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As many of you know, as a last-ditch effort to slow the rapid progression of my multiple sclerosis, last year I received a bone marrow stem cell transplant as part of an NIH-sponsored clinical trial. To date, a year and a half post transplant, my improvements have been nothing short of breathtaking.
Despite intense interest, only 23 people were able to participate. Funding for the trial was cut from the NIH budget. And health insurance companies denied virtually every qualified applicant. My insurance company denied every portion of my treatment, even when presented with compelling evidence of its likely benefits. Clinical trials must be affordable if critical research is to progress.
So I’m taking action. Below is the direct link to ActiveMSers’ new Spread MS Hope page. It includes the two videos I’ve done on the stem cell transplant (Hope, Part 1 and my just-released Hope, Part 2, featuring “The Wall”), a link to our new Spread MS Hope Facebook fan page, one of the baffling insurance denial letters, and my final, desperate appeal letter that ultimately fell on deaf ears (warning: it’s scary).
http://www.activemsers.org/getinvolv...eadmshope.html
Does this move you? Then make a statement. “Like” Spread MS Hope on Facebook, tell your friends to join in, Tweet about it, blog about it, post about it, contact your representatives in Congress, call and e-mail your insurance company (heck, and mine). Help start a movement.
Speak out. Spread hope. Spread hope like fire.
Despite intense interest, only 23 people were able to participate. Funding for the trial was cut from the NIH budget. And health insurance companies denied virtually every qualified applicant. My insurance company denied every portion of my treatment, even when presented with compelling evidence of its likely benefits. Clinical trials must be affordable if critical research is to progress.
So I’m taking action. Below is the direct link to ActiveMSers’ new Spread MS Hope page. It includes the two videos I’ve done on the stem cell transplant (Hope, Part 1 and my just-released Hope, Part 2, featuring “The Wall”), a link to our new Spread MS Hope Facebook fan page, one of the baffling insurance denial letters, and my final, desperate appeal letter that ultimately fell on deaf ears (warning: it’s scary).
http://www.activemsers.org/getinvolv...eadmshope.html
Does this move you? Then make a statement. “Like” Spread MS Hope on Facebook, tell your friends to join in, Tweet about it, blog about it, post about it, contact your representatives in Congress, call and e-mail your insurance company (heck, and mine). Help start a movement.
Speak out. Spread hope. Spread hope like fire.