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Old 03-14-2019, 04:29 PM
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Dave @ ActiveMSers
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 4,046

I'm bumping this up as this study features many with progressive MS. The rate is 46%, but that includes RRMSers. The true rate of remission for progressive MS is likely in the 30s, and even lower for PPMS. Not terrible, but enough to give pause for anyone risking life and savings for this treatment.

Also, note that some HSCT protocols have changed, making it safer (no radiation, no high-dose chemo!). But safer also means less effective, especially among those with progressive disease. Some early HSCT pioneers like Sandi Selvi got the full monty. Her SPMS was stopped, but her type of transplant is no longer being done for safety reasons. So the true success numbers for secondary progressive MS performed today may be even lower.

Jump into such a serious treatment with eyes wide open, folks.
Dave Bexfield
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