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Search: Posts Made By: Suebee
Forum: West South Central Region 03-12-2019, 11:46 AM
Replies: 6
Views: 475
Posted By Suebee
Dave! I am sorry I missed your visit ! I wasn’t...

Dave! I am sorry I missed your visit ! I wasn’t able to go. Do you got pics or maybe a wry commentary on your Texan welcome?!? I hope you got a chance to take in a bit of Rodeo, or nibble on a bit...
Forum: General 03-09-2019, 04:50 PM
Replies: 4
Views: 380
Posted By Suebee
Resources on internet - use caution

I am always open for new sources of info about MS and ways to be connected. That is why this forum is so special, even almost a sacred place where us with MS can support each other. This place is...
Forum: MS Fitness 02-10-2019, 02:50 PM
Replies: 2
Views: 206
Posted By Suebee
Smile Emily, have you tried it out at gym or in store?...

Emily, have you tried it out at gym or in store? I think that is going to be best indicator if good for you. So long as PT or Dr says ok, and you can use it safely, I say go for it.

Balance...
Forum: General 01-27-2019, 03:22 PM
Replies: 0
Views: 158
Posted By Suebee
Whal’s Reasearch volunteers needed!

Hey all, saw this exiting research opportunity on line- if you live with 500 miles of Univ of Iowa, have RRMS, and willing to try out an MS Diet- here is your opportunity !
Link...
Forum: General 01-21-2019, 05:09 PM
Replies: 11
Views: 1,178
Posted By Suebee
Ditto

I couldn’t find the rights words to express my thanks, gratefulness, and words of support.. But as I read your familiar voices on this forum, like Mirinada’s, I see I am in agreement. Once again...
Forum: General 11-11-2018, 04:58 PM
Replies: 6
Views: 832
Posted By Suebee
fda data base search

Here is link to FDA warning letters to...
Forum: General 11-04-2018, 04:40 PM
Replies: 6
Views: 832
Posted By Suebee
I'm in agreement that we need lower drug costs,...

I'm in agreement that we need lower drug costs, especially for MS, and generics are one way to do it. But I think there is a lot of pressure on the government to make generics available and I'm not...
Forum: MS Fitness 10-14-2018, 07:30 PM
Replies: 9
Views: 962
Posted By Suebee
Awesome! So excited for you! A balance board...

Awesome! So excited for you! A balance board regimen might help while you do similar hockey hand and arm moves to retrain brain and bring back your muscle memory. keep it up!!!
Forum: General 10-06-2018, 01:30 AM
Replies: 7
Views: 1,511
Posted By Suebee
awesome resource tm! and another readon...

awesome resource tm! and another readon ito
immigrate to Canada these days ;) .. .
here is concentrations of this
from the sourc you gave

“Absorption can be felt typically from 30 to 45 minutes,...
Forum: General 10-03-2018, 11:05 PM
Replies: 7
Views: 1,511
Posted By Suebee
I agree, very interesting study and I want to...

I agree, very interesting study and I want to understand more how much is needed to help and what amt of spasticity drugs is it being added on to as therapy.

I did a quick google search and found...
Forum: General 09-08-2018, 07:26 PM
Replies: 3
Views: 765
Posted By Suebee
I 100% agree with Larry. I couldn't follow all...

I 100% agree with Larry. I couldn't follow all the math but the description of the assumptions seemed just like an attempt to quantify, but not really solid numbers....

I also note that the main...
Forum: General 09-02-2018, 05:52 PM
Replies: 2
Views: 538
Posted By Suebee
Thanks for posting this site. I want science to...

Thanks for posting this site. I want science to make advances to stop MS! I think looking at metadata is one way to do this But I strongly believe we should be well informed as to exactly how are...
Forum: General 08-26-2018, 01:51 PM
Replies: 1
Views: 600
Posted By Suebee
yah, this didn't help me. :p

yah, this didn't help me. :p
Forum: General 08-22-2018, 01:58 AM
Replies: 2
Views: 499
Posted By Suebee
Always discuss concerns with doctor

Dave, agreed, no one should stop getting vaccines! They save lives and prevent disease. Anyone concerned about the risks of a particular vaccine should discuss it with their doctor. Period.

I am...
Forum: General 08-19-2018, 02:26 PM
Replies: 2
Views: 499
Posted By Suebee
Meningoccal Vaccine / MS

The meningoccal vaccine is required for most school age children. Although GBS has been noted, MS has not been identified as a counter indication for administering the vaccine. If you have MS in your...
Forum: Dave's SCT Journey 08-19-2018, 01:55 PM
Replies: 1
Views: 625
Posted By Suebee
Good news! Thanks for posting it!!!

Good news! Thanks for posting it!!!
Forum: MS Fitness 08-19-2018, 01:52 PM
Replies: 3
Views: 978
Posted By Suebee
Great article!

Thanks for posting this Dave! It is good to see that scientists are trying to decipher the barriers MSers have to excerise and ways healthcare can encourage excercise.

But I will admit, I snorted...
Forum: MS Fitness 07-05-2018, 06:23 PM
Replies: 1
Views: 1,021
Posted By Suebee
Thanks for posting this Dave! I wish research...

Thanks for posting this Dave! I wish research like this described or dug deeper into the term “fatigue”. It can mean so many things. My PT gave me a “fatigue chart” that i was supposed to use as a...
Forum: Dave's SCT Journey 07-03-2018, 08:27 PM
Replies: 13
Views: 2,381
Posted By Suebee
Dave, so sorry spasticity is in your life. I hate...

Dave, so sorry spasticity is in your life. I hate this symptom! I think it really qualifies as another type of pain sensation. You gotta try everything and see what works, what dose, what timing etc....
Forum: General 07-01-2018, 01:31 AM
Replies: 4
Views: 802
Posted By Suebee
Thumbs up Sounds like a wonderful trip! Thank you for...

Sounds like a wonderful trip! Thank you for posting details about your traveling with rhe scooter. It helps to hear how others manage traveling.
Forum: General 06-21-2018, 10:03 PM
Replies: 1
Views: 646
Posted By Suebee
From the "I'm not drunk - it's MS" file

I became alarmed recently when I read about a woman who was attending an open air concert (in the Texas heat) and experienced a worsening of MS symptoms, stumbled, and was arrested for public...
Forum: General 06-19-2018, 04:17 PM
Replies: 23
Views: 4,953
Posted By Suebee
Girl1, Trust your doctor, but verify it's best...

Girl1,
Trust your doctor, but verify it's best approach for you. Unfortunately, I have found few GYN/ obs are really familiar with how birth control, pregnancy, birth, pregnancy, and menopause are...
Forum: Dave's SCT Journey 06-19-2018, 03:52 PM
Replies: 1
Views: 673
Posted By Suebee
Good news! Even if i'm not sure what "ablating...

Good news! Even if i'm not sure what "ablating the pathologic autoreactive memory and restoring of self-tolerance" means! ;)
Forum: MS Fitness 05-06-2018, 03:47 PM
Replies: 5
Views: 1,067
Posted By Suebee
i tried asprin too! It helped my endurance ir at...

i tried asprin too! It helped my endurance ir at least gave me placebo effect! Thanks for posting suggestion!!!
Forum: General 05-06-2018, 03:43 PM
Replies: 1
Views: 697
Posted By Suebee
Talking so true, Dave! Like your impersonations too, put...

so true, Dave! Like your impersonations too, put a smile on my face...
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