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Forum: Dave's SCT Journey Today, 06:36 PM
Replies: 1
Views: 20
Posted By ActiveMSers
These are the slides from the presentation....

These are the slides from the presentation. Interesting findings. He confirmed that the secondary progressive MS benefits of HSCT get fuzzy with time...

Progression Free Survival was 48% at 3 years,...
Forum: Gear Today, 06:27 PM
Replies: 4
Views: 304
Posted By ActiveMSers
For comparison numbers between this extended cool...

For comparison numbers between this extended cool vest and the original, we did a trial Saturday on a bike ride when temperatures rose to the mid 90s. In such high temps, the original would have...
Forum: General 05-30-2020, 01:04 PM
Replies: 0
Views: 27
Posted By ActiveMSers
VIDEO: MS Diet Advice

I found this presentation interesting and an eye-opening practical outlook on diets and MS, with some much-needed illumination on anti-inflammatory diets. Do you know any Case Study #3s???

CMSC 2020...
Forum: Virtual 05-30-2020, 12:57 PM
Replies: 0
Views: 8
Posted By ActiveMSers
CMSC Virtual Conference!

The Consortium of Multiple Sclerosis Centers’ annual meeting is being held right now virtually, and it is open to anyone. You can watch presentations given by the world’s top MS experts and even...
Forum: Dave's SCT Journey 05-30-2020, 12:52 PM
Replies: 1
Views: 20
Posted By ActiveMSers
VIDEO: HSCT expert Dr. Freedman breaks down the treatment and success rates

“It’s no longer a [question of] should we think about this as a treatment option? It is a treatment option.”

Stem cell research has been an up-and-coming method to treat not only multiple sclerosis...
Forum: Gear 05-30-2020, 12:49 PM
Replies: 4
Views: 304
Posted By ActiveMSers
It's been in the low 90s here in Albuquerque and...

It's been in the low 90s here in Albuquerque and I can confirm that this vest is dynamite and just as good as the original. Still form-fitting, still stealthy, it just lasts longer. You'd be...
Forum: General 05-28-2020, 11:24 AM
Replies: 0
Views: 46
Posted By ActiveMSers
Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions

DEMYELINATING DISORDERS (J. BERNARD AND M. CAMERON, SECTION EDITORS)

Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions
Rebecca Maguire & Phil Maguire

Abstract

Purpose of...
Forum: Gear 05-28-2020, 11:07 AM
Replies: 0
Views: 34
Posted By ActiveMSers
Lightbulb FUNDING ASSISTANCE for adaptive gear

ReActive Adaptions, which sells handcycles, put together this list. Not all apply to MS, and some are restricted to veterans, but this may those looking to purchase gear (esp. athletic gear) that may...
Forum: MS Fitness 05-27-2020, 05:02 PM
Replies: 0
Views: 44
Posted By ActiveMSers
Rehabilitation (and Exercise) in MS: That was Then, This is Now

This was presented earlier today at the virtual CMSC conference being held right now. Interesting stuff! The full video presentation will be uploaded soon. -D

Rehabilitation in MS: That was Then,...
Forum: General 05-27-2020, 11:41 AM
Replies: 6
Views: 792
Posted By ActiveMSers
ISSUE #6: Me, rejected!? The New York Times's...

ISSUE #6: Me, rejected!? The New York Times's loss is your gain—a humorous clothes essay

http://campaign.r20.constantcontact.com/render?m=1106679984560&ca=03dac141-f8d9-4abd-8551-6e3daeaaafab
Forum: Virtual 05-26-2020, 01:56 PM
Replies: 0
Views: 25
Posted By ActiveMSers
ZOOM Presentation: How to Make MS Boring (Jun 8)

Topic: How to Make MS Boring

A presentation by Dr. Aaron Boster, MD followed by Q&A.

Jun 8, 2020 07:00 PM in Eastern Time (US and...
Forum: Gear 05-26-2020, 12:36 PM
Replies: 0
Views: 48
Posted By ActiveMSers
Toting a wheelchair with a trike

I've done a touch of research on this topic since I'd like to get off my trike and grab a little lunch, use the bathroom, or hit a pub for pint. But I need my wheelchair for such sporting events....
Forum: MS Fitness 05-25-2020, 12:46 PM
Replies: 0
Views: 63
Posted By ActiveMSers
Exercise and its influence on cognition in MS: Researchers embark on large study

Study protocol: improving cognition in people with progressive multiple sclerosis: a multi-arm, randomized, blinded, sham-controlled trial of cognitive rehabilitation and aerobic exercise...
Forum: Dave's SCT Journey 05-24-2020, 03:47 PM
Replies: 0
Views: 90
Posted By ActiveMSers
Autologous Stem Cell Transplant in Adult Multiple Sclerosis Patients: A Study from No

ORIGINAL ARTICLE
Year : 2020 | Volume : 68 | Issue : 2 | Page : 454-457

Autologous Stem Cell Transplant in Adult Multiple Sclerosis Patients: A Study from North India

Aniruddha Dayama, Rahul...
Forum: Virtual 05-24-2020, 03:39 PM
Replies: 2
Views: 170
Posted By ActiveMSers
Here is an archive of the summit! Free and...

Here is an archive of the summit! Free and extremely educational.

https://www.mscenter.org/education/seminars-workshops/ms-summit/911-2020-spring-education-summit
Forum: MS Fitness 05-24-2020, 03:37 PM
Replies: 34
Views: 4,599
Posted By ActiveMSers
JTHrider, smart call on the pedals. If your ever...

JTHrider, smart call on the pedals. If your ever transition to a trike they are pretty much mandatory. After you get used to them (trust me, you will) you'll wonder how in the heck you managed...
Forum: Gear 05-24-2020, 03:32 PM
Replies: 29
Views: 17,552
Posted By ActiveMSers
I've added a few things to my home gym recently....

I've added a few things to my home gym recently. Light hand weights, 2-4 lbs, for overhead work and reverse flies. A stretching strap. And more exercise DVDs! Laura now uses a foam roller in addition...
Forum: General 05-24-2020, 03:28 PM
Replies: 1
Views: 272
Posted By ActiveMSers
Hey Adie, I'd shoot over to www.MSworld.org for...

Hey Adie, I'd shoot over to www.MSworld.org for input from their members. OMS and Swank have extremely serious followers. I'm hopeful studies will support these diets at some point, but until then I...
Forum: General 05-18-2020, 11:10 AM
Replies: 1
Views: 161
Posted By ActiveMSers
Surveying sleep quality and fatigue in multiple sclerosis patients

Neurobiology of Sleep and Circadian Rhythms
Volume 8, May 2020, 100050

Surveying sleep quality and fatigue in multiple sclerosis patients at a multiple sclerosis center in Kermanshah, Iran, in...
Forum: MS Fitness 05-18-2020, 10:56 AM
Replies: 0
Views: 142
Posted By ActiveMSers
Landmark trial to study neuroprotective effects of exercise

Published: 11 May 2020

Neuroprotective effects of exercise in people with progressive multiple sclerosis (Exercise PRO-MS): study protocol of a phase II trial

A. S. Gravesteijn, H. Beckerman, B. A....
Forum: Virtual 05-15-2020, 11:09 AM
Replies: 0
Views: 106
Posted By ActiveMSers
Coming of Age with MS (May 30)

A bunch of heavy hitters are presenting. Should be a good virtual conference. -D

Coming of Age with MS
Consortium of MS Centers
May 30, 2020
12:00 noon - 3:00 pm (EDT)
Online, Virtual...
Forum: Gear 05-15-2020, 10:56 AM
Replies: 4
Views: 304
Posted By ActiveMSers
I've been trialing the vest with extended cooling...

I've been trialing the vest with extended cooling power and with temps still relatively cool, I can't confirm the extra hour. But that said, I can confirm that it is still comfortable, stealthy, and...
Forum: MS Fitness 05-15-2020, 10:50 AM
Replies: 4
Views: 3,572
Posted By ActiveMSers
This newest Wii study found notable benefit....

This newest Wii study found notable benefit. -D

Objective evaluation of Nintendo Wii Fit Plus balance program training on postural stability in Multiple Sclerosis patients: a pilot study

Cimino,...
Forum: General 05-15-2020, 10:43 AM
Replies: 0
Views: 147
Posted By ActiveMSers
Treatment and management of cognitive dysfunction in patients with multiple sclerosis

Published: 05 May 2020

Treatment and management of cognitive dysfunction in patients with multiple sclerosis

John DeLuca, Nancy D. Chiaravalloti & Brian M. Sandroff

Nature Reviews Neurology...
Forum: MS Fitness 05-14-2020, 02:59 PM
Replies: 0
Views: 127
Posted By ActiveMSers
YES, physical therapy makes a difference says study

From poster session at ACTRIMS 2020. Herb is a contributor here! -D

Physical Telerehabilitation Ameliorates Impact Of Multiple Sclerosis In A Randomized Control Trial

J. Finkelstein, I. Jeong, H....
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