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Search: Posts Made By: Suebee
Forum: General 09-29-2019, 12:10 PM
Replies: 2
Views: 319
Posted By Suebee
Iíve had similar experiences as you drillerdou. I...

Iíve had similar experiences as you drillerdou. I think years of chasing the next best thing gives a MSer burnout as well as empty pockets. This leads to more hesitancy to jump at another holistic...
Forum: MS Fitness 09-03-2019, 12:32 PM
Replies: 3
Views: 240
Posted By Suebee
Hi glad to have you on forum. It has helped me...

Hi glad to have you on forum. It has helped me understand MS better than any book or dr. My personal experience with MS is yes an increase of symptoms can occur and last days after. I jokingly...
Forum: General 09-02-2019, 08:51 PM
Replies: 6
Views: 833
Posted By Suebee
Angry Goatherder, Thatís what I thought. Please...

Goatherder, Thatís what I thought. Please forgive me if I step over the line, I know advocating for oneself is a full time job when one has MS, but Iím worried this is a harbinger for things to...
Forum: General 08-29-2019, 03:46 PM
Replies: 6
Views: 833
Posted By Suebee
Goat herder, I remember in another post that you...

Goat herder, I remember in another post that you explained the reason you went off Avonex but I canít remember what it was. Why did you discontinue?
Forum: General 08-17-2019, 04:26 PM
Replies: 12
Views: 3,373
Posted By Suebee
I echo Goathearder. Because it is illegal under...

I echo Goathearder. Because it is illegal under federal law (and the minority of states) it is a treatment that may cause a MSer greater legal woes than symptomatic relief. This isn't to say it is...
Forum: MS Fitness 08-10-2019, 01:15 PM
Replies: 1
Views: 348
Posted By Suebee
"Intolerance of Uncertainty"

I never heard the phrase "intolerance of uncertainty" before but I like it. I like it be cause it articulates a symptom of MS that is often overlooked or even dismissed. Being a bit of a word Smith...
Forum: General 08-03-2019, 06:00 PM
Replies: 2
Views: 422
Posted By Suebee
Cellular phone customer sTORE Guy tip

I wanted to share a tip I got from a cellular phone store today. HE suggested using Google mini to help plug calendar dates into an android phone and set up reminders. HE SAID THE ADTVG is that the...
Forum: General 07-31-2019, 06:14 PM
Replies: 2
Views: 422
Posted By Suebee
Wow, this is a great advance to help people live...

Wow, this is a great advance to help people live more independently ! So good, I put privacy issues aside. (Pretty much )I think one issue now is not whether to use this type of technology but HOW...
Forum: General 07-25-2019, 01:13 PM
Replies: 3
Views: 1,078
Posted By Suebee
Selma Update & progression and stem cell ??

Sadly, I read today that Selma reports quick physical decline due to MS - her cane replaced with need for walking bike and her vocal cords are weakened so she is starting a new treatment. I wish her...
Forum: Dave's SCT Journey 07-19-2019, 09:38 PM
Replies: 2
Views: 951
Posted By Suebee
Thanks for posting this article Dave! I haven't...

Thanks for posting this article Dave! I haven't been keeping tabs on follow up studies and Iím glad that it has shown effective for half. I initially had aggressive progression and it was scary to...
Forum: General 06-24-2019, 11:20 AM
Replies: 1
Views: 971
Posted By Suebee
Dave, Thanks for posting this... there are so...

Dave, Thanks for posting this... there are so many aspects of living that are impacted by Ms; it can sometimes be hard to articulate.

I think too that MS can change the way others judge you....
Forum: Dave's SCT Journey 04-11-2019, 07:27 PM
Replies: 1
Views: 2,150
Posted By Suebee
Thanks for posting it Dave!

Thanks for posting it Dave!
Forum: MS Fitness 04-11-2019, 07:25 PM
Replies: 4
Views: 595
Posted By Suebee
Beth, thatís awesome that you are committing to...

Beth, thatís awesome that you are committing to this exercise plan! Iím like you in a lot of respects, MS low endurance has made it challenging for me to adhere to a routine. But Dr Whalís helped me...
Forum: General 04-11-2019, 06:39 PM
Replies: 8
Views: 1,237
Posted By Suebee
Ohh this is just a horrible injustice to gamble...

Ohh this is just a horrible injustice to gamble with the quality of life of MSers like this. I couldnít get more info on who funded this research but Iím sure NIH and other govt backed agencies are...
Forum: General 03-30-2019, 11:23 AM
Replies: 4
Views: 657
Posted By Suebee
The above link to posture direct is under ďHow to...

The above link to posture direct is under ďHow to fix a rotated pelvisĒ and it shows picture of hip adjustment.
Forum: General 03-30-2019, 11:07 AM
Replies: 4
Views: 657
Posted By Suebee
Exercise for some hip issues

The reset exercise can be done by doing the bridge to get spine aligned and then performing a hip exercise adjustment followed by the bridge again to ďsetĒ the placement of legs.

1)The bridge
ďThe...
Forum: General 03-30-2019, 10:35 AM
Replies: 4
Views: 657
Posted By Suebee
Yes! Horrible. I had for long time until finally...

Yes! Horrible. I had for long time until finally a PT diagnosed and gave me exercise/ reset AND I started using a supplement. Now rarely bothers me. PT observed that my abs and girdle area are very...
Forum: West South Central Region 03-12-2019, 11:46 AM
Replies: 6
Views: 1,237
Posted By Suebee
Dave! I am sorry I missed your visit ! I wasnít...

Dave! I am sorry I missed your visit ! I wasnít able to go. Do you got pics or maybe a wry commentary on your Texan welcome?!? I hope you got a chance to take in a bit of Rodeo, or nibble on a bit...
Forum: General 03-09-2019, 04:50 PM
Replies: 4
Views: 848
Posted By Suebee
Resources on internet - use caution

I am always open for new sources of info about MS and ways to be connected. That is why this forum is so special, even almost a sacred place where us with MS can support each other. This place is...
Forum: MS Fitness 02-10-2019, 02:50 PM
Replies: 2
Views: 734
Posted By Suebee
Smile Emily, have you tried it out at gym or in store?...

Emily, have you tried it out at gym or in store? I think that is going to be best indicator if good for you. So long as PT or Dr says ok, and you can use it safely, I say go for it.

Balance...
Forum: General 01-27-2019, 03:22 PM
Replies: 0
Views: 510
Posted By Suebee
Whalís Reasearch volunteers needed!

Hey all, saw this exiting research opportunity on line- if you live with 500 miles of Univ of Iowa, have RRMS, and willing to try out an MS Diet- here is your opportunity !
Link...
Forum: General 01-21-2019, 05:09 PM
Replies: 11
Views: 2,280
Posted By Suebee
Ditto

I couldnít find the rights words to express my thanks, gratefulness, and words of support.. But as I read your familiar voices on this forum, like Mirinadaís, I see I am in agreement. Once again...
Forum: General 11-11-2018, 04:58 PM
Replies: 6
Views: 1,528
Posted By Suebee
fda data base search

Here is link to FDA warning letters to...
Forum: General 11-04-2018, 04:40 PM
Replies: 6
Views: 1,528
Posted By Suebee
I'm in agreement that we need lower drug costs,...

I'm in agreement that we need lower drug costs, especially for MS, and generics are one way to do it. But I think there is a lot of pressure on the government to make generics available and I'm not...
Forum: MS Fitness 10-14-2018, 07:30 PM
Replies: 9
Views: 1,608
Posted By Suebee
Awesome! So excited for you! A balance board...

Awesome! So excited for you! A balance board regimen might help while you do similar hockey hand and arm moves to retrain brain and bring back your muscle memory. keep it up!!!
Showing results 1 to 25 of 426

 
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