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Active MSer? Introduce Yourself Here!

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  • Veronica
    replied
    Coweyelens, glad you posted again! And I am very interested in your hula hoop couching... I got a weighted hoop a few years ago, and I just play around with it every so often. It felt as if it would help with balance, and so I searched around online for guidance, but never found anything. So, anything you can share in terms of developing a better routine with this would be much appreciated!

    Leave a comment:


  • Coweyelens
    replied
    It's been awhile....

    I just noticed that the last time I was on this site was 5 years ago! Oh, my, so much has happened...lol!
    I did get the cooling vest I read about on here and I love it!
    I have run 2 marathons....no more for me now...too much training
    My MS has been stable until 3 weeks ago when I experienced drop foot and still do. At least I can still walk, drive, hoop dance, etc.
    I have been doing yoga for almost 4 months and love it so much for my mind and my body. I became a hula hoop dance coach in 2016 to spread the love of the hoop and how it helped me to regain my balance.
    I thought it was time to reconnect

    Leave a comment:


  • Toodles
    replied
    Originally posted by ActiveMSers View Post
    Jackie! Welcome. So great to have you aboard. My only concern is that you may also employ a driving cat as part of your business. Smart if the walking is sketch.
    If Toonces could walk dogs I might consider hiring him.

    Leave a comment:


  • Bat in a Hat
    replied
    So pleased I have found you all.

    Hi,
    I live in the UK, I am not quite sure how I found this site! I think it was a link from an'all terrain wheelchair' site, however it is great to find so many people taking a positive attitude.
    I was diagnosed with Primary Progressive MS in 2007. I worked full time and was very active, swimming walking etc.Then the financial crash,the company I worked for, closed. No employment since.

    With PPMS, there are no 'relapses' just a creeping paralysis - just so annoying!
    I now use a frame to go around the house and a chair outside. I have learned to drive with hand controls, it takes me 10mins to drive to my local town, but another 10mins to get into the car and another 10mins to get out!
    I now do voluntary work, I can still 'run around the keyboard' - although I would rather be paid!
    I have taken on the local Town Council, to try and make the Town more wheelchair friendly.
    I am married, live with my husband, children are now grown up.
    Living in a different time-zone makes me look as if I am awake all night, typing!

    Leave a comment:


  • Colphin
    replied
    Aussie newbie

    Hi Col here. I have ppms and Crohn's disease. Mobility eyesight speech and hands affected but still surf, ride bike, motortrike, sculpt and paint. Just had my first exhibition opening and had the beach boys use my art as a backdrop for their 2016 tour. Ms sucks but life can still be an adventure .

    Leave a comment:


  • ActiveMSers
    replied
    Jackie! Welcome. So great to have you aboard. My only concern is that you may also employ a driving cat as part of your business. Smart if the walking is sketch.

    And mizcg: join at www.ActiveMSers.org and you'll immediately get an e-mail with instructions to get your discount codes. The gang here will do its best to keep you motivated in you quest to get fit again. Welcome, too!

    Leave a comment:


  • Toodles
    replied
    Hello, my name is Jackie. I was officially diagnosed in 2011 but believe I have had MS since childhood when I was known as "the kid with the sleeping legs". Looking back through the years I can relate issues I have had to the symptoms of MS. I am now 55 and am experiencing issues on a daily basis. I have always been active and still work out with my personal trainer three times a week. Not always as many reps and sets or intervals as I used to do but doing them at all is what matters.

    I live in Colorado and own a pet sitting/dog walking service, though much to my dismay dog walking has now gone by the wayside...

    Leave a comment:


  • mizcg
    replied
    Out of shap with great desire to get back in shape

    I am from Pittsburgh, PA and was diagnosed with MS in 2004 while living in Memphis, TN. I was a high level accountant who lost her job when she had a relapse (serious mind blow). This event gave me courage to give up that life and start a new one as a patient advocate. I go to DC once a year an lobby for healthcare.

    I was in great shape until 2012. I ran 5 miles almost every day of the week and lifted weights. I was a very healthy eater. I had a baby in 2011, which didn't cause the major weight gain. I gained 30 lbs with my pregnancy and was on way to lose the weight when I started having issues. I fell down steps with my baby in my arms. I was having balance issues. My fatigues and cognitive function were horrible. I assumed it was because of my MS but a year and a half later it was discovered that my heart was damaged during child birth. My left ventricle was damaged and my ejection fraction rate was down to 40%. My issues were due to the fact that I was not getting enough oxygen to my brain and not MS.

    My weight gained and loss of exercise caused a large weight gain as a result of eating fast food and no exercise. I am ready and finally healthy enough to start working out again and can cook meals instead of eating fast food. There was no time for home cooked meals because my husband had to take care of a baby and me.

    I need to start to fight through the fatigue so I can start working out again. Does any one have any diets that they discovered helped with their fatigue?

    I'm in the process of obtaining cooling equipment and can not find any discount codes for any products. Does any one know any discount codes. I can not seem to find any on this site.

    Leave a comment:


  • ActiveMSers
    replied
    Beth, welcome! Hmmm. Get you out of your comfort zone? Ask you anything? Oh boy, I don't know where to start. So I posted this on Twitter and Facebook to get help and linked to this post. Oh, jeeze.

    Leave a comment:


  • bethalli
    replied
    Hello, it's just me

    Hi, I am Beth and was dx'ed 20 years ago in March with relapsing-remitting ms. I am mostly "pollyanna" positive and really dislike negative energy.

    I am an expert procrastinator. I am 52, single living with some family in Ohio.

    Looking forward to some new people to get me out of my comfort zones. Ask me anything.

    Leave a comment:


  • ActiveMSers
    replied
    Tina! It's fantastic to meet you. Although you might want to think about cleaning up your language (re: whatthejunk). That crosses the line. Granted, the line between prude and good two-shoes, but still....

    Oh, I joke. Especially because it sounds like you are a skilled martial artist who could take me down with one chop! Welcome.

    Leave a comment:


  • TinaP303
    replied
    Hi everyone,

    I'm, Tina. 57 yrs old, married my high school sweetheart when we were young & stubborn. Still happy & stubborn with 4 kids & 9 grandkids.
    After about 15 years of "sinus infections" and "toothaches" I was sent to see the PA at a neurologist's office. She said "Trigeminal Neuralgia" - I said "translation please". She did. MRI was ordered to check out that pesky trigeminal nerve.
    A week later I get called into the neurologist office to see the doc. He said "MS" - I said "whatthejunk?".
    After picking myself off the floor, I had a long chat with the Sensei at the karate dojo where my 2 oldest grandkids went. Her calm phrase "We'll figure this out together" started my soul's recovery & I started training that Monday.
    5 1/2 years later - that was the best decision I ever made. I've got another family now, with more support than I could have dreamed of getting.

    Leave a comment:


  • ActiveMSers
    replied
    Joe, where the hell have you been? 10 years you've had this disease and you've never visited?! Oh, we forgive you. Especially if you fill us in on your epic adventures. For folks wondering what is a Ragnar, it's this.

    What is Ragnar?

    Here’s what we do: long distance, team, overnight running relays that take place in the most breathtaking places in the world. Teams come together to conquer a course over two days and one night, and push their limits, on little amounts of sleep, with friends and a community of runners by their side.

    Your Ragnar experience is as competitive as you make it. Rally your team and battle the other teams in your division for the top ranking, or simply make it your goal to cross the finish line together! Ragnar is about coming together and accomplishing something we could never do alone. From an elite runner to the generally active individual, Ragnar is the perfect race for anyone.

    Conquer 200-ish miles of road running with 12 friends and 2 vans during a Ragnar Relay, or camp with 8 friends and conquer a set of gritty trail running loops at a Ragnar Trail. Find out more: https://www.runragnar.com/ragnar

    Leave a comment:


  • JRun83
    replied
    Why haven't I found this site sooner? My name is Joe and I was diagnosed in January 2007 at age 23 after going pretty much legally blind. I've been on Copaxone for 10 years now and besides a few random exacerbations, I've been able to keep it together and run my Ragnar Ultra relays without a hitch..

    Leave a comment:


  • ActiveMSers
    replied
    Jule, welcome! And I am revising my welcome policy. It kills me not to chat with new folks on this thread (in theory to keep it from getting too big), so I've decided that's silly. Let's blow this thing up.

    Crossfit!? Love it! We have some CFers here. All great folks. Glad you joined us.

    Leave a comment:

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