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Forum: Gear 05-24-2018, 02:05 PM
Replies: 1
Views: 104
Posted By ActiveMSers
Hope to be testing one (or two) soon. Stay tuned!

Hope to be testing one (or two) soon. Stay tuned!
Forum: General 05-23-2018, 01:30 PM
Replies: 0
Views: 24
Posted By ActiveMSers
VIDEO: Get Out There!

Having a disability like multiple sclerosis doesn't mean you have to stop exploring. It just might mean using different tools, like in my case a hand cycle.

NEW VIDEO: https://youtu.be/_cegIAW413E
Forum: East North Central Region 05-23-2018, 12:15 PM
Replies: 0
Views: 16
Posted By ActiveMSers
CHICAGO: Muckfest MS (Aug 25)

CHICAGO | The FUN Mud Run
Saturday, August 25, 2018

MuckFest® MS is built for laughs and muddy from the get-go! Teams run in the same wave so you can experience all the muddy shenanigans, epic...
Forum: Dave's SCT Journey 05-22-2018, 12:04 PM
Replies: 0
Views: 36
Posted By ActiveMSers
What is HSCT? An excellent overview

MS researcher Gavin Giovannoni just posted this blog on his Barts MS website. A good read. - D
Forum: General 05-21-2018, 05:51 PM
Replies: 0
Views: 32
Posted By ActiveMSers
FDA expands approval of Gilenya to treat multiple sclerosis in pediatric patients

FDA expands approval of Gilenya to treat multiple sclerosis in pediatric patients
First drug approved to treat MS in ages 10 and older

The U.S. Food and Drug Administration today approved Gilenya...
Forum: Dave's SCT Journey 05-18-2018, 05:02 PM
Replies: 10
Views: 499
Posted By ActiveMSers
Hmmmmmm. My MS appears to want to keep chugging....

Hmmmmmm. My MS appears to want to keep chugging. My timed 25-foot walk from this time a year ago was about 10 seconds, pretty slow. (The average person can do it in under 4 seconds. If you take over...
Forum: East North Central Region 05-18-2018, 04:42 PM
Replies: 0
Views: 16
Posted By ActiveMSers
DETROIT: Muckfest MS (Aug 4)

DETROIT | The FUN Mud Run
Saturday, August 4, 2018

MuckFest® MS is built for laughs and muddy from the get-go! Teams run in the same wave so you can experience all the muddy shenanigans, epic spills...
Forum: General 05-18-2018, 04:10 PM
Replies: 1
Views: 318
Posted By ActiveMSers
STUDY: Harvard Researchers Uncover Gut Bacteria's Potential Role In MS

What does it all mean? We don't know yet, and the tests were done on a mouse model, but this research is intriguing. -D



Here is the Harvard abstract. Warning: It is pretty sciency. -D

Microglial...
Forum: General 05-16-2018, 11:51 AM
Replies: 0
Views: 55
Posted By ActiveMSers
VIDEO: How to cope with MS rough patches

Coping with the challenges of multiple sclerosis can be, well, challenging. Here is a trick I learned to make it easier to get through those rough patches: channel your inner superhero. But be...
Forum: MS Fitness 05-15-2018, 02:06 PM
Replies: 1
Views: 1,179
Posted By ActiveMSers
THESIS: "Exercise enhances ... the formation of myelin" in MS patients

This is a just released doctoral thesis, and a darn interesting one based on the abstract. - D

The Cellular and Molecular Response of Oligodendroglia to Physical Exercise following...
Forum: Middle Atlantic Region 05-15-2018, 11:30 AM
Replies: 0
Views: 33
Posted By ActiveMSers
NEW JERSEY: Muckfest MS (July 21)

NEW JERSEY | The FUN Mud Run
Saturday, July 21, 2018

MuckFest® MS is built for laughs and muddy from the get-go! Teams run in the same wave so you can experience all the muddy shenanigans, epic...
Forum: General 05-15-2018, 10:23 AM
Replies: 1
Views: 102
Posted By ActiveMSers
Shocker! Caregivers are people, too

Poor Laura. I pride myself on being a bit stubborn with my feisty multiple sclerosis. Often it works. I’ve explored Machu Picchu, scooching down steps on my butt while Demi Moore looked on. I’ve...
Forum: Middle Atlantic Region 05-13-2018, 06:55 PM
Replies: 0
Views: 23
Posted By ActiveMSers
PHILADELPHIA: Muckfest MS (June 10-11)

PHILADELPHIA | The FUN Mud Run
Saturday, June 9, 2018 | Sunday, June 10, 2018

MuckFest® MS is built for laughs and muddy from the get-go! Teams run in the same wave so you can experience all the...
Forum: Dave's SCT Journey 05-10-2018, 01:06 PM
Replies: 39
Views: 16,974
Posted By ActiveMSers
AFK, Burt's MIST transplant is effective. I did...

AFK, Burt's MIST transplant is effective. I did just hear from one his earlier transplant recipients (2005 I believe) and he remained in remission for about 10 years—impressive. His MS unfortunately...
Forum: General 05-10-2018, 12:29 PM
Replies: 1
Views: 88
Posted By ActiveMSers
VIDEO: Going to the beach with MS

Going to the beach with a wheelchair is a virtual impossibility... unless you have the right wheelchair. Don't let multiple sclerosis or any other disease slow you down. Be active, stay fit, keep...
Forum: New England Region 05-10-2018, 11:52 AM
Replies: 0
Views: 34
Posted By ActiveMSers
BOSTON, MA: Muckfest MS (May 19)

BOSTON | The FUN Mud Run
Saturday, May 19, 2018

MuckFest MS is the FUN Mud Run that has raised over $29 MILLION dollars for the National MS Society. This year, the muck will be in seven cities...
Forum: Gear 05-10-2018, 11:43 AM
Replies: 0
Views: 79
Posted By ActiveMSers
Trick new wheelchair cushion that also cools

Here is a new trick item for wheelchair users discovered by Ivy, a fellow ActiveMSer. - D

---------------

wheelAIR®
£650.00

wheelAIR® is a battery-powered airflow back-rest cushion carefully...
Forum: Gear 05-08-2018, 04:03 PM
Replies: 1
Views: 114
Posted By ActiveMSers
Hey P2TS, sorry that vest didn't work out for...

Hey P2TS, sorry that vest didn't work out for you. It's a bit different. Quick question: in what situations did you wear it? Around the house? Outside in 90-degree temps? During exercise? Your...
Forum: Virtual 05-08-2018, 03:57 PM
Replies: 0
Views: 39
Posted By ActiveMSers
Women's Issues in MS (May 8)

From Can Do MS. An archive copy of the webinar will be available after the session. - D

-------------------

Tonight, May 8, at 8pm EST is our Women's Issues in #MS webinar! This webinar discusses...
Forum: Gear 05-03-2018, 05:17 PM
Replies: 1
Views: 104
Posted By ActiveMSers
What happens when a Nissan engineer re-imagines a scooter? This!

This scooter/wheelchair created by a design engineer at Nissan is everything you'd expect it to be: innovative, cutting edge, and game changing. It's quick, turns on a dime, can handle the off road,...
Forum: General 05-02-2018, 01:08 PM
Replies: 1
Views: 112
Posted By ActiveMSers
VIDEO: Yeah, man, drugs!

Disease modifying therapies (DMTs) and disease modifying drugs (DMDs) are a frustrating but necessary part of treatment when it comes to multiple sclerosis. Cheech and Chong also make cameos....
Forum: General 05-01-2018, 04:53 PM
Replies: 0
Views: 102
Posted By ActiveMSers
Best MS blogs of 2018

So glad to be a part of this group. And fortunate to personally know (and have bear hugged—grrr!) many of these bloggers and the people behind the organizations included. Haven't gotten a hug? Watch...
Forum: Mountain Region 05-01-2018, 01:09 PM
Replies: 1
Views: 92
Posted By ActiveMSers
Bump. This ought to be a good program. - D

Bump. This ought to be a good program. - D
Forum: MS Fitness 04-25-2018, 03:23 PM
Replies: 5
Views: 220
Posted By ActiveMSers
Hey GS, check out this research on taking aspirin...

Hey GS, check out this research on taking aspirin before exercising with MS. The dosing they used for the trial is in there.

http://forums.activemsers.org/showthread.php?t=2548&highlight=aspirin
Forum: General 04-25-2018, 11:13 AM
Replies: 1
Views: 101
Posted By ActiveMSers
VIDEO: Getting Diagnosed

When you get diagnosed with multiple sclerosis (or any other serious health condition for that matter) the experience usually falls into one of two categories. Where did you fall?

ActiveMSers on...
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