiple Sclerosis

J. William L. Brown, Alasdair Coles; Dana...
Forum: Mountain Region 01-31-2019, 01:01 PM
Replies: 0
Views: 66
Posted By ActiveMSers
ABQ: Adaptive skiing at Sandia Peak (Ongoing)

We have a few open spots on Sunday in the AM or PM at Sandia Peak for skiing or snowboarding. The athlete would have to be a stand up skier or snowboarder as all sit down lesson are held at Ski Santa...
Showing results 1 to 25 of 500

 
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