View Single Post
Old 01-28-2012, 11:14 AM
pawpaw pawpaw is offline
MS Sage
Join Date: Oct 2008
Location: Kentucky
Posts: 208
Default reason for no posts from those not on DMD

I am a gilenya user and the side effects are really not a deal breaker. My max HR is lower and I have to work harder to ride my bike as fast. If I choose not to take DMD, 10 years from now I can't see myself happier that I rode my bike faster but now my brain doesn't work and I have trouble walking.
If you have progressing lesions, you have progressing disability. Our bodies have a lot of duplication and redundancy. Once we use that up, the disabilities start to appear and each new lesion will cause symptoms. You want to stop those new lesions now.
Perhaps the reason there are no posts from those not on treatment is that they have cognitive dysfunction and can't get it together to post.
Reply With Quote