Mixed bag of emotions

[Bree Solis]

Well, today was my follow-up to the Spinal Tap. All clear there. There were no markers. So, on January 30 - pre ST, dr. says...MS. Now, he won't call it. Thus the mixed emotions. Everything physically points to it and I have spent a lot of time researching, learning, preparing and then bam...back in limbo.

I will be going to UNM for my second opinion. I imagine that will be another couple of months wait. Dr. says something going on and I definitely should follow-up with UNM and keep investigating. He did say if UNM docs conclude MS, then likely I won't have to start DMDs right away. That is fine by me. In the meantime, getting fit and eating right will be key. I will continue to lurk around here too.

Good health to all!

[LivWell]

Keep your chin up, it can take a while to get a diagnosis. It took 5 years before my doctor was confident enough in my history and symptoms to say I had MS.

MS can look like so many other illnesses. Whatever it is, taking good care of yourself now will always pay big dividends later.

[ActiveMSers]

Hang in there, Bree. Limbo stinks. And sadly it is pretty common when trying to hunt down a diagnosis of a muddy disease like MS. The docs at UNM know their stuff, but even they will admit when they don't know. Good luck and pop in any time!

[HETA78]

Sorry you're having to go through that. I was one of the lucky ones that went from 1st major exacerbation quickly followed by a 2nd and then diagnosis in a very short timespan... Even so, it was the most difficut two months of my life. I feel for you and hope you get answers soon.

[Bree Solis]

Thank you

For your support and words of encouragement. I will keep my chin up for sure. Start better healthy eating and wait and see.

Is frustrating when ppl you count on say things like, See! There is nothing wrong with you. I know the intentions are good, but is so aggravating because it is like saying See! You are such a hypochondriac. Or something to that effect. I don't WANT MS, but I can't rule it out either. I guess they come around in their own time.

My husband bought a little book - the Dumbest Things Smart People Say to Folks with MS by Dee Kite. Small and quick read. I will pass it along to friends and family if needed.

Again, thank you everyone!

Bree