Gilenya One year experience
One year ago this week I started Gilenya.
First, a bit about my situation-
I am a very rabid cyclist who has had my VO2 max measured, do interval training, etc. We ride about 150 miles a week and I was hoping to be faster this year, So, my experience and side effects probably don't apply to most folks.
Overall, the Gilenya has few side effects- I don't feel any different during the day. I have noted no increased fatigue or any other day to day symptoms.
I have experienced a few more infections than I would expect- infected skin biopsy site, infected cat scratch, GI tract infection with H. Pylori. These all responded to one course of antibiotics.
The biggest issue I have with Gilenya is my exercise tolerance. The Gilenya has caused my max heart rate to drop about 8 points and has dropped my VO2 max by 20-30%. This has significantly decreased my exercise tolerence and makes me more fatigued when exercising. I am still riding- just slower. We bought a tandem bike so I can keep up on rides.
Right now, I am willing to trade this side effect for a decreased chance of long term disability and cogitive dysfunction.
Pell
One year ago this week I started Gilenya.
First, a bit about my situation-
I am a very rabid cyclist who has had my VO2 max measured, do interval training, etc. We ride about 150 miles a week and I was hoping to be faster this year, So, my experience and side effects probably don't apply to most folks.
Overall, the Gilenya has few side effects- I don't feel any different during the day. I have noted no increased fatigue or any other day to day symptoms.
I have experienced a few more infections than I would expect- infected skin biopsy site, infected cat scratch, GI tract infection with H. Pylori. These all responded to one course of antibiotics.
The biggest issue I have with Gilenya is my exercise tolerance. The Gilenya has caused my max heart rate to drop about 8 points and has dropped my VO2 max by 20-30%. This has significantly decreased my exercise tolerence and makes me more fatigued when exercising. I am still riding- just slower. We bought a tandem bike so I can keep up on rides.
Right now, I am willing to trade this side effect for a decreased chance of long term disability and cogitive dysfunction.
Pell
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