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Old 07-03-2018, 02:00 PM
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Default Gotta new drug: Baclofen

In recent months my spasticity has been going bonkers, especially with my right leg. Now I just found out it might not be all spasticity (more on that later), but something had to be done beyond my daily stretching, so enter baclofen.

Other than a DMT (currently on Ocrevus) I take very few meds or supplements. Vitamin D (daily), Ambien (as needed) and Viagra (as needed). Fiber chews and stool softeners enter the picture on occasion.

But with my right leg not cooperating, not straightening, and getting stiffer, my neuro said it was time to try baclofen, the muscle relaxer. I started at 10mg 3x a day, which helped some. Tried 20mg, but that made me loopy. So now I'm somewhere around 10-12 during the day, and a slightly higher dose at night. It helps, but only so much.

Do folks have baclofen experiences, advice? I know it's a common MS med....
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Old 07-03-2018, 08:27 PM
Suebee Suebee is offline
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Dave, so sorry spasticity is in your life. I hate this symptom! I think it really qualifies as another type of pain sensation. You gotta try everything and see what works, what dose, what timing etc. I hope it does.

But that said, I did not like baclofen. I found that a dosage that kind of relieved my spasticity made me both loopy AND feeling like Gumby. Not to mention, I thought it caused a sort of rebound effect after my dose wore off. And please, do a lot of research before considering a pump. The pump allegedly gives more consistent dosing etc. But I think it's a last resort, last ditch effort for relief and I'm not sure it delivers it. A couple years ago I read a blog by a man with MS who had a lot of spasticity pain and he diaried his path to getting the pump. It was so heart-wrenching. (I tried to find his diary link but I couldn't locate it on internet.) Please post what dose and timing helps you. I've toyed with idea to get acupuncture... but cost has kept it in the idea stage...
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Old 07-03-2018, 10:03 PM
Grady Grady is offline
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Default Baclofen

I have been taking baclofen at night to assist with sleep. My neuro says all my walking problems are spasticity related and she recommended a pump about 5 years ago. My wife is a nurse and disability case manager and she has seen too many pain pump failures to feel good about me pursuing that option. Not sure the baclofen really helps. I still do my daily stretching since I think that provides more benefit. I tried taking baclofen throughout the day but my employer preferred that I be awake during my working hours!
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Old 07-05-2018, 04:03 PM
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Thanks Suebee and Grady. Still tweaking the dosing. Here's a study on the pump. It's not something I'm considering at the moment, but I have heard from others that it is helpful. I'll keep up with oral dosing and stretching for now....

http://journals.sagepub.com/doi/full...52458510395056
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Old 07-16-2018, 07:10 PM
penkalet penkalet is offline
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Hello Dave, timely question for me because I have been on baclofen for 4 years 20 mg Twice a day specially to help at night. Since Ocrevus my spaticity I think is better and I have try twice in few months to cut the dose in half just to see If I still need it and yes I can tell the difference, big time so I am staying with it. I really have no side effect and I will say that it take a week to feel the full effect. The max dose is 80 mg a day.
I also take 4 Aminopyridine (generic for Ampyra )10 mg twice a day that really help me also . We are all different so we have to try and see. Good luck.
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