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Old 05-28-2020, 11:24 AM
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Default Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions

DEMYELINATING DISORDERS (J. BERNARD AND M. CAMERON, SECTION EDITORS)

Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions
Rebecca Maguire & Phil Maguire

Abstract

Purpose of Review
In spite of recent advances in treatment, many people with multiple sclerosis (MS) require ongoing care and support. Informal caregivers can experience burden as a result of their role, with possible implications for quality of life (QOL). We review recent research examining MS caregiver experience to (1) understand current risk factors for caregiver burden and (2) identify possible strategies for increasing carer well-being.

Recent Findings
MS caregiver experience is highly variable and can be predicted by a variety of care recipient, caregiver and contextual factors. Burden is not the only characteristic associated with care, with positive consequences also reported. Emerging research suggests a number of ways in which carers can be better supported.

Summary
Identifying and meeting the needs of MS caregivers offers the best way of delivering tailored support. Future research should focus on the development of psychosocial supports, while acknowledging the needs of those caring for different MS patient populations.

FULL ARTICLE (PDF, FREE)
https://link.springer.com/content/pd...20-01043-5.pdf
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