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Search: Posts Made By: Suebee
Forum: General 07-08-2020, 12:08 AM
Replies: 29
Views: 3,660
Posted By Suebee
Vaccine readiness & extending DMD dosing

Limited but promising info has been published about results of the ocrevous drug trial II extension, which suggests the ocrevous dosing schedule can be extended without relapse so long as at least 3...
Forum: General 07-04-2020, 02:05 PM
Replies: 1
Views: 113
Posted By Suebee
Thoughts on Body betrayal

Hi gogogomes. I thought about your post and wanted to share. I think we all at some point (or many points) feel our body has betrayed us or is alien from the body we once possessed. And I personally...
Forum: General 07-04-2020, 01:08 PM
Replies: 2
Views: 110
Posted By Suebee
Do you want to drive it too???

Decide if you want a wheelchair assessable car that allows you to be in driver seat. I had a 1 on 1 occupational driving therapist that was certified to evaluate my capabilities and make...
Forum: General 07-03-2020, 03:49 PM
Replies: 4
Views: 158
Posted By Suebee
Yay For Dave!

Dave awesome article in Momentum! I love the Natíl Parks and have many on my after pandemic bucket list. I watched the video link too. How great you got to see the Geyser !!! I totally relate to...
Forum: General 06-26-2020, 02:15 PM
Replies: 96
Views: 32,394
Posted By Suebee
MSLaz, So great to hear your infusion went well...

MSLaz, So great to hear your infusion went well and you are feeling stronger!!! Yay! Thatís great news and we all can certainly use some right now. I had my full dental cleaning exam yesterday as...
Forum: General 06-23-2020, 04:19 PM
Replies: 29
Views: 3,660
Posted By Suebee
MS Intíl Federation Updated DMDs / Covid

On June 17th the MS intíl Federation updated its earlier recommendations on MS DMDs during Covid. Update has Encouraging news for interferons, Copaxone, dimemythal fumerate, siponoid, teriflumonide. ...
Forum: MS Fitness 06-23-2020, 03:47 PM
Replies: 48
Views: 7,108
Posted By Suebee
Keep moving EU MS exercise videos

For those of us without such an awesome bike as Dave, and who need some extra motivation to exercise during covid, the European MS Platform produced six short videos to get us moving! Focus is on...
Forum: General 06-22-2020, 03:44 PM
Replies: 29
Views: 3,660
Posted By Suebee
Unhappy Appears risk higher for anti-cd20 DMTs

My philosophy is that Meta data and top notch scientists are our best hope to understand MS and Covid19. Iím sad to relay that very current thinking at this time is that anti-CD20 therapies...
Forum: General 06-21-2020, 09:59 PM
Replies: 29
Views: 3,660
Posted By Suebee
Vaccine readiness and Orcevous

Alright, Dave mentioned this issue in his posts. I want to put my head in sand and skip over issue , but I think itís important to understand what drs are observing and speculating ...

Fact -...
Forum: MS Fitness 06-21-2020, 01:15 AM
Replies: 48
Views: 7,108
Posted By Suebee
WOW! (Whistle whistle :p)

WOW! (Whistle whistle :p)
Forum: General 06-20-2020, 12:33 PM
Replies: 29
Views: 3,660
Posted By Suebee
ocrelizumab/ rituximab & covid good news

Iíve been hesitant to post recent conflicting information about covid and ocrelizumab and rituximab because it is so conflicting and speculative. I am not a science person and do my best to...
Forum: General 06-20-2020, 11:50 AM
Replies: 4
Views: 459
Posted By Suebee
Rehab ( & prehabilation) exercises for Covid

Hi, I thought this short PDF guide prepared by several hospitals in NY on simple exercises to do to aid in recovery from Covid19 was good and thought Iíd share it. If youíve been slacking on exercise...
Forum: General 06-19-2020, 11:06 PM
Replies: 96
Views: 32,394
Posted By Suebee
Larry, glad to hear you got your infusion and it...

Larry, glad to hear you got your infusion and it was relatively uneventful. Nice to hear about your post infusion bike ride too. Iíve been feeling MSy too and worried about my transition from...
Forum: General 06-17-2020, 01:41 PM
Replies: 29
Views: 3,660
Posted By Suebee
Alemtuzumab patients get mild Covid!

Doctors in Spain find that Alemtuzumab appears safe to use as DMD during pandemic. It is a limited study and doesn't appear to address whether it increases chance of infection, but is reassuring. It...
Forum: General 06-16-2020, 08:59 PM
Replies: 4
Views: 459
Posted By Suebee
DIY n95 mask & adult or child cloth mask

Latest mathematical models show masks, even cloth, are significantly protective against covid transmission. Link to article explaining findings in lay person terms:...
Forum: Dave's SCT Journey 06-13-2020, 06:00 PM
Replies: 4
Views: 464
Posted By Suebee
Ocrevous risk, ouch

Yes Dave, I m on Ocrevous too, and I've found the data/comments on its risk for covid over the past month both concerning and confusing. Dr. G's blog is best source I've found but I struggle raising...
Forum: MS Fitness 06-12-2020, 11:52 PM
Replies: 54
Views: 30,830
Posted By Suebee
Heather thanks so much for posting the link to...

Heather thanks so much for posting the link to pons stimulation. It is exciting to see it. I realky think FES could be a key tool that helps rehab MS weakness AND help MSers maintain strength and...
Forum: General 06-11-2020, 09:48 PM
Replies: 3
Views: 368
Posted By Suebee
Wink Not so much as restrictions relax

Great question Dave! I am not comfortable at all here in houston Area
Our cases have been rising since opening up several weeks ago and I think everyone has pandemic fatigue. An alarming number go...
Forum: General 06-01-2020, 01:25 PM
Replies: 29
Views: 3,660
Posted By Suebee
Interferon B as treatment for Covid19 ???

Prof. G at Bart’s in London explains for us lay people how interferon B might help treatment of Covid19.
He posted, “There is a question about whether interferon B can be used for the treatment of...
Forum: General 06-01-2020, 12:51 PM
Replies: 4
Views: 459
Posted By Suebee
Step by step directions Covid19 Prevention

Three U.K. universities have created an easy to use site ďGerm DefenseĒ as a guide to prevent Covid19 infection. It Gives practical evidence based step by step advice for 1) protecting yourself; 2)...
Forum: General 05-21-2020, 06:57 PM
Replies: 1
Views: 476
Posted By Suebee
Wink Interesting article Dave. I wasnt surprised by...

Interesting article Dave. I wasnt surprised by finding that sleep disorders are associated with fatigue. I didnt see if sleep disorders common to People with MS have been defined in order to...
Forum: General 05-21-2020, 11:07 AM
Replies: 4
Views: 459
Posted By Suebee
Misc. COVID19 Tips

I posted "at risk" front door sign to discourage people from ringing door and expecting me to answer.. A sign of economic downturn here, i've had a significant increase door to door salespeople these...
Forum: General 05-04-2020, 09:40 PM
Replies: 29
Views: 3,660
Posted By Suebee
Talking Consider buying pulse oximeter!

Have you all noticed that some doctors have suggested that people consider buying a pulse oximeter as a personal home monitor in case you or your family contracts covid19? This is because covid19 can...
Forum: General 04-30-2020, 09:50 PM
Replies: 7
Views: 1,192
Posted By Suebee
Express 2 hr delivery / Walmart!

Walmart announced Express 2 hour delivery for about 2000 stores across the country for many types of items for a $10 delivery cost. Website says online site will tell you if item is available for...
Forum: General 04-24-2020, 07:19 PM
Replies: 3
Views: 1,087
Posted By Suebee
MS crowd sourced song!

A friend sent me this great video by musician Marie performing her MS Breakup/ love triumph song. She crowd sourced the lyrics to best describe MS as a life partner. ...
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