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The French to English translation is a little garbled, but basically researchers found exercise important for MSers, but that it can be tricky due to fear of disease worsening and fatigue. - Dave
Specific multidisciplinary consultation: adapted physical activity and multiple sclerosis
C. Donze, M.A. Guyot, O. Agnani, P. Hautecoeur (Lomme, FR)
Multiple sclerosis (MS) doesn’t prohibit adapted physical activity practicing. Moreover, it was established that quality of life level of MS people is correlated with physical activity level 1-2.
Objective: Assessing multidisciplinary consultation impact in physical activity resumption in MS people.
Method: A semi-structured questionnaire was administered to 132 patients who received a consultation before (March 2008 - August 2010). Questionnaire incorporated causes and time of activity arrest, feeling of practical, difficulties and consequences of meeting with multidisciplinary team. A descriptive analysis was performed.
Results: 78 patients responded (age: 47.9 years ± 9.9; duration of illness: 12.9 years ± 7.7; median EDSS: 5.5). 70% of patients were engaged in physical activity at diagnosis. 46.3% of patients stopped at diagnosis announcement. After consultation, 68.4% of those who had stopped activity have resumed. In 30% who didn’t practice, 54% have started a regular activity. Some expected benefits of practice before and after diagnosis announce doesn’t change (well-being and physical fitness).
Discussion: Fear of illness and fatigue worsening can explain the physical activity cessation. Even adapted practice is difficult because of suitable symptoms but also by unreachable structure, low level of information on this subject, other people stearing and underestimation of abilities.
Conclusion: Exercise impact on people with MS and positive development (physical and mental) after consultation reinforces the idea that specific consultation is required to accompany the patient’s project.
References:
1. Kerdoncuff V, Durufle A, Le Tallec H, Lassalle A, Petrilli S, Nicolas B, Robineau S, Edan G, Gallien P. Multiple sclerosis and physical activities. Ann Readapt Med Phys. 2006 Feb; 49(1):32-6.
2. Kayes NM, McPherson KM, Taylor D, Schlüter PJ, Kolt GS. Facilitators and barriers to engagement in physical activity for people with multiple sclerosis: a qualitative investigation. Disabil Rehabil. Aug 2010.1-18.
Specific multidisciplinary consultation: adapted physical activity and multiple sclerosis
C. Donze, M.A. Guyot, O. Agnani, P. Hautecoeur (Lomme, FR)
Multiple sclerosis (MS) doesn’t prohibit adapted physical activity practicing. Moreover, it was established that quality of life level of MS people is correlated with physical activity level 1-2.
Objective: Assessing multidisciplinary consultation impact in physical activity resumption in MS people.
Method: A semi-structured questionnaire was administered to 132 patients who received a consultation before (March 2008 - August 2010). Questionnaire incorporated causes and time of activity arrest, feeling of practical, difficulties and consequences of meeting with multidisciplinary team. A descriptive analysis was performed.
Results: 78 patients responded (age: 47.9 years ± 9.9; duration of illness: 12.9 years ± 7.7; median EDSS: 5.5). 70% of patients were engaged in physical activity at diagnosis. 46.3% of patients stopped at diagnosis announcement. After consultation, 68.4% of those who had stopped activity have resumed. In 30% who didn’t practice, 54% have started a regular activity. Some expected benefits of practice before and after diagnosis announce doesn’t change (well-being and physical fitness).
Discussion: Fear of illness and fatigue worsening can explain the physical activity cessation. Even adapted practice is difficult because of suitable symptoms but also by unreachable structure, low level of information on this subject, other people stearing and underestimation of abilities.
Conclusion: Exercise impact on people with MS and positive development (physical and mental) after consultation reinforces the idea that specific consultation is required to accompany the patient’s project.
References:
1. Kerdoncuff V, Durufle A, Le Tallec H, Lassalle A, Petrilli S, Nicolas B, Robineau S, Edan G, Gallien P. Multiple sclerosis and physical activities. Ann Readapt Med Phys. 2006 Feb; 49(1):32-6.
2. Kayes NM, McPherson KM, Taylor D, Schlüter PJ, Kolt GS. Facilitators and barriers to engagement in physical activity for people with multiple sclerosis: a qualitative investigation. Disabil Rehabil. Aug 2010.1-18.