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Forum: General 03-20-2019, 12:29 PM
Replies: 2
Views: 33
Posted By ActiveMSers
Living with MS in Europe

This is an interesting site and video project on living with MS in Europe. Thanks for the tip, LivWell!
Forum: Mountain Region 03-20-2019, 12:17 PM
Replies: 0
Views: 12
Posted By ActiveMSers
PHOENIX, TUCSON: Mobility Fitness Institute review

Got this tip from an ActiveMSer in Arizona. -D

My name is Carolyn and I have primary progressive MS. I went to Mobility Fitness for the first time on March 18. It was an amazing 1 hour workout...
Forum: Dave's SCT Journey 03-19-2019, 01:14 PM
Replies: 1
Views: 68
Posted By ActiveMSers
The official press release. TISCH MS RESEARCH...

The official press release.

TISCH MS RESEARCH CENTER OF NEW YORK AWARDED $1 MILLION NATIONAL MS SOCIETY GRANT FOR PHASE II STEM CELL RESEARCH


Momentum Continues in Landmark Study Targeting Repair...
Forum: Gear 03-19-2019, 12:43 PM
Replies: 0
Views: 28
Posted By ActiveMSers
Renting a Smart Scoot mobility scooter (try before you buy)

I got a note yesterday from an owner of Scoot Anywhere USA. Turns out they are the only company in the US or Canada that rents the Smart Scoot. They'll ship anywhere in the States or Canada. Not a...
Forum: Middle Atlantic Region 03-19-2019, 12:24 PM
Replies: 0
Views: 10
Posted By ActiveMSers
NEW YORK: MS Hope for a Cure Presents MS Hope Day (Apr 7)

MS Hope for a Cure Presents MS Hope Day
Date:
Sunday, April 7, 2019
Time:
9:30 AM - 12:15 PM
Location:
The Marlene Meyerson JCC Manhattan
334 Amsterdam Avenue at 76th St.
New York, NY 10023
Forum: Dave's SCT Journey 03-19-2019, 12:11 PM
Replies: 1
Views: 89
Posted By ActiveMSers
BrainStorm Announces First Patient Enrolled in...

BrainStorm Announces First Patient Enrolled in Phase 2 Clinical Trial of Progressive MS

03/14/2019

Enrollment Announced During MS Awareness Week

NEW YORK and CLEVELAND, March 14, 2019 (GLOBE...
Forum: General 03-19-2019, 12:02 PM
Replies: 1
Views: 32
Posted By ActiveMSers
The full article is available to read as a...

The full article is available to read as a pdf.

https://n.neurology.org/content/neurology/early/2019/03/13/WNL.0000000000007245.full.pdf
Forum: General 03-19-2019, 12:01 PM
Replies: 1
Views: 32
Posted By ActiveMSers
Risk tolerance and DMTs: A survey of MSers

No surprises here: risk takers tend to be men, younger and more disabled. -D

March 13, 2019

A survey of risk tolerance to multiple sclerosis therapies

Robert J. Fox, Carol Cosenza, Lauren Cripps,...
Forum: Dave's SCT Journey 03-14-2019, 04:29 PM
Replies: 3
Views: 1,512
Posted By ActiveMSers
I'm bumping this up as this study features many...

I'm bumping this up as this study features many with progressive MS. The rate is 46%, but that includes RRMSers. The true rate of remission for progressive MS is likely in the 30s, and even lower for...
Forum: General 03-14-2019, 03:25 PM
Replies: 1
Views: 42
Posted By ActiveMSers
User titles have changed!

Below are the new titles for posters here on the forum based on the total number of posts you've made. For our veteran posters, you can send me your preference for your own personal title that won't...
Forum: Dave's SCT Journey 03-14-2019, 01:10 PM
Replies: 1
Views: 68
Posted By ActiveMSers
Phase 2 MSC stem cell trial for progressive MS now recruiting

Tisch out of NYC has launched Phase 2 of their MSC treatment. Lots of exclusions, and heavy on the lumbar punctures, but has potential.

Brief Summary: This is a Phase II, Double-Blind,...
Forum: Gear 03-14-2019, 01:02 PM
Replies: 2
Views: 92
Posted By ActiveMSers
Jim, thanks for the post and welcome! I really...

Jim, thanks for the post and welcome! I really dig trekking poles as a walking aid for many reasons. I recommend rubber tips so you can use them indoors. Also, using two instead of just one is better...
Forum: General 03-14-2019, 12:53 PM
Replies: 1
Views: 70
Posted By ActiveMSers
If I was a company, and didn't have a conflict of...

If I was a company, and didn't have a conflict of interest (Celgene has reached out to me for advice and input), I would totally apply. I've got some good ideas. Hmmm.
Forum: MS Fitness 03-14-2019, 12:49 PM
Replies: 0
Views: 65
Posted By ActiveMSers
HIIT: a general guide to getting started by the NYT

This piece by The New York Times isn't MS specific, but it is a great overview of high intensity interval training, the science behind it, and workout recommendations. A great read. And with HIIT...
Forum: West South Central Region 03-14-2019, 12:38 PM
Replies: 6
Views: 485
Posted By ActiveMSers
Talk went well despite an audio hiccup with the...

Talk went well despite an audio hiccup with the videos (they got it fixed). About 100 folks, but only a handful of ActiveMSers! But perhaps some of the others may join.

I think people enjoyed the...
Forum: Dave's SCT Journey 03-05-2019, 12:05 AM
Replies: 0
Views: 86
Posted By ActiveMSers
AHSCT for treatment in RRMS: American Society for Blood and Marrow Transplantation

Biol Blood Marrow Transplant. 2019 Feb 19. pii: S1083-8791(19)30139-9. doi: 10.1016/j.bbmt.2019.02.014. [Epub ahead of print]

Autologous Hematopoietic cell transplantation for treatment – refractory...
Forum: MS Fitness 03-04-2019, 11:56 PM
Replies: 0
Views: 80
Posted By ActiveMSers
STUDY: The effect of exercise, yoga and physiotherapy on the quality of life MSers

The effect of exercise, yoga and physiotherapy on the quality of life of people with multiple sclerosis: Systematic review and meta-analysis

Khrisha B. Alphonsusa et...
Forum: West South Central Region 03-04-2019, 11:51 PM
Replies: 6
Views: 485
Posted By ActiveMSers
Busy getting ready. It's gonna be a hoot. And...

Busy getting ready. It's gonna be a hoot. And afterward, beer at the hotel bar for anyone who wants to join!
Forum: General 02-27-2019, 08:11 PM
Replies: 2
Views: 151
Posted By ActiveMSers
Interview with Selma Blair

On Nightline the other day. Laura says I should reach out to her. No prob. I'll go thru my celeb Rolodex. -D
Forum: Gear 02-27-2019, 07:46 PM
Replies: 0
Views: 100
Posted By ActiveMSers
How electric assist benefits hand cyclists

This is an interesting read. -D
Forum: West South Central Region 02-27-2019, 06:42 PM
Replies: 6
Views: 485
Posted By ActiveMSers
Larry, how did it go!? And for those curious,...

Larry, how did it go!?

And for those curious, Laura will also be at my talk so y'all get to meet her. :D
Forum: East North Central Region 02-26-2019, 12:20 PM
Replies: 1
Views: 68
Posted By ActiveMSers
Aaron is pretty awesome. Thanks for the heads up...

Aaron is pretty awesome. Thanks for the heads up Lisa! Ohio holds a special place in my heart. I spent my late tweens and early teens in Beavercreek. :)
Forum: Dave's SCT Journey 02-22-2019, 01:40 PM
Replies: 1
Views: 89
Posted By ActiveMSers
MSC stem cell therapy clinical trial launching for progressive MS

BrainStorm Announces First Contracted U.S. Clinical Site for Phase 2 Progressive MS Study
Phase 2 Open-Label Trial of Autologous MSC-NTF Cell Therapy (NurOwn®) in Progressive MS Patients will Begin...
Forum: West South Central Region 02-21-2019, 05:47 PM
Replies: 6
Views: 485
Posted By ActiveMSers
Exclamation HOUSTON: Me, live!!! (Mar 11)

The Multiple Sclerosis Foundation is sponsoring me for MS Awareness Month to speak in Houston, my first MS talk outside of New Mexico (I accept very few speaking invitations). I requested the...
Forum: Gear 02-21-2019, 02:16 PM
Replies: 0
Views: 81
Posted By ActiveMSers
New backpack keeps water icy cold

Hydro Flask is releasing their Journey Series backpack in April and it might be a boon for those of us (re: MSers) who want cold water on the go....
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