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  #21  
Old 11-05-2014, 10:56 PM
Veronica Veronica is offline
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Hi all:
HUGE milestone for me on Monday. Got back on the treadmill to do the Collapse Point Walk and walked nonstop for 35 minutes covering 1.052 miles.....Be it on a treadmill or on the ground I have not walked non stop for 35 minutes in years.....and I really cannot remember the last time I walked a nonstop mile. I am using a treadmill that has the cross training feature so I can pump my arms as I go and I think this is very important to help me get the natural swing of the arms back. I have alot of work to do on my form when walking "in the real world" but I am so happy for having broken the 1 mile marker.... Herb had set a target of 1.6 miles for the collapse point walk for me in six months from when we started this, so I think I am well on target. Six months would be February....
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  #22  
Old 11-06-2014, 11:15 AM
teena marie teena marie is offline
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Hi all,

Veronica,such fantastic news. Arm swinging is key, in my opinion. I practise a few exaggerated steps in the pool,really thinking about a big X connecting shoulders and hips,right and left. My left hip and shoulder don't swing with ease. I think there's some spasticity there. I love the term collapse point walk.I've experienced it of late walking out of work in my severely overheated building!

For me, walking is all about the pelvis being able to move smoothly. Incidentally,I've introduced Kegel exercises to improve some bladder control. It's helping access some deep core muscles that attach to the pelvis. This in turn helps with lifting the legs.

It's also about keeping the core cool. Yesterday, I brought my ice vest to work and put it on 30 minutes before leaving. What a huge help and what a difference.

Take care all,

Teena Marie
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  #23  
Old 11-07-2014, 03:55 PM
AMFADVENTURES AMFADVENTURES is offline
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That's really cool Veronica and it's encouraging. I'm sure you and TM are right about the weight bearing aspect of walking, there is undoubtedly more neuromuscular activity involved which leads to faster fatigue and probably slower recovery, particularly among all of those stabilizing muscles which are required for balance. But your ability to reach new heights certainly shows that there is hope through training.

I've done a couple of walks myself recently. The first one was a half hour on a relatively flat gravel trail. I like the gravel because if I happen to drag my foot a little, it's less likely to trip me up. At the end I added about 15 minutes of walking across a deep grassy area. It forced me to pay attention to lifting my foot no matter how awkwardly, but it definitely ended up being a collapse point walk. Spasticity is a big problem that I can only partially overcome with a huge effort.

A couple of days later I did a 30 minute walk at as fast of a pace as I could. I used a single pole but, except for a handful of slightly off balance moments, hardly needed it. I was pretty trashed afterward but seemed to recover by the end of the day.

On my walks, I find keeping my upper body well centered over my hips key to a more normal gait. I'm also concentrating on heel strike and keeping it on a relatively narrow walking line. It's a lot to concentrate on but it seems to help my gait, hopefully endurance will follow at some point.
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  #24  
Old 11-08-2014, 01:00 PM
teena marie teena marie is offline
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Sounds like you're on the right track, Larry. I agee,it's a lot to concentrate on. But, I believe by breaking it down into parts, we will keep discovering the nuances of our body.

A few thoughts.
The effect of gravity has a huge influence on endurance and walking.
Being able to successfully transfer weight from side to side requires pelvic stability.

To help with my exploration and understanding, I google search muscles used in walking, effect of gravity on the nervous system, effect of gravity on walking, etc.

I continue with sporadic walking visualizations. I also try to move hips and shoulders to music, such as my favorite Jimmy Cliff song You can get it if you really want.

Keep up the amazing explorations.

Teena Marie
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  #25  
Old 11-11-2014, 01:24 PM
AMFADVENTURES AMFADVENTURES is offline
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Hey TM, yes, there is no doubt that concentrating on movement and the nuances involved is helping. The next trick will be turning it into a more automatic response which might just be a "practice makes perfect" scenario. Time will tell.

I've also been looking into the process of movement from a neuromuscular physiology point of view. So far I've found out that it's an incredibly complicated system of conscious and unconscious neural impulses and feedback loops driven by equally complicated neural input from our senses. Throw some missing myelin, dead neurons and weak muscles in there and it's absolutely amazing that we're able to do the things we can and even more encouraging that we frequently seem to be able to improve on them. It's all way over my head but, with some luck, maybe a little insight will eventually come of it.

It's a shame there's not more research on PWMS going on in this area. Seems like we should be past the point of 'this or that exercise actually helps PWMS' and on to more of the detailed what and why of it, and how to make it even more effective. - just a thought

Take care,
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  #26  
Old 11-18-2014, 10:37 PM
Veronica Veronica is offline
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Hi all: Ok, first an update on the Walking Saga: I saw Herb last week and we discussed my collapse point walk of a mile, and then my having done "linked" collapse point walks. Conclusion: the linked walks really are NOT what I should do, as I fatigue out earlier, and ultimately don't "go the distance"....It is just what he has always said to me: Do intermittent exercises, with rests before I feel the need ....keeps the fatigue in check and ultimately gets me to go farther. It is what he had me do to get back to biking....it works.....so I am listening to him.....

What he changed: Now I do what he calls an Interval Collapse point walk. This is 4-5 minute walks with equal recovery, and repeated to collapse point ( and again, that doesn't mean fall down collapse...just to a point where I cannot stay in good form) I am to do this weekly, in addition to the intermittent training of walking in segments of 9,7,6,6,6 minutes with 4 minute rests between. I spoke to him about walking "in the real world" vs. the treadmill, and he said that while he wants me to do walks outside on a relatively flat surface when weather permits, I gain alot from the treadmill in terms of setting my "form".....muscle memory stuff..... Concerning increasing the grade on the treadmill to better simulate outside walking, I am to add just .5%-1% grade for 30 seconds at the end of each intermittent walk section. Some may see this as incredibly complicated, but it really isn't and I so see the improvement. Not just on the mill, but throughout my day when walking....it takes fatigue just a little bit longer to show up... I did my first Interval Collapse Point walk on Sunday ( 5 mins walking/5 mins resting) and got in 40 minutes and a bit longer than a mile distance. And I wasn't totally wiped out after. While I have experienced this progress in terms of the biking, it is still very shocking to me to see that I am progressing as I am with walking.

Larry, concerning your thought about more effective exercise programs for PWMS.... the research is going on, and it over and over again shows that to be optimally effective, an exercise regimen for us needs to be very individualize focusing on each of our individual deficits and weaknesses... and it needs to take into account the fatigue factors and thus be of an intermittent nature....

I'll get off my soapbox now...

Be well everyone!
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  #27  
Old 12-02-2014, 12:32 PM
teena marie teena marie is offline
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Hi all,

Veronica, it is so wonderful you have such a great physiotherapist. The video posted by Dave was great. I dream of working with someone like that. Could you ask him which stretches he recommends for the calf muscles?

Many thanks,

Teena Marie
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  #28  
Old 12-27-2014, 11:47 PM
allanmiller735 allanmiller735 is offline
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First I want to say how much I enjoy this blog. It's a very positive environment.

I've started using two canes, but I find I'm uncoordinated. I get confused. I really prefer one cane. I feel more organized. But with one cane it's hard not to lean forward or to one side. I've got three different styles of hiking poles. They all work well. A bit better than two canes.

They best by far is a rollator (4 wheeled walker). I bought a Volaris Smart Patrol Rollator with ten inch wheels. The frame flexes on rougher ground. Designed in Sweden. Worth the money.

I also bought a Volaris Smart Rollator which is the same but with eight inch wheels. More suitable for indoor and outdoor and general use. If you only buy one you don't need the Patrol.

On the first day with the Volaris Smart Patrol Rollator I went 1.8 km. On the day m 2.2 km. I was astonished at how using a rollator improved my balance, stamina, and confidence.

With regard to stairs, backwards like a ladder is best. If you fall you'll fall forwards towards the steps. Easy to recover. And your toes are on the steps, not your heels.

Best wishes to all!
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  #29  
Old 12-31-2014, 02:54 PM
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Thanks for the stair advice, Allan. And that all-terrain rollator looks sweet. Have you tried forearm crutches? They are far more stable than two canes and best trekking poles for support....
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  #30  
Old 01-10-2015, 01:55 PM
Veronica Veronica is offline
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Hi all: I've gotten myself back into a treamill routine again and see that I actually lost a bit of ground(so to speak) with my goofing off during December. I am confident that it'll come back to where I left off if I apply myself... really surprised me that I got winded after about 15 minutes! Have gotten it back up to about 18 minutes in collapse point walk....a far cry from where I was back in the fall....about 35 mins or so... I have learned my lesson!! What's the expression? "Use it or lose it?" Ain't gonna happen here....... and just for a laugh, when I first got back on doing a concentrated time on the treadmill, my cat came into the room, kept looking at me and yowling as if he really wanted to tell me something, then JUMPED onto the tread and promptly flew off the back.... Don't know WHAT he was thinking!!
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