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Forum: Dave's SCT Journey 03-14-2019, 04:29 PM
Replies: 3
Views: 1,503
Posted By ActiveMSers
I'm bumping this up as this study features many...

I'm bumping this up as this study features many with progressive MS. The rate is 46%, but that includes RRMSers. The true rate of remission for progressive MS is likely in the 30s, and even lower for...
Forum: General 03-14-2019, 03:25 PM
Replies: 1
Views: 21
Posted By ActiveMSers
User titles have changed!

Below are the new titles for posters here on the forum based on the total number of posts you've made. For our veteran posters, you can send me your preference for your own personal title that won't...
Forum: Dave's SCT Journey 03-14-2019, 01:10 PM
Replies: 0
Views: 30
Posted By ActiveMSers
Phase 2 MSC stem cell trial for progressive MS now recruiting

Tisch out of NYC has launched Phase 2 of their MSC treatment. Lots of exclusions, and heavy on the lumbar punctures, but has potential.

Brief Summary: This is a Phase II, Double-Blind,...
Forum: Gear 03-14-2019, 01:02 PM
Replies: 2
Views: 82
Posted By ActiveMSers
Jim, thanks for the post and welcome! I really...

Jim, thanks for the post and welcome! I really dig trekking poles as a walking aid for many reasons. I recommend rubber tips so you can use them indoors. Also, using two instead of just one is better...
Forum: General 03-14-2019, 12:53 PM
Replies: 1
Views: 54
Posted By ActiveMSers
If I was a company, and didn't have a conflict of...

If I was a company, and didn't have a conflict of interest (Celgene has reached out to me for advice and input), I would totally apply. I've got some good ideas. Hmmm.
Forum: MS Fitness 03-14-2019, 12:49 PM
Replies: 0
Views: 48
Posted By ActiveMSers
HIIT: a general guide to getting started by the NYT

This piece by The New York Times isn't MS specific, but it is a great overview of high intensity interval training, the science behind it, and workout recommendations. A great read. And with HIIT...
Forum: West South Central Region 03-14-2019, 12:38 PM
Replies: 6
Views: 475
Posted By ActiveMSers
Talk went well despite an audio hiccup with the...

Talk went well despite an audio hiccup with the videos (they got it fixed). About 100 folks, but only a handful of ActiveMSers! But perhaps some of the others may join.

I think people enjoyed the...
Forum: Dave's SCT Journey 03-05-2019, 12:05 AM
Replies: 0
Views: 82
Posted By ActiveMSers
AHSCT for treatment in RRMS: American Society for Blood and Marrow Transplantation

Biol Blood Marrow Transplant. 2019 Feb 19. pii: S1083-8791(19)30139-9. doi: 10.1016/j.bbmt.2019.02.014. [Epub ahead of print]

Autologous Hematopoietic cell transplantation for treatment – refractory...
Forum: MS Fitness 03-04-2019, 11:56 PM
Replies: 0
Views: 72
Posted By ActiveMSers
STUDY: The effect of exercise, yoga and physiotherapy on the quality of life MSers

The effect of exercise, yoga and physiotherapy on the quality of life of people with multiple sclerosis: Systematic review and meta-analysis

Khrisha B. Alphonsusa et...
Forum: West South Central Region 03-04-2019, 11:51 PM
Replies: 6
Views: 475
Posted By ActiveMSers
Busy getting ready. It's gonna be a hoot. And...

Busy getting ready. It's gonna be a hoot. And afterward, beer at the hotel bar for anyone who wants to join!
Forum: General 02-27-2019, 08:11 PM
Replies: 2
Views: 137
Posted By ActiveMSers
Interview with Selma Blair

On Nightline the other day. Laura says I should reach out to her. No prob. I'll go thru my celeb Rolodex. -D
Forum: Gear 02-27-2019, 07:46 PM
Replies: 0
Views: 98
Posted By ActiveMSers
How electric assist benefits hand cyclists

This is an interesting read. -D
Forum: West South Central Region 02-27-2019, 06:42 PM
Replies: 6
Views: 475
Posted By ActiveMSers
Larry, how did it go!? And for those curious,...

Larry, how did it go!?

And for those curious, Laura will also be at my talk so y'all get to meet her. :D
Forum: East North Central Region 02-26-2019, 12:20 PM
Replies: 1
Views: 64
Posted By ActiveMSers
Aaron is pretty awesome. Thanks for the heads up...

Aaron is pretty awesome. Thanks for the heads up Lisa! Ohio holds a special place in my heart. I spent my late tweens and early teens in Beavercreek. :)
Forum: Dave's SCT Journey 02-22-2019, 01:40 PM
Replies: 0
Views: 73
Posted By ActiveMSers
MSC stem cell therapy clinical trial launching for progressive MS

BrainStorm Announces First Contracted U.S. Clinical Site for Phase 2 Progressive MS Study
Phase 2 Open-Label Trial of Autologous MSC-NTF Cell Therapy (NurOwn®) in Progressive MS Patients will Begin...
Forum: West South Central Region 02-21-2019, 05:47 PM
Replies: 6
Views: 475
Posted By ActiveMSers
Exclamation HOUSTON: Me, live!!! (Mar 11)

The Multiple Sclerosis Foundation is sponsoring me for MS Awareness Month to speak in Houston, my first MS talk outside of New Mexico (I accept very few speaking invitations). I requested the...
Forum: Gear 02-21-2019, 02:16 PM
Replies: 0
Views: 77
Posted By ActiveMSers
New backpack keeps water icy cold

Hydro Flask is releasing their Journey Series backpack in April and it might be a boon for those of us (re: MSers) who want cold water on the go....
Forum: MS Fitness 02-21-2019, 01:10 PM
Replies: 16
Views: 1,196
Posted By ActiveMSers
Loved spending time with Larry. Good to be able...

Loved spending time with Larry. Good to be able to call him a friend. The best part might have been the first morning when we were sitting down to enjoy coffee when Larry said he enjoyed any type of...
Forum: General 02-21-2019, 01:01 PM
Replies: 0
Views: 155
Posted By ActiveMSers
New study confirms MS prevalence in US nearly 1 million, doubling earlier estimates

New Study Confirms Multiple Sclerosis Prevalence in the US is Nearly 1 Million People; More Than Twice As Many As Previous Number

National MS Society: We must do more because twice as many people...
Forum: MS Fitness 02-13-2019, 06:27 PM
Replies: 0
Views: 180
Posted By ActiveMSers
Exercise Training Effects on MS Biomarkers of Central Nervous System & Disease Status

Exercise Training Effects on Multiple Sclerosis Biomarkers of Central Nervous System and Disease Status: A Systematic Review of Intervention Studies

Raoof Negaresh, Robert W Motl, Philipp Zimmer, ...
Forum: Dave's SCT Journey 02-12-2019, 01:18 PM
Replies: 0
Views: 207
Posted By ActiveMSers
STUDY: Inefficacy of Rituximab post aHSCT to prevent relapses in MS

Inefficacy of Rituximab Post-Autologous Hematopoietic Stem Cell Transplant to Prevent Relapses in Persons with Multiple Sclerosis

Guillermo Jose Ruiz-Argüelles, MD, et....
Forum: East North Central Region 02-12-2019, 01:12 PM
Replies: 1
Views: 103
Posted By ActiveMSers
FYI, there is more and more evidence that step...

FYI, there is more and more evidence that step therapy may not be the smartest approach in MS, as research is showing that stronger meds at the outset leads to better control of the disease (and...
Forum: MS Fitness 02-12-2019, 12:45 PM
Replies: 0
Views: 337
Posted By ActiveMSers
STUDY: Poor cardio fitness connected to MS fatigue

Prolonged cortical silent period is related to poor fitness and fatigue, but not tumor necrosis factor, in Multiple Sclerosis

Arthur R. Chaves, Liam P. Kelly, et al.

Highlights

•MS patients have...
Forum: MS Fitness 02-12-2019, 12:34 PM
Replies: 1
Views: 115
Posted By ActiveMSers
Note this isn't HIIT. This was 30 minutes of...

Note this isn't HIIT. This was 30 minutes of steady exercise at 70% effort. Hard, but not HIIT.
Forum: MS Fitness 02-12-2019, 12:31 PM
Replies: 1
Views: 115
Posted By ActiveMSers
STUDY: Effect of High-Intensity Exercise on Multiple Sclerosis Function

Medicine & Science in Sports & Exercise. Publish Ahead of Print():, JAN 2019

DOI: 10.1249/MSS.0000000000001914 ,
PMID: 30707115

Issn Print: 0195-9131

Publication Date: 2019/01/30
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