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Old 03-01-2018, 05:14 PM
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Default Plan I is official: Ocrevus

My insurer approved Ocrevus! (Probably a smart idea given my history.) Not sure if it will be a step up or a step across from Rituxan (both are very similar) but it's worth a go. Even neuros aren't sure, as there is a debate on this exact topic in the recent issue of Multiple Sclerosis Journal (paid access).

http://journals.sagepub.com/doi/abs/...52458518760717

Controversies in Multiple Sclerosis

Rituximab is an acceptable alternative to ocrelizumab for treating multiple sclerosis – Commentary
Bruce AC Cree
Mult Scler
Feb 22, 2018 | OnlineFirst

Rituximab is an acceptable alternative to ocrelizumab for treating multiple sclerosis – No
Mitchell T Wallin
Mult Scler
Feb 22, 2018 | OnlineFirst

Rituximab is an acceptable alternative to ocrelizumab for treating multiple sclerosis – Yes
Fredrik Piehl, Jan Hillert
Mult Scler
Feb 22, 2018 | OnlineFirst

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Old 03-03-2018, 12:34 PM
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My first of three scheduled infusions is Tuesday. I'll get another in two weeks, and then a third full dose in six months....
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Old 03-03-2018, 07:24 PM
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Great to hear! I’m thinking your insurance company doesn’t want to tangle with you again! Good luck!
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Old 03-04-2018, 11:03 PM
Lmh Lmh is offline
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Default Ocrevus

Great news Dave!! Wishing you the best.
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Old 03-06-2018, 07:28 PM
penkalet penkalet is offline
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Great news! I really hope that it slow the beast.!
I think it is helping me.
Alain
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Old 03-06-2018, 07:41 PM
MSLazarus MSLazarus is offline
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Default Wouldn’t it be wonderful?

Rituxan has been good for me and I hope Ocrevus will be good for you. Having hope is a precious state of being.
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Old 03-08-2018, 11:21 AM
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Even if there is not much difference between RTX and Ocrevus, I hope the placebo effect is good enough to give me bump. In the hours afterward I felt pretty darn good, and then remembered I was also given 100mg of a steroid as a pre treatment. So that burst that bubble, ha!
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Old 04-17-2018, 11:49 AM
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A bit over a month on Ocrevus and so far so good. Don't feel crummier, which is a plus. No side effects from the med, at least none that I've noticed. A little sleepy on day one, but that was the Benadryl.

My spasticity seems a touch calmer. Other than that, feel pretty status quo. Will update again in a bit....
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Old 05-18-2018, 05:02 PM
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Hmmmmmm. My MS appears to want to keep chugging. My timed 25-foot walk from this time a year ago was about 10 seconds, pretty slow. (The average person can do it in under 4 seconds. If you take over 8 seconds your disability is rather severe.) My latest test earlier this week? Turns out I am faster than a sloth (2 meters in a minute), but not much. It took almost 60 seconds! I am hoping I was just having an epically bad day--my spasticity was rocking. But still, yikes.

Average Pace: 3 Hours 21 Minutes per mile
10.13 Seconds Per Meter
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Old 05-19-2018, 08:45 PM
MSLazarus MSLazarus is offline
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Default The timed walk

I never asked what time was desireable.. I do it in 8 seconds and my neurologist always seemed quite satisfied. I do it because I take ampyra and the test is required. When I started the ampyra my 25’ walk took 10 seconds.
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