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Search: Posts Made By: Suebee
Forum: General Yesterday, 02:21 PM
Replies: 17
Views: 521
Posted By Suebee
MS Prof G explains safe level lymphocytes

If you are on DMT and consulting with your neurologist about continuing or postponing, Dr. G from U.K. explains in todayís post:

ďI know that a lot of you are confused because some neurologists are...
Forum: General 03-28-2020, 06:35 PM
Replies: 2
Views: 100
Posted By Suebee
CVS home delivery for pharmacy & groceries

CVS offering "Insta-cart" to deliver pharmacy and groceries to your home from your local store.
Here is link to get Insta-cart https://delivery.cvs.com/

I tried it. It worked. It just needs name...
Forum: General 03-28-2020, 12:59 AM
Replies: 17
Views: 521
Posted By Suebee
Promising News: No reports of mortality in immunosuppressed

A few days ago An Italian doctor, Dr Lorenzo D’Antiga, published a peer reviewed article which states covid-19 to date has not shown severe disease in immune suppressed individuals and that this is...
Forum: General 03-26-2020, 10:13 PM
Replies: 2
Views: 100
Posted By Suebee
SAMs store posts Senior & At Risk hours + Concerige

I sometimes shop at Sams and saw this notice from Sams posted: ďStarting ...March 26, Samís Club locations nationwide will offer early shopping hours every Tuesday and Thursday from 7 a.m. to 9 a.m....
Forum: MS Fitness 03-22-2020, 04:15 PM
Replies: 22
Views: 2,006
Posted By Suebee
Hi all, it is good to see your posts, and hear...

Hi all, it is good to see your posts, and hear about all about your accomplishments before pandemic, and now how you all are adjusting, staying active and safe during this crazy surreal time. TM I...
Forum: General 03-20-2020, 05:02 PM
Replies: 2
Views: 100
Posted By Suebee
Lightbulb Complete List of Grocery Stores with hrs for AT Risk

As of March 20th, Here is the best up to date list I could find of grocery stores across the country that are offering special hours for over 60, at risk, or pregnant. Some have delivery and pick up...
Forum: General 03-20-2020, 01:37 AM
Replies: 17
Views: 521
Posted By Suebee
Australia MS Neurologists issue DMT/ COVID19 Guidelines

March 19th Austraila MS org Published advice from a large group of independent neurologists on DMTs during the pandemic. Like all other guidance on this topic, it is rapidly evolving. It appears...
Forum: General 03-19-2020, 12:52 AM
Replies: 17
Views: 521
Posted By Suebee
ABN issues updated guidelines on MS DMDs

Tonight, hot off the presses, The Assoc. Of British Neurologists (ABN) issued updated guidelines from last week on MS DMTs during this pandemic.

Bart’s Blog posted it tont and reminds us that these...
Forum: Virtual 03-17-2020, 03:38 PM
Replies: 4
Views: 80
Posted By Suebee
Cool, thanks for posting this Dave. No excuse...

Cool, thanks for posting this Dave. No excuse now, thanks again ;)
Forum: General 03-17-2020, 11:54 AM
Replies: 17
Views: 521
Posted By Suebee
American Dental Assoc recommends no elective procedures

This morning My dental hygienist called me, and my 3 month cleaning (I started as a stay well measure on Ocrecous) is indefinitely postponed because of Recommendations issued by American Dental Assoc...
Forum: General 03-16-2020, 10:47 PM
Replies: 17
Views: 521
Posted By Suebee
UK Public Health Dept issues MS guidelines

March 16th, the UK Public Health Dept. Issued strong urging to MSers and other at risk groups to follow stringent social distancing rules, as follows:
"What is social distancing?
Social distancing...
Forum: Dave's SCT Journey 03-16-2020, 10:36 PM
Replies: 3
Views: 190
Posted By Suebee
Glad your practicing social distancing Dave. I'm...

Glad your practicing social distancing Dave. I'm hunkered down too, but not able to completely block out. My hubby still goes to work for now and is near others and my teenagers want to see a...
Forum: General 03-15-2020, 04:24 PM
Replies: 17
Views: 521
Posted By Suebee
Ms self-care short video

Here is a short self-care video for people with MS during the pandemic my MS advocate Vicki Hadge. I found it nice to be reminded about daily things I can do for self care. It is honest and not...
Forum: General 03-13-2020, 05:45 PM
Replies: 17
Views: 521
Posted By Suebee
Video from U.K. Bartís dr expert on MS

I found This video reassuring so Iím posting it. If you want to hear more up to date info from a top neurologist on MS/covid-19, I recommend. It is 10 min long, explains what we know about MS and...
Forum: General 03-12-2020, 09:19 PM
Replies: 17
Views: 521
Posted By Suebee
Make dmt stop/start decision case by case

Bart's blog dr posted that decision to stop/ start dmt be cause of corona virus, it should be case specific and in best interest of patient:
"Clearly any decision to start a DMT during the COVID-19...
Forum: General 03-11-2020, 07:49 PM
Replies: 17
Views: 521
Posted By Suebee
Drillerdou, yes I agree, we are now forced to...

Drillerdou, yes I agree, we are now forced to face the fragility of our human condition. Youíre right too that we shouldnít panic because then we canít make rational decisions if panicked. But Iím...
Forum: General 03-11-2020, 11:46 AM
Replies: 17
Views: 521
Posted By Suebee
At Risk individuals need More guidence

The Today Show highlighted a Mom with MS, who understands why CDC gives reassurance but questions their response for At Risk people. She reminds us about deaths to At Risk individuals from H1N1,...
Forum: General 03-10-2020, 10:28 PM
Replies: 17
Views: 521
Posted By Suebee
Link

https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/covid-19-coronavirus-and-ms
Forum: General 03-10-2020, 10:23 PM
Replies: 17
Views: 521
Posted By Suebee
Exclamation COVID-19 & MS DMDs

Hi all, there seems to be a lack of detailed info here in the States about what immune supressed individuals should do to stay safe other than "avoiding" crowds. BUT luckily, the UK Trust website has...
Forum: Dave's SCT Journey 03-07-2020, 07:32 PM
Replies: 4
Views: 245
Posted By Suebee
Dave, i agree, your positive attitude prevails...

Dave, i agree, your positive attitude prevails even when others might not be so inclined. Plan I j, they all stink. But you are able to voice these predicaments frankly and with such grace. Such a...
Forum: General 03-07-2020, 04:14 PM
Replies: 0
Views: 168
Posted By Suebee
MS Break-up song!?

Hey all, Do you have a Break-up song for MS? I realized that I have a song list I will sometimes play when I'm feeling dejected or frustrated with MS, sort of like my old mix tape of breakup songs...
Forum: General 03-07-2020, 03:52 PM
Replies: 89
Views: 25,579
Posted By Suebee
Lmh , two pieces of info might be helpful: 1)...

Lmh , two pieces of info might be helpful: 1) ocrevous currently has a generous patient assist in US if you have insurance; 2) if you have documented neuro cognitive deficits, ocrevous is shown to...
Forum: General 02-21-2020, 05:28 PM
Replies: 89
Views: 25,579
Posted By Suebee
Lmh and all, I share my personal experience to...

Lmh and all, I share my personal experience to help others understand my personal decision to take orcevous. I feel as a patient that I should weigh DMD choice risk benefits based on my circumstances...
Forum: General 02-13-2020, 11:11 PM
Replies: 4
Views: 506
Posted By Suebee
Brain shrink is real

Youíre definitely right that inactive passivity can lead to brain atrophy similar to that seen in aging. But brain atrophy measures have been recognized for awhile now to directly to correlate to...
Forum: General 02-12-2020, 10:10 PM
Replies: 89
Views: 25,579
Posted By Suebee
Animal live vaccine and possible risk to immune...

Animal live vaccine and possible risk to immune compromised human

Https://academic.oup.com/cid/article/37/3/407/437242#6522761
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