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Old 03-05-2020, 05:44 PM
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Dave @ ActiveMSers
 
Join Date: Jun 2008
Location: Albuquerque, NM
Posts: 4,069
Default Plan J? Well, sheeet...

I've been on Rituxan/Ocrevus for the past several years. And since I have SPMS, treatment options are limited. Just had a pow-wow with my neuro about other options—Plan J, attempt #10 to slow down my disease—and he affirmed what I expected: at the time, there isn't a good Plan J. Mavenclad and Mayzent are for active SP disease (no lesions since my transplant in 2010) and Lemtrada is too much risk for too little reward at this stage of my disease. Plus being over 50 doesn't help matters.

So for the time being, it's Plan I: remain on Ocrevus. If it only preserves my upper body 25%, that's still a big deal. Although I'm using a manual wheelchair full time these days, I'm loving life as always. But maybe I need a new handcycle (with electric assist) just because.
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