ActiveMSers Forums  

Go Back   ActiveMSers Forums > ActiveMSers.org Forums > Dave's SCT Journey

Reply
 
Thread Tools Display Modes
  #1  
Old 06-07-2016, 10:05 AM
ActiveMSers's Avatar
ActiveMSers ActiveMSers is offline
Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 3,983
Default HALT-MS Year 5 Update: 70% remain in remission

The just released data from my study: 70% remain in remission, higher than any other treatment for MS. Page two of the Medscape article is most interesting, going into detail about the trial including the adverse events (399), and a question of what to do with the non-responders at year 5. Am I bummed about falling into the 30% category? A little, but that's life with this disease: no guarantees. - D

-------------

HALT-MS: Stem Cell Transplant Durable at 5 Years in MS

NATIONAL HARBOR, Maryland Most recent data from a small, phase 2 study of autologous hematopoietic cell transplantation for multiple sclerosis shows that two thirds of the patients had a sustained remission of disease 5 years after transplant.

Sixty-nine percent of patients met the primary endpoint of event-free survival.

"That's certainly much higher than any other treatment to this point," Michael K. Racke, MD, professor of neurology and neuroscience at Wexner Medical Center at The Ohio State University in Columbus, told Medscape Medical News.

Dr Racke is an investigator in the HALT-MS (High-dose Immunosuppression and Autologous Stem Cell Transplantation for Poor Prognosis Multiple Sclerosis) trial). http://www.halt-ms.org/

FULL ARTICLE
http://www.medscape.com/viewarticle/864443#vp_1
__________________
Dave Bexfield
ActiveMSers
Reply With Quote
  #2  
Old 06-07-2016, 12:39 PM
pushingForward pushingForward is offline
Optimistic Misfit
 
Join Date: Jan 2014
Posts: 14
Default Thanks for the update...

Thanks Dave,

Sucks that you are in the 30%, but as you know, this disease doesn't make anything easy. Glad to see there is something with this high efficacy, but I'm wondering if it will ever become appropriate for those of us that have a less severe version of MS, but still have issues that impact our lives significantly...

Weighing the risks associated with "rebooting my immune system" with where I am now - and who knows where I'll be in 5, 10, 15 years... Feels like I am playing a waiting game, hoping that something more "tolerable" comes along.
Reply With Quote
  #3  
Old 06-09-2016, 04:17 PM
ActiveMSers's Avatar
ActiveMSers ActiveMSers is offline
Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 3,983
Default

Thanks for the note, PF. It is a conundrum, this treatment. Great results, but there is a high price to pay if it doesn't go well. And those odds are pretty high, all things being relative. You have a better chance of dying than getting audited by the IRS, a steep price to pay if your MS is in control....
__________________
Dave Bexfield
ActiveMSers
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 11:02 PM.


Powered by vBulletin® Version 3.7.0
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
ActiveMSers