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  • Sparky10
    replied
    Maybe I've said this before, but Welcome, Diana! I read your posts and you are indeed active. Commendable! I'm on Tecfidera also; so far so good.

    Leave a comment:


  • Diana
    replied
    Hello!
    Its not my first post, but I should introduce myself. My name is Diana, and I am from New Jersey. I was formally diagnosed summer of 2013, though I have likely had MS since 2010. I'm currently on Tecfidera. I have more active hobbies than I have time for - Cycling, Backpacking, Rock Climbing/Mountaineering, Rowing, Skiing... This year has been tough, but this site and my wonderful boyfriend have been huge motivators to keep my head high and keep on movin!

    Leave a comment:


  • Sparky10
    replied
    Welcome, Treva! Love the name.

    I know one other person in Mexico who has MS. Think she's a transplant from the US.

    Seems people who do yoga really love it. I need to get off my behind and find a good beginner's DVD. Maybe one that includes intermediate. I plan to do the Pike's Peak climb in 2015 mentioned on this forum. Gotta strengthen my legs!

    Leave a comment:


  • Treva
    replied
    Hi there!
    I'm Treva, and I was just diagnosed in August. I am just starting to accept that this is really happening! I live in Sayulita, Mexico which is near Puerto Vallarta. I feel like I might be the only person in Mexico to have MS. Ok, hyperbole. It is just quite uncommon, I guess.
    I was planning on running my second half marathon this November but the heat has nixed training, I just run for an hour now until it heats up. I have joined an Iyengar yoga class and it is awesome. I love the fact this forum exists. Thank you, Treva

    Leave a comment:


  • Sparky10
    replied
    Welcome, Chris! A lot of very active people here. I'm rather like you - I can still be active but not for any length of time. I can slowly jog half a mile, or hike up and down hills (with 2 trekking poles) for about an hour, but don't ask me to do anything after that!

    Bending over seems to weaken me the fastest. Does that affect you? It is black walnut harvest time here in Iowa, USA. Yesterday I picked up, with the use of a cage-like thing that rolls on the ground, a full 5 gallon bucket of nuts. I was okay after that; a bit weak but okay. After I put down the roller and went about digging in the wood piles for nuts, THAT made it very hard to walk back to the house.

    Leave a comment:


  • ChrisWright
    replied
    Intro

    Hi,

    My name is Chris Wright and I live near London in the UK.

    A site like this seems exactly what I need. I was dianosed in April 2004 (just after my 22nd birthday) and have been living with the various DMTs on offer, which have helped some but not all symptoms.

    I was determined to stay active but then a combination of the MS and related neurological symptoms, left me unable to run, jog or walk for prolonged periods.

    I look forward to reading what options, tips and inspirational stories the members here on activemsers have to offer.

    Chris

    Leave a comment:


  • Sparky10
    replied
    Welcome to firefly! Does the "Fraser Hill" still exist? Give me an innertube on snow any day!

    Hi snoopgrl! I agree that MS should open doors, rather close them.

    Welcome, Yogi! I like your plan to stop pursuing a true diagnosis and just live.

    Hello Tina! That's quite a support system you have!

    A hearty welcome to the returning Michela! Good on ya for remaining as active as possible.

    Hi Mark, welcome! Keep us posted on your SCT recovery!

    Leave a comment:


  • mvargas
    replied
    Hello

    Hi, my name is Mark, I work in Albuquerque,NM and live in the mountains east of Albuquerque.
    I have had MS for 24 years, secondary progressive for the last six years. In March of this year I had chemotherapy and stem cell transplant performed in India. I am biking shorter distances and swimming daily to recover from the chemo, I also endure weightlifting every second day. I have been enjoying reading the different posts on this site and have learned quite a bit so far.

    Leave a comment:


  • Michela
    replied
    Hi, I'm reintroducing myself under a different name (found my former intro from 2008 as Michela11)

    I live in Sydney Australia, my CIS in 2007 transformed to diagnosis in 2008 after another relapse, and its been a pretty rocky road since then, although I've remained as active as I can.

    Was on Copaxone, now month 5 of Aubagio, currently coming out of second relapse this year. Not feeling great about Aubagio.

    Mum of one biological son, and a number of non biological sons, long time partner, long time journalist and broadcaster, still broadcasting but seeking other work options.

    Exercise has ground down this year through crushing fatigue. Am finding that very difficult currently.

    My jewellery designing brings me great joy, as do my two sooky dogs and my family

    Leave a comment:


  • ActiveMSers
    replied
    Welcome from all of us, Tina! I couldn't agree more--never, never, never quit. Have fun in your yard. Let's do this.

    Leave a comment:


  • TinaFT
    replied
    Hi There

    Hi everyone, I was diagnosed in 2003. I am currently not taking any meds as the only ones left for me to try are a little too risky for me.
    Even though I use a cane and have some limitations I consider myself an active MS'er.
    My hobbies are house projects/design and my family. I have 3 grown sons, 3 grown stepsons, 3 daughter-in-laws and 3 grandkids.
    I am convinced we can figure out how to beat this disease or at least control it if we all work together.....never, never, never quit!
    My hope is to one day be able to work in my yard again...in the Texas heat

    Leave a comment:


  • Yogi
    replied
    Short version: Howdy!

    Long version:
    Lots of active folk here who sound interesting and fun! Welcome! I'm new to this forum, too. I have way too many interests, hobbies, and favorites to list them all here.

    m.s. -- Even though it wasn't proven via spinal tap and MRIs, after all tests were given to eliminate other causes of symptoms, I was given a "possible m.s." diagnosis. That was 20 years ago. Flare-ups through the years have sent me back to GPs and neurologists who have varying theories after more "clear" MRIs -- some of them rather entertaining. About 80% of them still think m.s. After years of my own research and judging by more recent symptoms, I've decided to just conclude it is m.s. and proceed with living life. And, as I think back, I realize I've probably had it longer than 20 years -- as in since my early teens at least.

    Activity -- I want to stay active. My preferred form of outdoor exercise is hiking and biking. Inside, I enjoy yoga and tai chi as well as all forms of dance (as long as the house is icy cold). I've been researching exercises for strengthening "the core" in order to improve balance. I've had periods of needing a cane, but I've bounced back fairly well most of the time.

    I'm a writer and I know it, so I'll stop there before your eyes get weary.

    Leave a comment:


  • snoopygrl02
    replied
    Hello!

    I am Jamie and I'm from Wild, Wonderful West Virginia. I am 35 year old and was dx'd 7 1/2 years ago, but I had my first relapse closer to 12 years ago when I had my first bought of optic neuritis and at that time they thought they could "prevent" the development of MS by doing the whole IV solu-medrol treatment, which really just delayed my dx. I recently switched DMDs from Avonex to Copaxone, which has made a world of difference for me.

    I extraordinarily thankful for finding this forum because in my area, MS is viewed as an excuse to give up on life. And I refuse to be defined by this disease. It gets very disheartening. I love to be outdoors, especially running or hiking, yoga, and the working out at the gym. I officially registered for my first 5K for September, so I may need some pointers....

    Leave a comment:


  • ActiveMSers
    replied
    Lisa, Whitney, Ken, awesome to see you all. I just tweeted your arrival to our followers and we are happy to have you all on board. Each member brings a new level of depth to our community and helps makes it stronger. Thanks!

    Leave a comment:


  • firefly
    replied
    Hi There,

    I'm Ken. I'm 33, live in Fraser, CO, and was dx'd 7 years ago (though like many people, I first had a bunch of "acute transverse myelitis" diagnoses before finally getting the MS confirmed.

    I play hockey (goaltender), ski, snowboard, mountain bike, ride cross country, backpack a ton, and rock climb a little. In addition to my work, I occasionally volunteer at the National Sports Center for the Disabled (at Winter Park) in the equipment room, helping people with all kinds of needs get outside to play.

    Aside from work and play, I travel... alot... I've been to 12 countries in the last 6 months. My favorite countries so far are Germany and Austria... but who knows what other countries I'll love that I haven't been to yet.

    I'm full of random information:

    Stewardesses is the longest word in the english language typed with only the left hand (when holding your hands on the keyboard properly).

    If you leave your forearm crutches behind a hospital bed, then lower the bed when you forget about them, it is totally strong enough to crush them.

    Leave a comment:

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