ActiveMSers Forums  

Go Back   ActiveMSers Forums > ActiveMSers.org Forums > General

Reply
 
Thread Tools Display Modes
  #1  
Old 07-13-2008, 05:37 PM
Angel@ Angel@ is offline
Junior Member
 
Join Date: Jul 2008
Location: The Netherlands
Posts: 28
Default what kind(s) of meds do you use?

hey all,
I was wondering if you want to share the meds you're using to help you deal with the effects of the MS.

I myself use avonex injections. started with it after my second relapse. been on them since okt '06.

for the rest I only use paracetamol when I need it.
ow..and had 3 times prednison (3x1000mg)

greetings
Angela
Reply With Quote
  #2  
Old 07-14-2008, 04:27 PM
ActiveMSers's Avatar
ActiveMSers ActiveMSers is online now
Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 3,415
Default

I'm on Copaxone. I like the fact there are basically no side effects, except for the daily hassle of injecting yourself. All the DMDs work at about the same level, so Avonex, Betaseron, and Rebif all get the thumbs up, too.

The only supplement I take for MS is fish oil, as there is some slight potential evidence it may be beneficial and the odds of it hurting me (physical or in the wallet) are pretty darn low. The only downside: the occasional fish belch.

For sleep, melatonin. For the colon, a stool softener. People with MS are at a higher risk for colon cancer (e.g., Richard Cohen) due to hard stools. So my neuro said to start taking a softener daily.

I used to think talking about stools was difficult, but when you read about stool samples in a Get Fuzzy cartoon (Bucky called a furniture store asking to see one; they were nonplussed), I've found it can be entertaining as well as educational. Okay, maybe not that entertaining. I do have a strange sense of humor.
__________________
Dave Bexfield
ActiveMSers
Reply With Quote
  #3  
Old 07-15-2008, 09:44 AM
Angel@ Angel@ is offline
Junior Member
 
Join Date: Jul 2008
Location: The Netherlands
Posts: 28
Default

Quote:
I used to think talking about stools was difficult, but when you read about stool samples in a Get Fuzzy cartoon (Bucky called a furniture store asking to see one; they were nonplussed), I've found it can be entertaining as well as educational. Okay, maybe not that entertaining. I do have a strange sense of humor.
07-13-2008 09:37 PM
loving the humor

I'm ok with the avonex as its "only" once a week and they leave little marks on the body.
wouldn't feel happy with needle marks and maybe sore spots on my legs

girls more ofter then boys have "trouble" going to the toilet so I try eating healthy. whole wheats an plums with yoghurt for breakfast and stuff. seems to to the trick

fish oil isnt a bad idea. good for the brains too, right?
Reply With Quote
  #4  
Old 07-17-2008, 10:53 PM
cochrajk cochrajk is offline
Member
 
Join Date: Jul 2008
Posts: 38
Smile

I am about to start Copaxone. I take CoQ10 that I think helps with headaches/TN. I also take melatonin for sleep, as well as fish oil, a multi, and calmag supplement on days I feel like taking my vitamins too.

Most days I simply forget (which is a shame because vitamins cost so much money these days...) The fish oil I have learned to take with food...or else very very fishy. Uck!
Reply With Quote
  #5  
Old 07-18-2008, 04:12 PM
ScottK ScottK is offline
Junior Member
 
Join Date: Jul 2008
Location: Albuquerque, New Mexico
Posts: 20
Default

I am in a study combining Copaxone and Avonex.

I am pretty sure I am getting Copaxone. I get the general swelling after taking that shot. But I am not sure about the Avonex. I don't get the flu or crummy symptoms others seem to complain about with it. I have to be indifferent about it, because the idea that I am stabbing a 1.5" needle into my thigh muscles once a week with sugar water just doesn't sit right with me.

I need to start taking fish oil again. I used up all the gel capsules I had and have been meaning to buy just the oil. From the numbers I have seen the raw oil has 4x as much punch compared to the gel capsules. And I read good things about Ginkgo Biloba.

Last edited by ScottK; 07-18-2008 at 04:15 PM.
Reply With Quote
  #6  
Old 07-18-2008, 04:23 PM
Pat Pat is offline
Junior Member
 
Join Date: Jul 2008
Location: North Carolina
Posts: 6
Default Meds

I am not taking any prescription drugs just now. I was told to take the daily shots but knew that I would lapse more than once so opted out. I take the fish oil, melatonin and am now drinking a lot of organic raw milk and eating raw honey - seems to help me, especially the raw milk. I take Aleve when necessary and schedule regular massages. Acupuncture helps too - when I can afford it! Gin and tonic works well!!!
Reply With Quote
  #7  
Old 07-18-2008, 04:33 PM
Angel@ Angel@ is offline
Junior Member
 
Join Date: Jul 2008
Location: The Netherlands
Posts: 28
Default

Quote:
I am in a study combining Copaxone and Avonex.
ok. hmmm. is that then 3 groups. one with avonex, one with copaxone and one with sugar water? brrr. hope thats its not the last one.

but doesnt copaxone needs to be subcutane? so.. not in the muscle?
love to hear more,
greetings, Angela
Reply With Quote
  #8  
Old 07-18-2008, 05:19 PM
ActiveMSers's Avatar
ActiveMSers ActiveMSers is online now
Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 3,415
Default

Pat, a gin an tonic? Perfect! One of my many vices. My favorite gin is Martin Miller's from London. It is so good, tonic isn't even needed. Floral, smooth, and worth the $30. Here are some tasting notes.
http://www.oddbins.com/products/prod...ductcode=13200
__________________
Dave Bexfield
ActiveMSers
Reply With Quote
  #9  
Old 07-18-2008, 05:54 PM
ScottK ScottK is offline
Junior Member
 
Join Date: Jul 2008
Location: Albuquerque, New Mexico
Posts: 20
Default

Quote:
Originally Posted by Angel@ View Post
ok. hmmm. is that then 3 groups. one with avonex, one with copaxone and one with sugar water? brrr. hope thats its not the last one.

but doesnt copaxone needs to be subcutane? so.. not in the muscle?
The study has three groups: one getting copaxone and placebo, one getting avonex and placebo, and one getting both.

I am simply basing my assumptions on the side-effects people get for each drug.

Yes, you are correct, copaxone is only under the skin, so it is not bad at all, a few stings from time to time.

The avonex is what sucks. You have to put it pretty deep into your leg. They say your shoulder muscles are fair game too, but I have never tried it there. I have had two occasions now when I got into the muscle, it flexed involuntarily. The first time was a little sore, but the second time the contraction didn't let go for a few seconds. That muscle was sore for a few days.

For me personally, I have to relax quite a bit before taking that shot. I usually will rub the leg nice and deep to get the muscles loose and any stress that I have been building up from the day. It has been a little over a year now taking it, so it isn't all that bad, just worse than the copaxone shot by comparison with my preparation method and all.
Reply With Quote
  #10  
Old 07-18-2008, 06:05 PM
ActiveMSers's Avatar
ActiveMSers ActiveMSers is online now
Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 3,415
Default

The study Scott is on is testing Avonex and Copaxone combined (sponsored by the NIH). So to keep it blind, everyone has to take 8 shots a week.

50% get both drugs, no placebo
25% get just Copaxone and a weekly placebo
25% get just Avonex and a daily placebo

So 50% of the group is taking some sort of placebo and shooting up with sugar water. But at least everyone is on at least some sort of therapy....
__________________
Dave Bexfield
ActiveMSers
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 11:03 AM.


Powered by vBulletin® Version 3.7.0
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
ActiveMSers