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  #21  
Old 01-26-2017, 02:48 PM
Rob Rob is offline
Optimistic Misfit
 
Join Date: Jan 2015
Location: Michigan
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I finished a six-week set of weekly acupuncture treatments. No help for the hug. I thought the fatigue was maybe getting better until my Tizanidine went up. So, no telling right now until the dose changes, (my Neuro has scheduled), level out. Then maybe try again.
Yesterday I had an apt w/ a PM&R Dr. that specializes in MSerís, @ U of M. I was so geeked about this as my MS specialist said this is The Guy. Basically he told me Iím SOL. ďYouíre already doing the exercises and taking the drugs that I try to get other patients to do. With spasticity, it is constant, and everything you do to help will be temporaryĒ.
I told him, I had reading about people getting Botox in the intercostals and he had heard of this too! Although w/ out a protocol they wouldnít know how. He is to search for information on this and get back to me in two weeks, or I am to call. IF they find it the next thing would be to get Ins. to pay for this. Iím not holding my breath on either one.
The only other thing he suggested was MMJ. Yaíll told me but, still I resist. Iím thinking about considering this! LOL
I really need to hear from everyone, HOW debilitating the Hug was before mmj. Please.
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  #22  
Old 01-27-2017, 12:56 PM
Rob Rob is offline
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Join Date: Jan 2015
Location: Michigan
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Yes, that is interesting. I've never heard of the med's contributing to the pain they are supposed to help. Thanks, Susannah.

Last edited by Rob; 01-27-2017 at 12:57 PM. Reason: spelling
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  #23  
Old 01-27-2017, 08:34 PM
Suebee Suebee is offline
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Join Date: Mar 2015
Location: Houston, TX
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I had similar experience with anti-spastic drugs and I decided it wasn't rt for me.
For me, there seemed to be rebound effect sometime after the half life for the drug. I would get more severe cramps as my drugs wore off. It was a catch 22. and very disappointing. There are earlier threads on this forum of people describing the supplements they have found helpful for spasticy.

Gary and others considering MMJ who require employment. I think it is criminal that anyone has to choose between pain and a federal law but I'm sure you are all aware there are significant legal risks by using MMJ. The last administration turned a blind eye so to speak and chose not prosecute, but with the proliferation of legalized commercial outlets in some states, and the new administration's current stance, it should really give everyone pause. Here in TX it was just announced that the agency in charge of regulating teachers sought to suspend or terminate a TX teacher who had ingested marijuana in Colorado. The administrative judge determined it wasn't warranted (after many years and lots of attorney fees), however, this is not the end of the issue, it will surely be appealed or come up in different matters. Also, even in states with legal pot, private companies could make an argument that they are following federal law and if their employee uses MMJ, they are gone.

https://www.nytimes.com/2017/01/23/u...rado.html?_r=0

Be careful. Advocate for changes.
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  #24  
Old 03-04-2017, 05:00 PM
Rob Rob is offline
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Join Date: Jan 2015
Location: Michigan
Posts: 22
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Last month I was ramped up to 6mg Zanaflex 3x/day. As it went up I didn't see any benefit. When I hit the full dose my pain increased immediately. I'm back off it now, thanks in part to this tread. I'd have never thought the pain was from the med, if it were not for you guys, Thanks.
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  #25  
Old 03-28-2017, 08:04 AM
Rob Rob is offline
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Join Date: Jan 2015
Location: Michigan
Posts: 22
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Iíve read about the MMJ program here in Michigan. I was told about this site, www.leafly.com and have been learning. Any other suggestions on where to find information?
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  #26  
Old 04-28-2017, 11:54 PM
Rob Rob is offline
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Join Date: Jan 2015
Location: Michigan
Posts: 22
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So fast forward from my Jan 26th post. Botox Ė Well the PM&R Dr. found some papers, submitted to my insurance company, who quickly denied the treatment. Iím currently appealing & my MS specialist wrote a letter in support of the appeal however, still not holding my breath. The ONLY other idea the MS Dr.ís from U of M's MS Center had was to write an order for a TENS unit, to try to fake out the nerves. Iím currently waiting on that.
So, Iím coming over to the green side. I submitted my paperwork this week to get a MMJ card.
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  #27  
Old 04-30-2017, 09:18 AM
Sparky10 Sparky10 is offline
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Join Date: Aug 2012
Location: Iowa!
Posts: 128
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Just read this thread with interest, but have nothing to offer as I do not have this terrible hug. Nothing to offer till Rob asked about other places to learn about medical mj. Only place I've ever heard of to learn from is NORML. For Rob, specifically for Michigan: http://norml.org/legal/item/michigan-medical-marijuana. MS is not listed as a qualifying condition but chronic pain is.

I'm so sorry you folks are dealing with such an awful symptom.
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  #28  
Old 05-07-2017, 09:58 AM
Rob Rob is offline
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Join Date: Jan 2015
Location: Michigan
Posts: 22
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Sparky10 thanks for the info. This has been helpful.
Update: Will wonders never cease. The insurance company has approved the Botox injections! I go the end of this month.
I'll update you all on the TENS, Botox, & MMJ, (I'll do one thing at a time). Maybe May will be my month. This has been a long time coming. I'm optimistic, scared, excited. One or a combo of these three is going to help, or not however, I going to find out over the next couple months.
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  #29  
Old 05-08-2017, 05:06 PM
Suebee Suebee is offline
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Join Date: Mar 2015
Location: Houston, TX
Posts: 472
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Rob, that's great your insurer came around about botox. I hope it helps you!
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