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  #61  
Old 08-13-2018, 12:54 PM
Marinadca Marinadca is offline
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Just a quick update on myself as I hate it when I'm following someone story and they stop posting.

I had my surgery on July 20th, and the recovery has been better than expected but also it is extremely slow and thanks to my balance issues I'm more often using my walker then my crutches when I get tired, which is often.


For now the only bike I'm no is an upright exercise bike, I'm not allowed to be on a very much but so far I'm up to 1 mile in a little under 7 minutes. So I guess there's nowhere to go but up from here.

Marina :-)
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  #62  
Old 08-15-2018, 03:25 PM
Veronica Veronica is offline
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Join Date: Mar 2013
Location: Columbia County, NY
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Marina: THRILLED to read the update. Yup, I've been wondering how the rehab is going. Sounds like you have the right attitude...doing what you need to do, knowing it'll take time but that you ARE progressing. Well, look at the slight bright side...it got you back on an upright bike for a bit!

I came on the forum just to say that....I get out riding when it isn't pouring rain, thundering, or ridiculously hot and humid....which hasn't been much these past three weeks! But I have grabbed some good rides. Just waiting for a day when I am free to ride, and the weather agrees for the entire day to go get a nice long ride in.It'll happen SOME day...............
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  #63  
Old 08-18-2018, 01:32 PM
teena marie teena marie is offline
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Hello all,

Marina, admirable work and attitude. Does it feel good that surgery is now behind you? I am also curious to know how the anesthetic affected you.

As usual, amazing, inspirational work by everyone. Although I don't post often, I check in regularly.

Strength and endurance continue to increase. Walking with my sticks was amazing in June with glacier, cold water in my pool. Unfortunately, he heat has been phenomenal with water temperatures at 80 degrees. For me, the best effect is achieved at 64. I have also had some challenges with my left hip not supporting me. Recently, acupuncture and Chinese osteopathy has helped enormously. The next step will be to have me upright, supported by 2 strong trainers, who will walk with me and at the same time, there will be several acupuncture needles in my spine to open things up and increase the energy flow. It all feels good and with the recent addition of CBD oil, spasms are practically non existant.

My regular work with trainers was sporadic with the summer season, but soon to be back on track.

Take care all and several of you have big events upcoming so looking forward to the posts.

Teena Marie
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  #64  
Old 08-20-2018, 06:17 PM
penkalet penkalet is offline
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Join Date: Apr 2010
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Good to ear from you Ladies and I have a question for Marina or anyone that got a surgery in the past.

I am going to have a hip replacement on the leg not too affected by MS and was wondering if we have more chance to get a relapse or pseudo one when the body is stress?

Other wise I am riding couple time a week again for a good hour now that all that smoke as dissolved. I also try to walk every day 20 minutes on the morning and 10 on the evening.
Best wishes to everyone.
Alain
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  #65  
Old 08-23-2018, 01:07 PM
AMFADVENTURES AMFADVENTURES is offline
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Join Date: Sep 2009
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Guilty as charged Marina, I've definitely been AWOL for too long, thanks for the call out! Glad to see you are on the road to recovery, hope you are being good to yourself.

I finally had to give up almost everything. I kept reinjuring my back at yoga, I could bike but only short easy rides, the weight room wasn't helping my back either so finally I just took a couple of weeks off from all of it. When I started back up I started with the elliptical, it didn't seem to stress my back. I've also been riding a fair bit the last few weeks but trying to keep it relatively easy, no weights or yoga.

The training program I was following probably wasn't right for someone my age. I only got a little over half way and would have needed 6 to 10 more weeks to get me in shape for the triple bypass, although had I not injured myself, I'm sure I could have gotten over the first two passes. I'm afraid I haven't figured this ageing thing out, much less ageing with MS. Seems I may need to slow down a little though.

Good to hear from you TM and good to see you are making progress. Hope you're having some fun up there too!

I like the idea of walking a couple of times a day Alain, I'm going to try to incorporate something like that too, and yeah, the smoke around here has been bad enough to keep me inside sometimes.

I really love reading about all of you E-wheel trikesters! You guys are definitely starting a trend! Looking forward to hearing a LOT more!

And Ellie, good luck with your tri training, so far it looks like you're knocking it out of the park!

Going out for a ride now, catch you all later,

Larry
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  #66  
Old 08-25-2018, 05:01 PM
AMFADVENTURES AMFADVENTURES is offline
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Quote:
Originally Posted by teena marie View Post
Hello to all,

I love all the posts and a big thank you to Dave for making these exchanges possible.

Recovery continues. Presently, working at my local Y with 3 exceptional trainers 4 times a week. Also, in the pool 1-3x weekly. Standing straighter, taking a few steps, back at work and just had an interview for an interesting research job on the use of medical marijuana. So, I would have to say, I am so grateful and give thanks to the universe for my life.

Take good care all and congratulations to all for the hard work and perseverance.

Teena Marie

TM, I went back and found this post, I remembered you had said you might get involved in cannabis research, wondered if the CBD oil you mentioned in your last post was involved?
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  #67  
Old 09-26-2018, 03:04 PM
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ActiveMSers ActiveMSers is offline
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It appears either everyone is taking September off, or we've all been cranking it so hard, no one has had time to post. So I'll go first.

My fitness adventures have included a mix of home, trike and gym workouts. A wrist tweak slowed me down for a week as I finally had to take a break from my arm bike and let it heal (no clue what I did). Managed to set a couple PRs the other day and with cool weather in the forecast—only 69 today—getting outside is turning more enjoyable.

Updates from others??
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  #68  
Old 10-02-2018, 03:23 PM
Veronica Veronica is offline
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Ok, ok, "Pa".... I have been guilty of just not posting these past several weeks. Been continuing to LOVE my new ( or REnewed) ability to just ride where I want to, and at a happy pace.

I broke 300 miles since I got the assist ( mid June..) on Sunday. I added up my rides from the past two years and they didn't add up to that! So, for me, it is a momentus accomplishment.

We had our local ride a week ago Saturday and I told them I would be the Sweep for the 18 miler. Was originally gonna do the 25 route, but (1) we needed a sweep for the 18 miler, and (2) there was one hill on the route that is very short and steep and turns a corner where it has, like skiing, a double fall line and I just didn't want to deal with it at Mile 19 of that route. So I happily did the 18 with my Usual Buddies. One is very comfortable with hills, and the other two " Not so much".... Usually Sean is the one that would "guard" me on my non electric rides, and would walk behind me up those hills, much to my regret. Well, we laughed as he AGAIN walked up the steep hills, but for his own reasons this time!

The assist worked beautifully, still gave me a great workout. And I was able to stop and just wait for some of the stragglers ( that was me the past 5 years...) and then easily catch up with my buddies. Felt good that I was able to look after other riders for a change.

AND It was SO enjoyable to not be walking totally wonked out at the end as I did before. With the assist, I still have some reserve. Legs were getting fatigued, but with my trekking pole I was still able to walk around the park for the Post Ride events. SUCH a good feeling.

I have decided to again do BikeMS NYC on October 21. I "booked" in with a friend who lives 45 mins north of the city for the night before, so that I then only have to get up at 4:30am to get down to West Side HWY in Manhattan by 6ish... I have to say that I am really getting pumped about doing that ride around Manhattan again, and this time NO WAY no stinking bus is gonna get me!

Been a bit remiss in trying to get some hikes in. Some of that is the summer that we had, some was that I would rather ride, and some was just not pushing myself. Whatever.... not gonna beat myself up for it. My baby brother and wife are coming in a few weeks and I plan on taking them to the state park nearby where I did some hikes last year. At least I will get a little time there...not much distance, but as I said about ..."whatever"....

Yoga has also been hit or miss with me, as I am just getting over a cold that has lasted three weeks...hard to go to Yoga when you are coughing and can't breathe thru your nose.... Did some on my own at home, but I know I need the structure of the class. Still hate that it is at 8am on Mondays!

It is an Always that I do my stretching and balance work very regularly, and some strength training. My PT had me add an exercise to help me climbing stairs as I noticed that I have started to hike up my right hip to climb instead of lifting the leg. It seems to be helping a little so far. Actually is an exercise he gave me awhile ago, that somehow fell to the wayside.

So yeah, some really good exercising going on here with rides, and some goofing off on other things...

Now, I am starting to gear up for ski season.. I booked in for the Steamboat STARS adaptive camp again in early January where I will again be able to use the iSkiBike. Really looking forward to honing my skills on this... I am very happy that I have gotten my local mountain to agree to allow the use of skibikes that are self loaders. Now I just have to GET one! The adaptive program that I ski with there only has the older models where you need to dismount, and carry it on the lift with you. I'm not worried, have some plans to get this equipment one way or the other!
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Last edited by Veronica; 10-02-2018 at 06:29 PM.
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  #69  
Old 10-04-2018, 04:15 PM
AMFADVENTURES AMFADVENTURES is offline
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Still in the saddle here. I seem to be getting 75 miles in one week and 100 the next. It's been going like that for a couple of months. I get my HIIT's in on the short hills, usually a hand full or so per week.

Had to drop my yoga sessions because of a back injury but have been doing selective yoga exercises at home, enough to stay stretched out anyway. The back's a lot better now so I could probably start back up on yoga pretty soon.

What I really need to do though is get back into the weight room! I've been sorely negligent there and I know I will feel soooo much better when I finally do.

I've also been concentrating more on walking and my walking has improved, quite a bit actually! Although, I still haven't managed to break the 2 mile barrier. What is it about walking that is so fatigueing?

I'm also committed to skiing this year Veronica, on a ski bike. I have no idea how to get it up the mountain but I suppose all will be revealed in time. That thing looks hellish fast! When I asked what they would allow - flips, jumps, spins, stuff like that - all they said was that you couldn't take it on the mogul slopes. Yee Haw!

Off to a fiftieth year high school reunion this week. Say What??? Good grief, how did I get this old? I feel like I'm the oldest guy I know!

Hang in there all,
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  #70  
Old 10-04-2018, 06:46 PM
teena marie teena marie is offline
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Hi to all,

A very late reply to Larry. The use of CBD oil is not related to the research job for which I applied last winter. I declined it because it was full time and I already have some other work. I just posted on my positive experience with the spray http://thehydropothecary.com/products/elixir.

Training is picking up. I am getting tremendous improvement with my hip. My Chinese treatments continue to be amazing and with better alignment and less pain and spasms, I feel like the strengthening exercises are finally paying off. Walking very little but feel it is within sight.

Outdoor swimming is over and psychologically it's hard to return to the Y but I hope to return this weekend.

Hugs to all you amazing inspirational people,

Teena Marie
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