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Old 10-08-2018, 08:23 AM
Marinadca Marinadca is offline
MS Whisperer
Join Date: Apr 2010
Posts: 324

Hey All - it has been forever. To be honest I have not been a very active MSer and this has really had a pretty negative mental effect of me so I have been avoiding many of my usual places.

I feel like I am turning a bit of a corner, and my improvements seem to coming a lot more readily. (I hope). So I am OFF the crutches and any kind of walking aid. I am walking my "short" circuit -1.3 miles at a slower pace then I am used to but its happening. I am still using an upright gym style bike - I am up to 20 minutes with the resistance up a bit. So all in all, things are getting there but painfully slowly.

I had a bit of drama with my PT, a few times during my rehab she seemed to have a basic misunderstanding of how my MS effected my gait/recovery. Long story short, I am at a different (out of network so much more expensive to me, but of well) clinic, it is more geared to athletes (which I am not) but after 2 sessions there so far I am sure it will be the right place.

Veronica - I am so pleased to hear you are doing BikeMS NYC!!!!!! I am so happy for you that you have gotten some things back, its beyond awesome.

Larry - I wish I knew why walking was so tiring! My max is around 3 miles (well before the surgery) and my legs would feel more tired then riding 50 miles! I hope you are feeling better and back to yoga soon.

Teeny - glad to see that you are seeing small but consistent gains. Going back inside it always a trial!
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