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Search: Posts Made By: Afrayedknot
Forum: Dave's SCT Journey 05-07-2018, 12:50 PM
Replies: 39
Views: 19,986
Posted By Afrayedknot
I'm about to go see Dr.Burt in Chicago. I'm...

I'm about to go see Dr.Burt in Chicago. I'm "RRMS" whatever that means. Already planning for my eventual/potential groundhogs day. I see there are many options. You mentioned Rituxan infusions...
Forum: Dave's SCT Journey 03-30-2018, 03:00 PM
Replies: 6
Views: 1,021
Posted By Afrayedknot
"The majority of those randomized to receive drug...

"The majority of those randomized to receive drug therapy were given relatively mild MS medications including Copaxone, Beta interferon, Tecfidera or Gilenya with only a minority receiving...
Forum: Dave's SCT Journey 02-16-2018, 01:17 PM
Replies: 4
Views: 659
Posted By Afrayedknot
Thanks for your quick reply. I value your...

Thanks for your quick reply. I value your input.
I have an appointment with yet another Neuro in March. If I get the same kind of feedback, I think I may be making a contribution to science.
Banzai!
Forum: Dave's SCT Journey 02-16-2018, 07:01 AM
Replies: 4
Views: 659
Posted By Afrayedknot
HSCT for me?

Hi Dave
Iíve been reading your alternate viewpoint. Iím torn now.
Iím a 45 male. Diagnosed RRMS a year ago. Took a year for the diagnosis from first symptoms. Meds are NOT helping.
I saw Dr Burt...
Forum: General 02-06-2018, 07:15 PM
Replies: 260
Views: 92,755
Posted By Afrayedknot
My background is physics and engineering as well!...

My background is physics and engineering as well! And I fly for the challenge of it. What a coincidence. Maybe they should do a study on egg heads with pilots licenses. Personally think my type A...
Forum: General 02-04-2018, 03:24 PM
Replies: 260
Views: 92,755
Posted By Afrayedknot
Thanks for the encouragement. Sorry you had to...

Thanks for the encouragement. Sorry you had to hang up your wings. I'm glad you found other things to keep your mind active. My disability is not visible to the world. Yet. Cognitive problems are my...
Forum: General 02-03-2018, 03:58 PM
Replies: 260
Views: 92,755
Posted By Afrayedknot
Hsct

Hi, My name is Andy. I'm 45 and live in Michigan. Work as an engineer in the automotive industry. Love walking my dog and giving flight instruction. I was diagnosed end of 2016. Lately, my...
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