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Search: Posts Made By: girl1dir
Forum: General 06-19-2018, 04:26 PM
Replies: 21
Views: 2,875
Posted By girl1dir
Thanks SueBee! I am my best healthcare advocate...

Thanks SueBee!

I am my best healthcare advocate -- we found my MS 7 days after being admitted to the hospital for steroids. The one and only "relapse" I have had was Optic Neuritis that helped us...
Forum: General 06-15-2018, 06:33 PM
Replies: 21
Views: 2,875
Posted By girl1dir
Late to the party

Hey all! This is a great thread. Thank you for your real life experiences!

I am considering an elective surgery. I have had RRMS for about 2.5 years. I haven't ever had a relapse. I am happily...
Forum: Gear 06-11-2018, 06:52 PM
Replies: 3
Views: 224
Posted By girl1dir
No direct experience

I have a friend who 100% hands down LOVES her chilly pad. She's been sleeping well for the last year. I haven't needed to go this route yet, but I'm guessing when menopause hits me I'll be in the...
Forum: Mountain Region 10-26-2017, 07:01 PM
Replies: 3
Views: 473
Posted By girl1dir
And no word to anyone? Is the new guy still...

And no word to anyone?

Is the new guy still there?

#somethingisstragewiththatoffice
Forum: Mountain Region 10-22-2017, 06:06 PM
Replies: 3
Views: 473
Posted By girl1dir
Local NMSS office closed?

Any idea where the Albuquerque NMSS office went?

I passed by a minute ago and the signage is down.

Also checked Google maps and it says the location is permanently closed.

I haven't gotten any...
Forum: Mountain Region 10-20-2017, 08:37 PM
Replies: 2
Views: 765
Posted By girl1dir
Did you participate, Dave? I missed this post....

Did you participate, Dave?
I missed this post. Been trying to find a place to do Yoga that is NOT HOT and the room is cool enough for me to work in.
Forum: MS Fitness 10-20-2017, 08:31 PM
Replies: 1
Views: 1,552
Posted By girl1dir
When am I going to stop hating physical...

When am I going to stop hating physical activity??
I KNOW what I need to do, I just can't seem to get my ass moving.:eek:
Forum: Dave's SCT Journey 10-20-2017, 08:29 PM
Replies: 1
Views: 795
Posted By girl1dir
So... What's next on this front? Do people like...

So... What's next on this front?

Do people like me want to go for this type of treatment? Could I even get something like this? Do I want to? Would I still want to stay on an oral med "just in...
Forum: General 10-20-2017, 04:51 PM
Replies: 8
Views: 1,266
Posted By girl1dir
Bwahahahahaha

This leaves some veggies and fruits.
Of which I am allergic to the raw varieties.
I'd die.

#FabulousFadDiet

😜
Forum: General 10-16-2017, 11:36 AM
Replies: 3
Views: 556
Posted By girl1dir
bwahahahahhahaa... Dave... you never fail to make...

bwahahahahhahaa... Dave... you never fail to make me laugh.
Forum: Gear 03-19-2017, 09:52 AM
Replies: 9
Views: 1,637
Posted By girl1dir
I can be. Work has been hectic, but M, W, or F...

I can be. Work has been hectic, but M, W, or F afterwards should work. You still have my email or cell# ? Hit me up.
g1
Forum: Gear 03-11-2017, 06:10 PM
Replies: 1
Views: 885
Posted By girl1dir
They needed a study for that?

They really needed to fund a study for that answer?

I should be glad they got the answer we could all tell them. What will "they" do with that information now? Will this help us get cooling vests...
Forum: General 03-07-2017, 10:24 PM
Replies: 0
Views: 547
Posted By girl1dir
Question Cooling Vest and Airplanes

Friends,
I am insane. I am going to Las Vegas, Nevada at the end of July. Yeah... I'm nuts! Is it going to be worth it? Oh hell yes! We're going to see 2 of our very best friends for a long...
Forum: Gear 03-07-2017, 10:17 PM
Replies: 9
Views: 1,637
Posted By girl1dir
Cool Wahoo!! Modeling -- something to add to my...

Wahoo!! Modeling -- something to add to my resume.
Forum: MS Fitness 02-28-2017, 08:42 PM
Replies: 120
Views: 13,998
Posted By girl1dir
Talking Walking more

Not sure I'd call this training, but my current goal is to exercise more. My current exercise of choice is walking.

I'm trying to get on the treadmill or outside three days a week right now....
Forum: Gear 02-28-2017, 08:36 PM
Replies: 9
Views: 1,637
Posted By girl1dir
Talking Interested!

Yes. Yes. Yes!!!

Is it fire safe??!!

:)

I'd be happy to model for you since we seem to fit in the same size vests.
Forum: General 10-15-2016, 10:04 PM
Replies: 4
Views: 1,008
Posted By girl1dir
Smile Love this

Dave, you rock!!!!!!!!
Forum: General 09-30-2016, 08:25 PM
Replies: 1
Views: 1,145
Posted By girl1dir
Yeah. =) I was on my first DMD within 4 weeks of...

Yeah. =)
I was on my first DMD within 4 weeks of diagnosis. While it didn't work, the second one is and I have been on that since 8 months post diagnosis. Wahoo for a DMD that works for me and...
Forum: Dave's SCT Journey 08-17-2016, 08:50 AM
Replies: 1
Views: 1,244
Posted By girl1dir
What a grand idea. If the Aubagio fails me, I...

What a grand idea. If the Aubagio fails me, I would soooooo try it. I'm sure the insurance would rather I try 5 other things before this one.



P.S.
I LOVE that a woman is the lead on the paper....
Forum: General 08-12-2016, 02:25 PM
Replies: 11
Views: 1,837
Posted By girl1dir
Copaxone failed me in 6 months (I didn't fail...

Copaxone failed me in 6 months (I didn't fail it). It was my first DMD of choice because of the low side effects. Turns out my MS was a bit more aggressive. I went from ~5 lesions to double in 6...
Forum: Dave's SCT Journey 08-12-2016, 02:17 PM
Replies: 7
Views: 2,087
Posted By girl1dir
Go Go Gadget, Plan G!

Hoping for the bestest bestest bestest, Dave. =)
Forum: General 08-03-2016, 09:56 PM
Replies: 9
Views: 1,357
Posted By girl1dir
Toaster oven

We use a Breville brand toaster oven for reheating food we want to remain crispy. It is most handy for cooking pizza. I have yet to try it for baking, but I hear it is possible. We bake tater tots,...
Forum: General 08-03-2016, 09:49 PM
Replies: 9
Views: 1,357
Posted By girl1dir
Have someone else cook.;)

Have someone else cook.;)
Forum: General 08-03-2016, 09:46 PM
Replies: 10
Views: 2,090
Posted By girl1dir
My food choices didn't get me here

I don't believe my food choices can get me out of it.

I am happy to hear I can keep eating my red meat!!
Forum: Gear 08-03-2016, 09:42 PM
Replies: 4
Views: 1,159
Posted By girl1dir
I got to try this this vest on today thanks to...

I got to try this this vest on today thanks to our fearless leader. I have to say it fit well though the zipper in side pieces caused a bit of a rubbing issue for me. It used to be my first choice,...
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